Hi Tat,
Glad you had a lovely holiday. Sounds like you coped really well. So wel,in fact, you were able to do a big ironing the next day! That’s impressive.
I had taxol as a primary treatment and the main side effect I had was cramping pains in my lower legs which were helped to a large extent by pain killers.
Good luck with the rest of your treatment xxx
I have lung mets (diagnosed Feb 2013) and have been on weekly Taxol since March 2015 (was stable on Cape prior to this). I am still stable on Taxol and have found it very doable, I have it every week (no weeks off unless I ask), my hair disappeared then came back as fuzz but I have an active lifestyle and it has not slowed me down :0) I also have a PICC line as of April this year, no problems with that either - can’t feel it just have to be careful to keep it dry. I had a reaction to Taxol number 4 (also reacted to Taxotere number 2 during my initial treatment) but it has otherwise been fine. I hope all goes well for you xx
Hi all
I am now joing you I had my fist taxol yesterday my first IV chemo I have spent the last 2 1’2 yrs on oral chemo’s E/E and cape. I have gone straight onto taxol and hope it will shrink some of the blighters. Last night I could not believe it I had no pain but I had no sleep not through taxol but thinking about what to do with all the beetroots in the garden.
Thank you Mollymop for your experience you have been on it a long time. I am having 12 weekly treatments maybe 18 we shall have to see what good it does for me.
Tat glad you had a nice holiday in Corfu you must have plenty of energy to get your washing and ironing done in one day. When I returned from France I tried doing it all in one day but took a bad fall through over doing it. Today I look as though the sun has caught me in the face but its not the sun at least its got rid of my pale face.
well love and (((hugs))) to you all xxx
Hello marirose
Just popped in to wish you all the best with your new chemo and hopefully will do its magic.
Missing you in cyber cafe though.
Carolyn xxxx
Hi lovely ladies
I too just popped in to check on/read how you’re all doing and send a big hug.
Dellywelly xxxx
I have a Lhasa (Molly), she is the love of my life. From my own experience I have found keeping active and fit (crazy as that sounds!) helps me tolerate the treatment. I was originally diagnosed in July 2012 so 4 years of constant chemo really. I have found Taxol much easier than Cape which really hurt my feet and it doesn’t make me tired. Lots of love from me too xxx
Hello ladies I have just returned from my second cycle
Thankyou Mollymop for giving me confidence in this drug you truly are an inspiration to Taxol I hope I can do as well as you.
Thankyou Tat for your welcome and kind words. I did have a bad couple of days where I found my mobility was really bad and I could not walk properly. I do have MS so that plays up too.(I often think the two of them fight to see who can give me most grieve) but at the weekend I found my movements getting better and since then I have felt quite well I do hope this is a good sign.
Love and (((hugs))) to all xxx
Hi I am newly diagnosed with secondary BC. I am on weekly taxol (3rd tomorrow) and so far so good. Really encouraging to read that it’s worked well for Mollymop. Xx
Hello ladies, just having a catch up with you all as an education to one who’s not ever had to have chemo and out of interest as to how you’re coping. You really are an amazingly strong lot.
Tat, dear friend - have a great girly w/end. I’ve no doubt that, besides films, there’ll be plenty of vino flowing! Am I right?? Where you all off to?
Lotsa love to you all
Delly xxx
Hello to everyone
Carabel welcome I am new here too you are one cycle in front of me my 2nd was Wednesday. I must say I am feeling quite good I think the steriods have something to do with that even my MS seems better. When does the hair drop out I am getting ready for it.
Tat enjoy your weekend it must be nice to catch up with old friends I am sure what ever the weather you will all make the most of it.
Love to you all and (((hugs))) xxx
Hi
My hair is starting to come out now (after 3rd cycle). I am going wig shopping today - can’t believe I was not more prepared! Side effects still minimal so all good. Planning on going back to work on 10 October all going well.
Hope everyone is having a good weekend. X
great you have minimal side effects! I worked on Taxol too.
good luck
Moijanxx
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Hello ladies
Just an update I had my 3rd cycle yesterday and I feel great but my bloods are all dropping since starting wish I could understand what they all mean.
The Dr wanted me to see him before I started treatment so I had to go up to the breast unit and when I said who and why I was there they said they knew nothing about it I said that the chemo sister had rung them up and they said she hadn’t. Anyway after 1 1/2 hours they decided to let me see Mathew who said he had sent for me as he needed to see me.
Well the reason was to do with my neurological issues because I have MS he wanted to ask me to inform them of any different neurological pains than my normal pains because it is one of the side effects. He wants me to ring up and ask for an appointment if I get any. So he is on the ball with it all. He said my MRI scan was clear from spine compression
When I went down to the chemo unit I mentioned why it had taken so long and the sister was really mad and was going to ring to complain to the people concerned has she had had this happen before.
Well I wash my hair tomorrow Carabel lets see how it goes.
Love and (((((hugs)))) xxx
Hello all. Taxol no 4 today. Major issues with veins so having Picc line in hopefully before next one. Have had a few digestive issues thus week so meds prescribed to deal with that. Dose reduced by 10% as well. Other than that and a bit of tiredness all still well. Still don’t have wig but think I will make a decision on that tomorrow. Only just hanging onto my hair but it’s coming out all over the place now. I am meeting some friends for dinner tomorrow night so looking forward to that. Have a good weekend all xxx
Hello all. Well I went back to work today and am feeling really good about it they are being very supportive and basically they will work around what works for me. I am very lucky. Side effects this week have been less than last so the reduction in dose seems to have made a difference. Hair gone but wig sorted!
Marirose hope you are getting on still with taxol and that also having to deal with the MS side of things doesn’t impact too much.
Tat I just was reading back and saw you were at a wedding in Corfu this year. Corfu is my favourite place and we were lucky enough to be there twice this year.
delly - are you also on Taxol?
Moijtan I am heartened to read that you managed to work whilst on Taxol.
Taxol no 5 for me on Thursday. Love to all. xx
Hi all
Carabel well done going back to work is good if you are up to it. Too much time is spent on dealing with the ‘C’ it is good to take your mind of it by going back to work. I miss my work friends and love it when I meet up with them again a week last Saturday I went to a evening wedding reception. I loved it and found some strength to join them on the dance floor they were amazed how well I joined in. Personally I think the steriods are helping I have felt great but I have had the odd bad day like Friday when the big ‘D’ hit me spent the day falling asleep and running to the loo.
No hair loss yet although I am careful I let my hair dry naturaly and use no electrical equipment on it. I did get a short hair cut before I started Taxol. I have a feeling this week may show a difference in my hair style as I have noticed some body hair dropping out. Tomorrow I have a lady coming to show me some wigs Wednesday will be cycle no 4.
I only hope my bloods will be ok as they seem to be dropping every week. This chemo is being watched far better than my last two which were tablet chemo’s
Love and (((hugs))) to all xxx
Mariirose my nurse prescribed Imodium which has effectively dealt with the toilet issues this cycle. Good luck with the bloods. xx
Hi Dely
Hope the investigations gave the results you hoped for xx
Lets hope you don’t end up on here.sharonx