Long QT sydrome


has anyone on here had breast cancer and has long qt syndrome? I started on tamoxifen June last year and my qt is getting longer every time I have my ecg done. I had an appointment with the cardiologist yesterday and she is going to speak to oncology dr to see if I can take a break from tamoxifen to see if my qt gets better. 

any help/advice would be appreciated 


Hello Gharp79  

Thank you for posting.   

It is good to hear that your cardiologist is contacting your treatment team to discuss the best way to manage the long QT syndrome you have. They will be best placed to advise if this could be related to the tamoxifen medication.   

You may find it helpful to post your question in this area of the forum to see if anyone else has had a similar experience.   

We offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in.  They include face to face and online courses and events.  

For more details about all of these services, please see the information on the link.  

We are currently evaluating this service and would appreciate your feedback. Please click here to the survey. It should take approximately 10 minutes to complete.   

Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen to your concerns, talk things through and signpost you to more support and information. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK - prefix 18001). 

If you would prefer one of our nurses to call you. To do this, please complete this form t** icking the box agreeing to a call back.**  

Our usual opening hours are Monday to Friday 9am - 4pm and 9am - 1pm on Saturday.   

Out of hours you can leave a message and we will call you back when we next open.   

Best wishes 


Breast Care Nurse   

Please read the Ask Our Nurses disclaimer  Full details on how we collect and use your data can be found in our Privacy Policy    

This thread will now be closed from further replies. If you have any additional questions or would like to provide feedback, please start a new thread.