Hi all, bit of an update on the letrozole and pain issue.
I’m still waiting phone call from endocrine nurse so decided to bypass completely and took myself to the GPs.
Saw a new GP who listened as I explained all the pain issues and the MRI scans showing deterioration and inflammation of muscles.
After painful examination of muscles (mostly squeezing) and test for lifting my arms above my head she has diagnosed Polymyalgia Rheumatica.
She said that AIs can trigger autoimmune issues and that this is probably cause of mine.
Will mention to endocrine nurse if I can ever get hold of her.
Hi all. I’ve been having acupuncture since summer and now I have no hot flushes. If you cannot get it through your hospital/doctor it is well worth paying for 10 sessions from a reputable acupuncturist
I am now 2 years and 4 months into my letrozole journey and still suffering with all the side effects. Absolutely worn out when trying to do the normal up and down ladder and cleaning lights etc ready for Christmas. I manage to get the jobs done but I think it’s all exacerbated by the lack of sleep every night. I was given a couple of those Lemmie sleep gummies by a friend and I am very sceptical about taking anything these days. Hate any zoned out feeling but I have to say I actually got some sleep with the little bit I took.
I know you have to be aware of any contradictions with the medication you’re on as it can prevent the efficacy of the drug however I can’t see anything mentioned when I have checked. I don’t want to be prescribed another drug/ antidepressant to help me to sleep. The gummies main ingredient is melatonin hence the sleep inducing. I also understand that this is only usually available on prescription as well as not to be taken long term. But if half of one of these can help to regulate my sleep then I for one am happy to take for a few nights.
I had bilateral breast cancer back at beginning of 2023- the receptors were hormone dependent and no lymph nodes were affected.I was never informed of my survival percentage only that it was grade 1 and I subsequently found out that I cannot check my predict score as it doesn’t cater for bilateral patients.
So whilst I feel like a 100 year old nethanderal with all the ankle, foot and joint pain, I can hopefully manage to sleep again for a few hours
Wishing everyone reading this good luck with their AI journeys
Thanks. I have contacted a local lady and hoping to start in the New year. I was hoping it might be less than 10 as it’s £65 a session.
Gosh, having cancer is costly.
@Lynikinz i am also bi lateral, with two separate primary tumours. I was told Predict was based on the larger of the two, which for me was also HER2+ . My outcome will be less than it says as my two separate cases of cancer will enable my daughter to have annual screening from 40 (policy two close relatives, my cancer as deemed as two people).
Hi
Thanks for your reply
I will be starting reflexology- 6 sessions over 6 wks in the new year. I got given a leaflet for holistic treatment in with the multitude that we all get given. I only recently got around to contacting the hospital oncology dept where they practice it as the thought of revisiting that place did not feel me with glee
I will look into Acupuncture though
I really need to begin to get to grips with the sleeplessness as well.
Anyway keep us all posted with your progress
Take care
Lynn x
