Thanks Laurie, I will hang in there, the thought of going on holiday will keep me going!! I think half the trouble is that on the days I think I feel a bit better I probably overdo things and try to tackle everything in sight and then pay for it for the next few days or more. Have just managed to put a duvet cover on and feel as though I’ve been lifting ten ton weights!
Let’s hope we both get good scan results, stable would be good, regression would be even better 
Lesley xx
Hi Lesley & Laurie,
Another girl with slightly rising TM and struggling a little!
Scan at beginning of Jan showed majority response to Xeloda with 3 exceptions. At the time, we decided to continue with Xeloda and just keep an eye on it.
I’ve been quite stiff and achy in neck and back since Friday - keeping me awake and have been getting up in the middle of night to get pain killers. I’ve been on my own for about a week, don’t know whether the aches are caused by the increase in cooking and housework I have to do myself or they’re caused by progression. Was tempted a few time to ring up onc, but I’ll probably be told to wait until my appt next Monday. Not sure what to do, just a little bit scared:-( Hope Monday comes a bit sooner. A bit pathetic though, considering my TM is only 11 (was 10, um, so that a 10% increase for me, too!). But those aches surely aren’t helping.
Hang on is the way to go.
Don’t you just hate those damn aches and pains?
I’ve got a twitchy right eye for the past few weeks. Stress or brain mets hmmm. Could drive myself mad just thinking about it all…
Hope its nothing m1yu *insert big thumbs up here*
Laurie x
Hi m1yu
I’d be tempted to remember the two-week rule re your aches and pains and hope they vanish as quickly as they’ve arrived. It may be the extra housework, as you say, fingers crossed.
Laurie, twitchy eye, not just tiredness? I get that sometimes (only sporadically) when I’m over-tired. Let’s hope that’s what it is - or stress, similar thing I suppose really.
Another big thumbs up to both of you
m1yu, I’m not even going to tell you what my markers are, they are just absolutely ridiculous in comparison, but I know it’s the size of the rise and fall that matters
Lesley xx
Hi Girls
Sorry that I haven’t been on here for a while. Someone asked about Vinorelbine? I had that with Capecitabine last year and didn’t have any problems with SE’s other than normal feet problems associated with both drugs. I had a good response with them and have stayed on the Capecitabine on what we hope is a maintenance dose to keep things stable. So far so good. My next scan will be in May.
Meanwhile, my Onc doesn’t bother with Tumour Markers so I am of no help there at all. At first when I heard of them I wondered what I might be missing, but they do seem to cause a lot of worry/distress among many of us so maybe it’s best not to know?
I also have lung mets…bragging again!!! My bone mets are causing a bit of nerve/sciatica type pain down my left thigh and leg which is bothering me and getting worse now since last Autumn so I think I will have to see what they can do about that.
Sorry that some of you are having horrible effects from the Taxol. I had that first time around with my primary and it wasn’t nice. Isn’t it amazing what we have all been able to put up with? If anyone had told me (nearly 5 years ago now) what I would have to go through I am sure that I wouldn’t have thought I could do it…but, here we all are…hang on in there girls.
Susiexx
Hi m1yu
How hard it is to be awake at night let alone with pain and aches. Have you spoken to anyone medical about what may help you get a good nights sleep? until you see the Consultant on Monday, . Hang in there if you can and call on the forum whenever. Heres wishing you a better night.
Esha
Hi girls,
After over a week scaring myself, I’m actually feeling a lot better! Still not exactly comfortable, but off painkillers for now, so maybe it is the housework and I’m starting to get used to it.
My onc couldn’t feel anything and said TM of 11 is still quite low. So, not too worried. He did ask me to keep monitoring the aches and pains. If they get worse before the next appt in 4 week’s time, he asked me to ring him and we’ll arrange some scans.
Another TM result due next Tuesday, that’s going to be an indicator as well to which way this is going to go. But for now, I just hope those pains won’t get any worse.
