Yes, I know what you mean about COVID days, my bottle of hand sanitiser is my best friend
My neutrophils have been as low as 1.2, but fortunately not picked any infection up other than the odd cold and it’s been no worse than a pre ribo cold. I don’t tend to wear a mass and we went on holiday to Europe (so flying). As you said all about being sensible and aware of your surroundings.
Like you have worked full time throughout.
Hi all, thanks for all the sharing. I was quite worried about the side effects of Ribociclib until I came across this thread.
I’ve just started taking Ribociclib 400mg for a week, have mild heartburn and occasional rash. My skin has always been quite sensitive, esp after chemo, so not particularly alarming.
PS. I’m node positive, grade 2, on Anastrozole (switched from Letrozole due to insomnia).
Wish you all have a good week.
How have you found switching from Letrozole? I have found Letrozole worse than Ribociclib and the insomnia is beyond a joke.
BTW I take Ribo (both tablets) in the morning along with Letrozole. Anything to avoid taking at night and making sleep even worse.
I sleep so much better after switching to Anastrozole. I slept through the night in most days now, sometimes waking up once to go to the toilet as compare to waking up five to six times a night while taking Letrozole.
I’m taking Anastrozole and Ribo in the evening (9-ish) after dinner. I’m a night owl and go to bed around midnight and sometimes 1am. So I still have a couple of hours before bed to drink plenty of water. I also feel the muscle aching a bit more (esp my hands) after around 2 hrs taking the drug, so I’d prefer to sleep thru the aches. The fatigue from AI and Ribo seems to make me fall asleep easier too.