Hi Sue, you are so kind! We all have loads of different difficulties on with this disease. It’s good to have this forum to natter away with people who understand!
It’s my understanding that I am going to be on treatment for the rest of my life, however I’m assuming this chemo is to hopefully blast the current lot, and then some sort of maintenance dose with regular scans. And if it stops working, I start on the next drug in their cupboard!
How are you doing, and how are you feeling after the operation? I still have both albeit one is a lot smaller, but it must be a huge adjustment for you.
Take care 
Caron xx
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Hi Caron,
How are you doing? I just wanted you to know I will be thinking of you tomorrow. I really hope the reduction will help reduce the side effects for you 
I went to my GP today to see the nurse, she isn’t too happy with the amount of fluid I have (Seroma), I told her it’s expected and I just need to get in touch with the clinic if it gets too much but she said “what is too much?” As well as this, I still have a 1cm opening in my wound which is leaking so she wants me to contact the breast clinic and let them know what’s happening, so I’ve called them, waiting for them to ring back. I’ve also got blisters due to the dressings so I’ve ordered some which seems to be better .
So it’s not quite going to plan but I do feel okay thank you, I think 
. All the problems I’m having has taken the worry of what my new body now looks like, I’ve not really given it much thought, which sounds mad.
I really hope you are not worrying too much about tomorrow and manage to sleep okay . Take care Caron xxx
Hi Sue, just wondering how you are doing and have you managed to enjoy the weather this week. I’ve basically slept since treatment, woke up Monday afternoon 
and gradually feeling better. Had the day 8 infusion yesterday so interested to see what happens now. Seeing oncologist today.
Do let me know how your recovery is going, are you having chemo, and how are you feeling?
Caron
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Hi Caron, so sorry for not replying sooner, I’ve been a bit up and down lately.
How are you after day 8? What did the Oncologist say to you? How are you feeling emotionally? It must be so draining.
I’m doing better thank you. Finally took my dressing off yesterday 
. I’m still sore under my arm and haven’t got full movement yet after the Mastectomy but it’s getting there slowly.
My results came back and it’s good news. No Node involvement, phew! So no chemo. I will be taking Letrozole for 10 years or as long as I can cope on it, which I’m not looking forward to but it’s better than having to go through chemo isn’t it. I’ve asked for my pathology report but the surgeon and nurse couldn’t work out how to print it off, they are meant to be putting it in the post for me. I do know it was slightly bigger at 8mm, still small compared to last time (34mm), it’s stage 2. So I guess I will find out more soon.
It’s a strange feeling because suddenly I don’t have breast cancer anymore, although I feel it’s probably in my body somewhere waiting to be rediscovered. Everyone is so pleased for me and made me feel like that’s it, it’s all over now but that isn’t how I feel to be honest.
I hope you are doing well now though.
Sending big hugs
Sue x
Hi Sue thanks for your message. I’m doing OK. The day 8 infusion was OK, just nausea and fatigue and a few afternoon sleeps. Oncologist was good, they are reducing the 2nd element by 25% too as 4 days in bed is my body saying this is too much. So I start round 3 this Thursday if bloods are OK. I’m also due a scan after the third round to see how things are going. Oncologist explained that after the six rounds, the tumours remaining the same or reducing is considered successful. Following this result determines the next steps. He seemed to indicate that if successful I would just be monitored, which sounds a bit odd to me. However, I am not a trained specialist!
Fantastic news that you have no nodes involved. And I hope you are OK with the 10 year drug? A very good friend of mine is on it, and if it keeps this wretched disease away it’s worth it. I also do hope that you are recovering from your operation, it sounds like you had a lot to cope with. I know you said that you might make it to Norfolk for Easter, just wondered if you are going?
Sending you very best wishes
Caron
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Hi Caron,
It really sounds like you have been going through it. I don’t know how I dare complain after reading your message. I’m glad they are reducing it by 25% and I hope that makes a big difference.
So if the scan comes back showing the tumours haven’t got any bigger they are going to stop treatment? That surely isn’t right, no wonder you are unsure about that , sorry if I’ve misunderstood that though.
I’m feeling okay, sore under my armpit but it’s getting better. I’m doing my exercises and movement is getting better. I currently have a lot of fluid swishing around my chest which feels weird, a bit like carrying a half bottle of water down my top lol.
I feel a bit unsure at the moment because now that I’ve not got cancer anymore I should be just getting on with my life but recovering from a Mastectomy mentally and a recurrence, plus the dreaded Letrozole, I feel different now, actually I’m struggling to write how I feel. Everyone thinks it’s all over but obviously it isn’t a bad I don’t want to sound negative by saying it’s still hanging over me and always will, so I find myself saying “yes, it’s great news”. I’ll get there though.
I’m not up to having a 4 hour journey to Norfolk yet but I’m trying to get my husband to take our grandchildren instead so he isn’t missing out.
I really hope Thursday goes better for you. Please keep in touch when you can Caron, it’s always lovely to talk to you.
Sue x
Happy Saturday everyone.
I have a question.
I have had a recurrence of Lobular breast cancer, as you can see above. Currently recovering from a single Mastectomy, however, yesterday I noticed a yellowing of the whites in my eyes. Obviously concerned it could be a sign of a liver problem , maybe cancer. I have non alcohol liver disease already so it could be that this is the cause too. So either way I’m worried.
My questions is this: Has any of you lovely ladies had secondary liver cancer with one of the symptoms being yellow eyes (jaundice)?
I’d ring the doctors up but ofcourse it’s Saturday and bank holiday so will wait until Tuesday. Just wanted some reassurance I guess from anyone that might have gone through this as well.
Take care everyone.
