Sue, sorry to hear you are having to join us. I hope the bone-strengtheners help with your pain. Do keep an eye out for any numbness, tingling, nerve pains in your arms and legs (and any problems with walking). It can be a sign of spinal cord compression. If caught quickly enough, the drs can do something to prevent permanent damage.
I had surgery in November that basically replaced one vertebra with 2 titanium rods and stopped my compression. It has saved me from becoming paralysed and took away my nerve pain (like sciatica but down the fronts of both legs).
I hope the painkillers continue to work, the bone strengtheners take away even more of the pain and that the other drugs aren’t too harsh.
Sue
Thanks Sue,
I’ve already got problems walking, just any distance. The biggest problems are getting out of a chair and picking things up off the ground - why is gravity so severe - shouldn’t it really hold things at arms length rather than foot length? The oncologist has already asked me to keep them abreast of these potential problems, but there’s so much going on it doesn’t hurt to be reminded! I had a similar leg pain down the front of my legs after a brain haemorrage many years ago - it was the femoral nerve, so I called it femorala! Acupuncture helped me then, don’t know if you may find it useful
Treatment delayed by a week because the port area was so bruised and swollen (hard to find the port!). Never mind, I’ll soon be feeling much better and it’s nice to have a week without medics messing with me!
Purple hair with pink highlights is seriously cool though! lololol
Hi everyone
I have been reading this thread and can only thank you all for the comfort it has given me.I think I would like to start by giving you my background. I was dx with bc and node involvement in Feb 2013. Had mx and node clearance 4/18 effected. I have had all the scans finishing with MRI which where they found the liver mets albeit small at the moment. I have no symptoms and apart from all the emotions I feel well. My second dx only came yesterday so all is still quite fresh. They plan to start me on chemo hopefully nxt week and a drug they have to get funding for of which I have forgotten its name and finally Herceptin so as long as it works. My emotions range from giving in to wanting to fight this horrible cancer. I have two boys (9 and14) and find it difficult to watch them at the moment in fear I wont be hear to watch them grow into adults. As I have read the posts on this thread I can see that ladies do continue to live and most long term. I love the way everyone just gets on with life, work,holidays and everyday rountines. I have been so tempted to just crawl up in bed and never get up again but I know I cant do that. My husband and two close friends have been told the latest dx but im not sure I can deal with other peoples emotions when I am still dealing with my own. I know there are treatments out there which helps me to believe that this fight can be fought. I suppose I am just still a little bitter that I have gone from someone that is never ill living a healthy life to someone who will now be living at the hospital as I am sure many of you have also felt. I would appreiciate any advice you could give me and as time goes I hope I can do the same.
Angela xxx
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Gillg, i had a marked response with letrozole and I’ve seen people on letrozole for 5 years before progression. We are all so different. Not sure how old you are, but if you are past the menopause you could try letrozole if tamoxifen doesn’t work. If you are pre menopausal they will stop your ovaries first.
Hi gillg78 just wondering how your scan results were as we are now mid feb and I read your results were due early feb ? Hope everything went ok xx
Well done, stable is good but know what you mean, reduction would of been better. Now that you are on tamoxifen how will they monitor you ? Xx
How do you get your head around it as my mum is getting worse mentally where as we thought with time she would start accepting the whole situation but she is just getting worse, she is usually and always been the rock in our family but she is just crumbling day by day x
I was put on tamoxifen and less than 12 months it had spread to my lungs and liver now back on chemo
Hi, I had BC last year 2016-2017. I had chemo and lumpectomy and radiation. I was on Tamoxifen since may 2017. Yesterday I was diagnosed with bone Mets in ribs, front and back, lower spine,shoulders and hip . It has now gone to my liver. Can people survive with bone and liver Mets? I only see the onco next week. I’m petrified.
Hi. I can’t understands the dates here? Is it current ?
Was just diagnosed with secondary cancer bone Mets in front and back ribs, shoulder and hips and liver. Had BC last year and on Tamoxifen. I don’t see oncologist until next week. Feeling very scaredx