leptomeningeal disease - anyone else treated for this? intrathecal methotrexate?

Hello

A recent brain MRI showed that I have now got spread to the lining of the brain - leptomeningeal disease. I have been looking at possible treatments for it including intrathecal methotrexate but have only come across this in the US. Has anyone had this in the UK?

Thanks

 

Hello Lavender2014

Whilst waiting for replies maybe you would like to talk things through with a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open again on Monday and normal hours are Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

Best wishes

June, moderator