hi folks,its been awhile since ive been here my treatment finished on the 3rd july,i have since returned to work but i have no motivation i had to return to work as we needed the money as we received no financial help so we are struggling on hubbys wages.i feel that the after care or lack of after care has left me feeling down .i feel that i have been left to get on with it by myself and i was told that wouldnt happen.through all of this my hubby has been by myside he has been my rock. i find myself going over everything that has happened to me and getting angry (whichi dont usually do) iam angry at my family for not being there for me angry at the bc angry at the system for not helping us the sweats keep me awake at night so iam tired most of the time maybe thats why iam feeling down ,i feel so alone sorry for moaning but i had to get it off my chest.tc all dot
Hi dotmac
I’m really sorry you are feeling like this, and you most certainly should not be alone. You should have been allocated a Breast Care Nurse who would be my first port of call, contact the hospital where you are being treated. I was also allocated a Macmillan nurse who visited me at home (I live in a semi-remote place), she was amazing. Then there is your GP and/or practice nurse.
Were you given the option of a phased return to work? I went back on a very small time table and built up to 2 days (I had been full time before). I think that money is the centre of your issues and is clouding the more serious issue which is your well being. I have been there and know it is not easy to rectify this overnight, but have you considered altering your lifestyle, ie downsizing your house / mortgage, getting a mortgage holiday (a break from your repayments, speak to your provider). Or if you are in rented, can the council help, what about citizens advice?
It does look like you have been left to flounder and this is totally unfair when you need that support now.
I hope some of my ideas have helped, keep in touch.
Irene
HI DOTMAC IM NOT FINISHED MY TREATMENT YET WILL BE STARTING HERCEPTIN IN A FAW WEEKS I KNOW HOW YOU FEEL I GET ANGRY AT TIMES AND I CANT EXPLAIN WHY MY HUSBAND AND FAMILY HAVE BEEN GREAT BUT I THINK THAT WE JUST SEEM TO GET DRAGGED ALONG WITH EVERYTHING THATS GOING ON AND ITS ONLY WHEN YOU SIT BACK AND THINK OF WHAT YOU HAVE GONE THROUGH IT MAKES YOU ANGRY BUT THEN SOMETIMES I THINK TO MYSELF ITS NEARLY OVER IM STILL HERE AND IM GOING TO ENJOY LIFE,TRY TO CHEER UP AND PUT YOURSELF FIRST EVEN FOR AN HOUR OR SO ADAY TAKE CARE SANDRA
Dear Dot
I thought you may find Breast Cancer Care’s peer support service helpful, our Peer Support telephone service aims to quickly put you in touch with one of our trained peer supporters, who has had a personal experience of breast cancer. Our peer supporters are from diverse backgrounds and ages and have experienced different types of breast cancer and treatments. They are ready to listen, offer skilled emotional support and share their experiences and understanding.
For more information about this and our other support services available to you, please telephone our helpline on 0808 800 6000 (Mon-Fri 9am-5pm and Sat 9am-2pm), or email:
Best wishes
Lucy
hi dotmac
how are you doing feeling any more positive
sandra x
thanks to all who replied nothing has changed my situation is still the same only iam feeling really low but life goes on .
Dotmac - yes life does go on but the great thing is that you are part of that life.
I am now only on Herceptin, and I am a bit nervous about being out on my own in the world - esp as my body has proved that not great at fighting those rogue cells in the first place - however, am trying to faith in everytihng, that the op’s, the chemo and the rad and herc have destroyed all that was not welcomed. I have faith/hope that my body has learnt what it must do, if does come come back.
please try to talk to someone, this is not an easy journey and we all need someone to carry us when it gets to tough.
a big warm hug to you
K