Kadcyla in Scotland – make your voice heard

Posting this on behalf of the Campaigns Team

Kadcyla in Scotland – make your voice heard

The Scottish Medicines Consortium (SMC) provides advice to the NHS in Scotland about the use of new medicines.

The SMC are currently in the process of assessing Kadcyla (non-branded name of trastuzumab emtansine) for use in the NHS in Scotand and are currently inviting submissions from patient groups to feed into this process. The SMC are due to make a decision this Autumn. 

As you may know, Kadclya is used to treat people with HER2 positive secondary breast cancer or regional recurrence (where surgery is not possible), who have already had trastuzumab and chemotherapy drugs called taxanes, either together or separately.

Kadcyla can mean those facing limited treatment options live longer and with fewer severe side effects, such as being sick, vastly improving their quality of life.

We are working alongside other breast cancer charities to make a submission to the SMC. We are keen to increase the patient voice in our submission and are seeking input from:

  • people affected by secondary breast cancer
  • people affected by secondary breast cancer who are currently enrolled on trials of trastuzumab emtansine
  • those around them – carers, family members and friends

We would like to hear your views on the impact having access to this drug could have, both for people with secondary breast cancer and those around them.

Please email campaigns@breastcancercare.org.uk to tell us your views. We will use this for our response and keep you updated.

Many thanks

Emma, The Policy & Campaigns team

I wonder if anyone can help me here, I thought this may be the best place to post about this…

 

I have lived in England for 3 years and my life is down here, having just been diagnosed with stage 4 BC I have been given my treatment plan down here with includes perjeta (spelling) as I have lung mets.

 

All of my family live in Scotland and was planning on going home for my chemo so I have my family around me but I have been told this drug is not available in Scotland… My question is if im living down in England and just going home to be with my family am I still able to get it? Or is there a way for oncologist in scotland to get the drugs I’ve already been told I need?

 

Thanks xx