Hi @Vissdoc can you please let me know what brand of tart cherry are you taking?
Honestly, I think 6 months of chemo weren’t as bad as the menopause symptoms. I am on Prostap 3 monthly injections and the hot flushes and brain fog together with the joint pain is just unbearable. Don’t get me started in the vaginal dryness and numerous UTIs.
I have a face to face appointment with my oncologist next month and will ask him about Raloxifene. I never heard about this drug before but will have a look.
Likewise, good luck with the Abemaciclib and honestly, even the lowest dose 50mg is working to keep the cancer away.
Actually any tart cherry that is from Solaray, Solfar, NOW, or organic is good.
Hope this helps. Lmk what happens with your face to face appt. I see mine on Aug 20 where we’ll discuss Raloxifene and abemo. All best to you!!
I started taking Letrozole a few weeks ago and was very nervous about how it might affect me. I am pleased to say that I am not experiencing any side effects from it and will certainly be continuing to take it for as long as is considered necessary.
Hi I have taken Letrozole for 12 months and tbh for me it depends on the brand. Some brands make me feel nauseous, headache, hot sweat and joint pains. But I try and keep active, eat healthy and drink lots of water and this helps.
I have weighed up the benefits of taking the drug for 5 years and if it keeps the cancer away then that is a huge positive for me.
Good luck x
hi …i missed what tart cherry is good for …i have been on letrozole for 12 months now and have various issues with the medication mainly joint ache in my wrists …is tart cherry helful for this …thankyou
Hi, I have found Glaxo Smith Kline to be the best one that gives me the least side effects as against Glenmark which I am currently taking which gives me terrible joint pain and nausea.
I have spoken to my pharmacist about the different brands but it appears that they have no control over what is sent them.
I have been taking it for 2 months since chemo and also for 2 months pre-surgery (huge wait for surgery)… No problems for me, unlike with almost everything else (including v bad reactions to chemo and anti-neuropathy drugs and to Zoledronic acid.
There are clear benefits to taking it.
Hi
I’ve taken Letrizole for years with no side effects at all.
Everyone is different so it’s hard to ‘blanket’ medicine side effects.
I suggest if it’s what your Docs would like you to try is go for it but give it time to settle down.
If you get side effects that you don’t like then ask to be taken off it.
I’m about to join in a large trial with some possibly, but only occasional bad side effects but I’m willing to try as the long term benefit’s could be worth a few inconveniences!
Just be happy with your treatment and stay positive!
xx
I start mine tomorrow and as already suffer with migraine I am worried this will make them more frequent. Also concerned about weight gain, has anyone suffered? X
Hello!
Just wanted to jump on this post and say yes, it is possible to be problem free.
I have been on Letrazole for a year and a half and honestly have no problems with it at all.
I don’t come onto this forum very often anymore, but do check in from time to time. When I saw your post, I thought I would share my positive experience with Letrazole in case anyone else is worried too.
All the best
Carrott
Hi, As I said to country girl somewhere above on this site, yes Letrozole has its side effects but I am hoping to continue it for another 5 years if possible. My oncologist has proposed 10 years of treatment and if this little pill can keep cancer away I will do my best to put up with any side effects although I have to admit my knees do not bend very well going up and down stairs. Take care. Wishing everyone well.
Sunshine21.
I’ve been on Letrozole for coming up 6 months and have some side effects, I was hoping they’d have settled by now but it doesn’t seem to be the case, yet, but ever hopeful.
I get, in order of frequency;
difficulty sleeping most nights, I’ve tried taking it at different times of day but doesn’t seem to help. I used to sleep soundly for 7 -8 hours, now it’s a couple of hours and wide awake, takes a little a while to doze off again and then 2 hours later awake again.
headaches, usually two or three a week, but as a migraine sufferer I expect the Letrozole has found a weak spot there. It is just a headache though, there’s been no increase in my migraines.
aches in finger joints, nothing too severe but noticeable on and off.
hot flushes, just a couple a day, again manageable.
and just a general “cloth headed” feeling which is worsened by lack of sleep so a bit of a vicious cycle going on there.
I do find that different brands affect me differently and I’ve had an allergic reaction (all over body hives!) to one, the Accord brand. I also find Sun not so good. My GP has put on my prescription notes to chemist not to issue those brands.
The ones that suit me best are Bristol and Cipla but really hard to track down, chemist rarely has them.
Currently on Amarax and they seem fine but do have to schlep around pharmacies sometimes to find them.
Having said all that, my cancer was grade 2 and ER+ve 8/8 and I’m determined to stick with the Letrozole as I do believe it will help given my 8/8 oestrogen rating. I’ve been told 5 years and then review, I’m 65 now.
In my sleepless moments I think of any cancer cells popping up being starved to death ! Doesn’t get me back to sleep but makes me feel better about taking the flipping thing !
Hope it is ok to ask, do you have to pay privately to see the Oncologist? I ask as I was discharged 18x months ago and not seen again, other than sessions with the community lymphoedema team (that’s finished now). Letrozole is hellish for me, but not told anyone as nobody sees me now discharged. Thank you.
Hi @naturaljazz are you in the UK? If so annd you are taking Letrozole for 5 or 10 years, you should still be able to contact your NHS breast cancer nurse about your side effects. She can usually get an appointment with the oncologist to discuss changing or stopping medication. You wouldn’t have to pay for it. If you no longer have the breast cancer nurse’s telephone number you should be able to get it from the hospital.
