Glad you’re feeling more rested wtc hill and hope you love being a Mrs. I Love it and after the tiredness etc it vrought and now resting more not worrying about plans! Hope your liver behaves its self and diet change helps. I’m trying to be more healthy now too and look after the healthy pieces of organ which prib didn’t like all the chanpagne and chocolate being forced (lol forced) onto me! X
Thanks lots hugs x
Hi Liz.
I have a portocath too. Had it inserted under local anaesthetic and have never looked back. It’s close to my collar bone, so shows in some necklines, but no-one ever seems to notice! It’s hugely beneficial when having regular iv treatments.
I too explored all kinds of innovative treatments for liver mets with my onc, but actually, got a really good response to aggressive, traditional chemo and herceptin. The liver seems to be an amazing organ.
Wishing you luck… Sarah.
Hi livery oaks hope you’re doing ok. Was wondering if anyone is on combination of capecitebine/xeloda and lapatanib/tykerb? I am and my lung tumours have shrunk a teeny bit but liver tumours growin?! Though I had only had lapatanib 1 week when they scanned and 3 cycles of Cape so wondering if any stories from others? Thanks ladies lots x
Hi ladies and welcome! Can I ask how longvitvto for Cape to start working on your tumours? Ps are you all on the capecitebine side effect forum? I find it so useful and you know may too. There’s a bit of a toe-gate scenario going on! X
Hi liz…I’m starting taxotere on friday too after capecitabine failed after just 2 months. Good luck to both of us! xxxx
Thanks for the advice nicky. Will make some up tonight ready for Friday. Been having a burning pain in centre of chest this last week and very sore to touch also in between ribs under right breast…but this is the area where the 2 mets are. Onc says theyve grown and almost merging into one.
Im so worried now with this pain too…things just seem to be getting worse ?
Hope things work for me this time xxxx
They’ve asked me to try the new Paxman scalp cooling system. Says its more successful at saving hair than old style coldcap. Might as well try it xx
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Good luck gill x
Good luck for wed helen. I’m dreading my second one on 5 dec…because of my ordeal this week after the first.
Let us know how it goes…whether the side effects are worse than the first.
Nicky…do you find the side effects worsen with each dose?? xxx
Morning ladies. Ooooh waking up in my own bed this morning was lovely!
Did some internet shopping at 7am. Hubby bought me my xmas pressie…a fab cream Jasper Conran wool coat which was in the sale from £200 to £99!! I also had a voucher for 10% off so was £89!
Cant wait for it to arrive this week!
Nice crisp day outside but will stay in the warm today. Last night i made some lovely Spicy Butternut Squash soup ready for lunch today…mmm!
Hope everyones ok and coping well.
The other “Big C” will soon be upon us…Christmas!
Keep smiling…keep strong…as Paul McCarney sang in the Frog Chorus “We all stand together!”
Love and hugz xxxxxxx
Hi all hope you don’t mind me jumping on this thread I check it and read through everyday as my mum has been diagnosed with breast cancer having spread to liver on Friday. This is primary diagnosis too so all the bad news all in one go. She has been told she will be starting chemo as an urgent request and have 12 months of herceptin but I think we are all in shock and scared. I don’t know what chemo she will be having as don’t want to stress her with too many questions. Just wanted to say hi to you all wish none had to go through this and say how helpful your comments to each other are even for people just reading them. Any positive stories for bc with mens in liver greatly received and also any info of experience with herceptin, chemo and anything I can do to help mum through this journey
Thanks
Hi lemon and EJ yes I just go with how she feels we are trying to keep life as normal as possible, she doesn’t feel like working at the moment she wants to not be too tired when starting chemo (she is self employed) I do go to appointments with her and my dad, I feel being their taxi service let’s them see I’m here for them. She won’t let me go in the appointments in think she wants to be the one to tell me if anythingS bad news. She’s impatiently waiting for the first chemo appointment as wants to start now haha we are.doing our best I suppose under the circumstances
Hi all, I have mets to my brain liver and lungs. Today I was told there’s nothing more they can do and have been taken off chemo of capecitebine tablets and lapatanib for her 2 positive. It’s because the chemo isn’t working on the liver specifically. Does anyone know or are experiencing having liver mets without any treatment? My liver function blood tests were apparently not too good. I have no idea of this means I won’t be here at Xmas or not. Xxx
Hilsy this is devastating. How many chemos have you had? I was under the impression there were many more options. I think i would need to know why he says he’s stopping treatment? Are the mets too far advanced??..loads of questions. I cant quite believe this. You must feel desolate.
Sending you loads of love…bev ???
Hilly, your news is dreadful and I can’t begin to think about how you must be feeling. It seems that you have been told that the treatment is being stopped without being given any support to help you cope. My onc has always told me that there are different treatments to try so I would suggest getting a second opinion ASAP as there seems to be so many unanswered questions.
Sending love and hugs
LD x
Thanks so much for your support all. The regime I was on was actually my last hope to keep me going a little longer as im biw Pallative anyway as its secondary. My brain tumour was removed and then I had radiation for it 6 months ago and it came back and Is growing meanwhile I developed liver and lung mets so they put me on herceptin and chemo tablets then swapped herceptin for lapatanib as it crosses the blood brain barrier but I’ve been feeling poorly for weeks and yesterdayvthey just said the chemo isn’t working and they didn’t thinking would as nothing else is so im to come off and try and enjoy the time I have now. I’m not eligible for more surgery treatment due to it not working before and the rest of my body. I just hope my liver doesn’t pack in too quick love to you all and thank you so much I hope you all do better bless you xxx
We’re all here for you Hilsy…if the love here could keep us going, we would all live eternally. Im sending you so much love and positive thoughts and will pray that the medics will find something else to try and give you more time without making you too poorly.
Love bev xxxxxxxxxx