Take care xx
I’m pleased that your aches and pains are getting better m1yu. It’s probably down to increased housework etc. You must be feeling very tired. Have you tried yoga as a way of relaxing? I am going to begin soon. Gentle stretching could help with the aches.
X Sarah
Hi all
I had an excellent yoga session on Sunday and it helped with alot of my tension in my back and shoulders. It was followed by an excellent night of sleep.
Esha
TM has gone up again to 16:-( I know it’s still within normal range, but don’t like it creeping up slowly.
Hi ladies.
Had ct scan last week after three lots of docetaxol for liver and lymph mets. Went to see onc today with fingers crossed.
GOOD NEWS! Liver mets are decreasing in size and lymph mets have nearly all gone. Report says ‘good partial response to treatment’. Didn’t realise how uptight I was about it all until walking from the hospital and I started crying. My OH thought the wind was making my eyes run and then realised I was crying from sheer relief! So thankful that things seem to be going the right way at present.
Unfortunately, treatment has been delayed by a week as I’m on penicillin for a throat infection but know that I’ll feel better and up for treatment again next week. Three more to get through and can then think about booking a holiday although today,for me, the sun is shining anyway.
Liz x
Liz
Great news! Hopefully the little B’s will be gone by the time you finish your treatment!
Big thumbs up from me
Wow that is GREAT news! Well done. So pleased for you and you deserve that holiday x
Suzanne x
Thought I woud just try to bump this thread up in case it disappears. Hope you ladies are doing well.
M1YU I hope you are making a good recovery after your recent surgery and that you will be back to your old self before too long.
Love to all, Val
Bumping up, xxx
Hi everyone
Just a quick question
I am just about to board a cruise, with my oncs blessing.
But I forgot to ask about drinking alcohol with liver mets, I am not a big drinker but would like a cocktail or glass of wine with dinner.
Any info would be grateful
Mandy x
Hi Mandy,
I didn’t drink whilst I was on my FAC chemo, as I figured that my poor old liver had enough to filter without added poisons… But, once I finished chemo I will drink the odd glass. I may only have one glass a night for weeks, or nothing for a week, but nothing to excess.
So, my advice is…pack your sunscreen your gladrags and sense of humour, and have a fabulously relaxing time being pampered by other people, really enjoy the luxury and the fact that you are to do absolutely nothing! and have a few glasses for me!
xx
Thanks Horsie
I intend to, not on chemo at present, onc has given me a few weeks off as this cruise was booked before the liver mets rearred their ugly head.
Hope the weather in uk is good
Mandy
I specifically asked my onc about alcohol and he said that an occasional glass of wine wouldn’t do any harm (i.e no more than 1-2 per week).
I didn’t drink on chemo and in the last year I have had 3 drinks: One very good glass of red wine as a belated 50th birthday treat in the American bar at the Savoy after a day out with my friend. One very small glass of red on holiday in Tenerife and a tiny glass of lager. Just can’t bring myself to do it on a regular basis but to each their own and as with everything else in SBC - the jury is out!
Whether you’re drinking or not, have a fab holiday!
laurie x
I’m a newbie to the forums and just finding my way around so I hope I am posting this in the right place.
I was diagnosed in April already had mets in liver and bone. It was a huge shock but a relief at the same time. I’d spent nearly a year worrying and being told by GP that changes in my breast was nothing to worry about. Still trying to get my head around it all.
I’ve had 6 x Docetaxel & Herceptin now continuing on Herceptin and Zometa IV and wondering what lies ahead. My onc won’t be drawn on prognosis, his junior says ‘more than weeks’ whatever that means. I have good days and bad days, no energy most of the time, can’t sleep or need to sleep too much, lots of aches and pains. I’m under pressure to return to work but don’t know if I can. I’ve a few other health issues and stressful family stuff too. I’m scared.
I really want a holiday having cancelled 2 this year already but unable to get any travel insurance and it is really getting me down.