Seems like I only post on here when I have bad news, but I have just learned that as well as having secondary bone mets a recent CT scan has revealed some lesions in the liver. The biggest one is 10 mm. I have to have an ultra scan and see the onc in 3 weeks when he will decide whether to put me on Cape. Prior to this I was on Taxol for 12 months, but it stopped working so I have been on Tamoxifen for the last 3 weeks. I just wondered whether any other women were in a similar position and could give me some advice.
Still reeling from the news so any advice would be appreciated.
Dear Geirge I am quite new on here and started my chemo yesterday!! It’s for liver mets biggest of many has now grown to 30 MM due to my wait from April diagnosis!i needed a biopsy before they would arrange my chemo.they will soon have a new plan in hand as its small.if isolated they can be frazzled out with hfa or cut out.I always come on here as the ladies help lift me so hope to catch up with you again.That rascal had been found early now it’s time to destroy it xxx
Just being looked after by a team of experts is reassuring. We all know that our medication will eventually stop working but always rest assured that there are dozens of alternatives. Always remember this and be prepared that we will jump from one vehicle to the other. Please don’t panic and keep us posted of what the well vested team will recommend.
Thank you so much for this reply, Waffles, you have helped me so much knowing that someone else has been in my situation and that Cape can work. I was also out on exemestane for 3 months, but to no effect so it sounds like we have had similar treatment plans/conditions. The news the cancer had spread to the bones was hard, but then hearing it had also spread to liver after chemo left me reeling. Thanks so much for your words of reassurance; it really feels like a lifeline when someone who is in a similar position gets back to you. Seeing nurse on Monday to get results of blood test regarding liver function. Do keep in touch to let me know how you get on too.
Only read about it / high frequency abslation which is like microwaving the lesions.But I haven’t had that as mine are in two lobes and multiple.Ive only known about mine since April.