Hi Janice
I have just had chemo, mastectomy and rads x 25. Thanks for the info on cod liver oil - I will try that. My hair is just growing back and my finger and toenails are still in pretty bad shape so that is really helpful. I am taking vitamin D as it seems that Letrozole can affect bones and cause osteoporosis, and anyway, apparently most people in this country do not have enough vitamin D from the sun alone.
I cannot sleep tonight because of side effects of Letrozole. I started taking it at night so that I am not so badly affected in the day when I am trying to work or seeing people. I get a terrible rash after taking it and then incredibly itchy feet, legs, back etc. I have just taken some antihistamine and hope this will help. Though I do not see how I can take anti H for the whole course of the next five years. I am seeing the onc for the first time since taking Letrozole tomorrow and will check this out. I also get nausea and incredible thirst and dry mouth. I had hoped all this would settle but it has been a couple of months now. I have had a bit of joint stiffness but find that this goes away with movement, walking etc. And words - well yes …gaps. Oh dear. All best wishes Harebell
Good luck seeing your onc harebell , I hope he/she will be able to advise you about the rashes / itching . I read another post somewhere where the lady was suffering rashes , and I believe her onc has reffered her to a dermatologist which is helpful.Hoprfully yours ccan do the same for you ,because as you say , you cannot be taking anti H for the next five years, or maybe you can , at least you´ll get some answers .
Words ,not too bad , but all of a sudden I´m forgetting people´s names …really embarassing !
Regards Kris
Hi girls,
I have just been discharged by my oncologist after surgery,chemo,radiotherapy, 5 yrs of Tam and 3 years of letrazole.
when i was diagnosed I had a very agressive tumour and was given a 30% chance of survival. that was 8 years ago.My advice is take any treatment they offer and stick with it. Get rid of as much stress as you can in your life(not easy,I know) and don’t admit that it might beat you!
All best wishes,
Bumping up for puddleduck x
There doesn’t appear to be any very recent posts about the side effects of Letrozole, or have I just not found them? Am new to the BCC forum.
Diagnosed earlier this year, ILC, wide local excision followed by 2nd op to improve margins then radiotherapy, now on Letrozole. Was given Arimidex first but experienced very bad RSI symptoms in both hands so switched to Letrozole. Have been on them for two months now and, although I am still getting some pins and needles in both hands, I thought until last weekend I was OK. Suddenly I felt as if the clock had been turned back by about ten years and not in a good way, I was hit by what felt like a hefty dose of PMT, I suffered dreadfully before my hysterectomy and no amount of playing around with various meds and alternatives helped but following the TAH I felt massively better and am not keen to feel this way again. My mood swings are awful, I either want to curl up and be left in peace or feel murderous! Having read several websites I know that I cannot take anything like St John’s Wort so just wondered if anyone had suggestions? Also have sore joints in hands but this does seem to have improved a bit since starting Evening Primrose and Omega 3 - 6 and 9 plus a multi vitamin. Am seeing onclogist on Monday and thought I would see if I could go armed with advice from anyone on the forum.
Appreciate any advice thanks.
Hi SallyMP, I have been on letrozole since April after Tamoxifan did not work, I am having physio to see if that helps with my joint aches and pains however it is too early to tell, the thing is I think my pains are getting worse instead of better this week I have had a real problem with my wrists and hands as well as them aching I also think thay are going numb. I am taking 3 diclofenic a day and 1 codine at night. I hope you find a solution x
Hi could anyone help I’ve been taking letrazol for a few months also had my ovaries removed in April , my oncologist suggested cod liver oil with omega 3,6,9 for my joint pain can anyone advise which ones to get please, just a little help with the menopause symptoms I’ve been using a lady care magnet for a while it definitely help with the mood swings ,reduced my flushes I would recommend to anyone who can’t use any get products such as me .
For the first time in years when I picked up my prescription a couple of weeks ago the brand had changed
within days I was stiff as a board. By coincidence I rang a friend today who lives in a different part of the country, also on Letrozole and also uses Lloyds chemist. She reported similar problems from the change to Dr Reddy brand. I’ve been OK on Sandoz and then Accord but Dr Reddy seems not to suit. I can barely get upstairs. I am going to call at the chemist to report and also to ask the doctors if they can help. Anyone had (extra) problems with this brand?
The brand’s do causes a lot of changes …sandoz brand is the nearest one to the femera which was the original under license.
I prefer accord brand and have it added to my prescription each month now. it’s a question of cost on the generic versions …but make sure you get the brand that suits you.
Hi, was diagnosed with IDC in Aug 2016. I was put on Letrozole last year and my sweating is really getting me down. I work a 10hr night shift 3 x per week and im so embarrassed my clothes are saturated without doing much. I had a full hysterectomy before i went on it. I had started to go through menopause before the bc but this is just ridiculous. Pls help if u can.