Sue x
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Dear @SueDerb , the macmillan helpline is open today 8th April until 8pm if you would like to talk to someone before tuesday
0808 808 0000
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Thank you. I have family coming tomorrow so I’m going to get them to decide if they are yellow or it’s just me but I’m sure they are yellow, I’m doubting myself now though because I might be worrying for nothing.
I hope you are having a lovely Easter.
Hi @SueDerb
Hope you are well 
. Just wondering if u got any answers about yellowing of the eyes? Ive noticed mine like this since I was diagnosed in February , I wouldnt have paid much attention before really. Ive had my surgery and starting chemo in 12 days. Hoping the yellow is not a sign of spread(CT was clear in Feb, but I have lobular stage 3 and am aware of how hard lobular is to see on scans) . Also hoping the yellow doesnt mean my liver is under pressure already before my chemo even starts.
Im generally positive but this is the one thing niggling at my mind since February.
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I’m so sorry for the late reply.
How are you? I’m okay thank you but as you are finding out, there always seems to be something new to worry about but most of it will be fine. It’s normal to worry and be more observant and notice things you wouldn’t normally see. This is my second rodeo, recurrence of Lobular in December 25.
As for the yellowing of the eyes, I haven’t been to the doctor’s yet because I have had other health problems, unrelated , so I put it on the back burner but the yellowing for me hasn’t got any worse or better. I already have non alcoholic fatty liver disease so I’m extra cautious.
Have you seen anyone about it yet?
I really hope it’s nothing to worry about for you, you are obviously going through enough already.
Please take care of yourself and keep in touch. I will let you know when I do visit the GP.
Sue x
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Hi @SueDerb thanks for your reply. Sorry to hear that some other health conditions popped up for you.
I havnt been to see anyone, ive started chemo now so will see if my liver readings go up or down or whatever happens. I had been on a few antibiotics and taking pain relief for a bad gum abcess around the time of diagnosis and i had a slight reaction to one called Flagyl, which i didnt realise until i looked into it after i finished the course.
My diet would have been bad for the last while too, too much coca cola and sugary foods. So im putting it down to that until Im told other wise, perhaps i have fatty liver now too, it wouldnt surprise me, ive such a sweet tooth, id say my liver hates me.
I will be having a scan before radiotherapy so I will bring it up then so they will look close at the liver hopefully.
Thanks for your reply and all the best with ur treatment going forward. If you do hear anything back from gp i would be interested to hear. Thanks so much 
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I’m the same as you, a really sweet tooth.. I used to be able to eat anything and not go above a size 10 now I can only dream of it after retiring early and slowly putting weight on but now I’m struggling to shift it but I have stopped the weight increasing.
I had a Dexa scan a month ago, after going on Letrozole and it shows I have Osteoporosis so something else to be aware off.
I really hope you manage on your treatment. I had radiotherapy first time around and breezed through it but this time I had a mastectomy ( that’s a different story altogether 
).
Take good care of yourself. I will update you when I next see the GP. xx
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Hi.
I’m just reading some of these posts. I hope you’re doing well now. I really resonated with your comment about how folk think that because you’ve had surgery (a week ago!) and are moving around and ‘look well’, that its all over, when, as you say, it isn’t how you feel!
Wishing you well
Dianne
Hi Dianne, I think quite a few ladies feel this way too.
With having a recurrence, I now dread a further recurrence and what that could mean. It’s rotten isn’t it . I try to be positive and even when I am worried about something I try to keep it to myself, my friends and family have had enough worry without me adding to it. Once someone asks ‘have they removed it all’ and you reply with ‘yes, I had a mastectomy ‘ that’s it, they think you are fit and well and over it but it’s so much more than that isn’t it.
I really hope you are doing well after your operation. What type of breast cancer did you have? What has your path been? It’s nice to talk to people who understand what you have been through and still are.
Take care of yourself
Hi @deeannee56 , how are you doing?
You sound like you have taken a very similar path to me. In 2018 I found out I had Lobular breast cancer as well, 32mm in size, was told I’d probably need chemo but I was on the fence and they decided I didn’t need it but I had 23 sessions of radiotherapy instead. After all that and a lumpectomy plus another op to achieve clear margins my breast was much smaller than my good breast, so I had 3 different operations to improve the size but they failed. It wasn’t until 2023 I finished all this treatment, partly due to COVID delaying things. Then I was back and forth getting checked out because I had loads of lumps and cysts, not knowing if they were cancer was scary. Unfortunately for me, in December 2025 I was told I had a recurrence of Lobular and had to have a mastectomy which I had at the end of February.
Now living with the worry but trying really hard to move on again and put it to the back of my mind.
I spoke to my GP yesterday, they was doing a survey on people coping with cancer, they wanted to know If I felt supported by them and I said no, I never heard from them and said it would have been nice if they had contacted me to see how I was getting on, especially after having a mastectomy, no one has offered me counselling or checked in on me which I’m surprised at.
I’m so grateful for this site though, I feel really supported by all you lovely ladies.
Let’s hope we never have the need to come back on here and share some bad news. xxx
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Well done on being honest with your GP.
I’m gobsmacked that following my day surgery lumpectomy in March no one from the hospital or my GP surgery checked in with me to see how things were in the first few days postop. I had the breast care nurses phone number but they 8-4 M-F and as my op was Thursday afternoon not really available when I was worrying about things.
I’m so sorry, I did reply (in the datk hours) but realise it isn’t showing here 
Thank you for asking. Need radiotherapy/Leterozole, just waiting for planning appt and keeping all crossed that I don’t have to cross this path again as so many of you seem to have done .
How disappointing that they ask the question but don’t then respond. Hopefully they will do after the weekend?
that ILC/LCIS are very difficult to detect. I had 2 negative mammos over 4 yrs (with breast changes) before it appeared on mammo 