Aww, 12 & 13, you lucky mum :-). The link for it on this forum is Search Results | Breast Cancer Now - I hope that works. Don’t worry, it’s a private group so you can only see it if you’re a member. Not sure what they class young as, but it should say on the link…
other younger ladies, have a look too its another very nice and friendly and chatty group
Lavendersun,
My youngest was just turning 12 as I was dx. I worried that I wouldn’t see her grow up. She is now nearly 18 and hoping to go to uni later this year. A lovely young woman that I am very proud of.
I think 12 is a difficult age for them - old enough to understand what is going on, too young to deal with it. My other two were 14 and 17 at the time, and I think they coped better.
Feeling like an old timer now but was dx in May 2006 with Her2+ (ER-PR+), Grade 3 and 2 micromets in one node. I was 30 weeks pregnant at the time.
Copying over a previous post from me (pregnant with breast cancer threads) which may/may not help.
Hi Alison and Maria
Thought I would post a link for you from a former forum user ChristineMH who was a mine of information about HER2+. Christine had not long given birth when she was dx. Really miss her from the forums but happy for her that she is getting on with life.
Hi,
i am so glad I have found this thread. I wast diagnosed 10/9/12 IDC and LCIS, I had a Mx and SNB on 4/10/12 (SNB came back clear) and started TCH on the 28th of november 2012, I have had allergic reactions along the way but we do eventually get the chemo in me. I am struggling with the chemo the first week I feel grotty (not so bad really at the side of other peoples SE’s) then i have a few days of feeling tearful and mardy, then i feel great and can take on the world but the dread in the pit of my stomach of the next one. I have stopped googling HER2+ as it just scares or confuse’s me, so it is so nice to see post from people who have done the journey and have positive stories. Also there is poistive news in the paper about more discoveries to help HER2+ so I am doing all I can to give me the best future possible
hi
thanks for all your lovely posts.
i agree googling her2is not thething to do as the first time i googled it said poor prognosis
but that was an ancient site. i nearly passed out!!!
packing for mx on friday gulp!!! i will be at east surrey in redhill.
lost nearly 2 stone with worry and not eating but now going through a chocolate phase better watch it!
byeeee happy and healthy new year xxx
Hi Lavendersun
You asked why I had a MX the other side… It was due to family history and genetic testing couldn’t rule out an inidentified faulty gene and I just knew if I got through it all I would want want to do anything I can to stop it happening again in the other one. It was definately the right thing for me and at least now they are a similar size and appearance which is a bonus.
Good luck with the MX and Happy New Year to you. Hope it all goes smoothly for you.
Take care
Tracy
xx
Hi Lavendersun
I can see that you like to hear from those of us who had our treatment some years ago so will join in. I was diagnosed soon after RoadRunner, in April 2007. Grade 3, ER/PR/HER all positive. I felt really lucky to have Herceptin as it was only licensed for primary cancer a few months before I needed it. I am older than you, but since diagnosis, both my daughters have married and I really didn’t think all those years ago that I would be around for their weddings. Best of all, I am due to become a grandmother in April this year, just about the time I will celebrate my 6 years since diagnosis!
Treatments have improved so much and continue to improve. I had my Herceptin after chemo, now I think that it often starts during chemo as that has been found to be effective. Similarly, I expected to be on Aromasin for 5 years but because my cancer was very aggressive, they have suggested I stay on it for at least another 2 years, based on evidence from women a couple of years ahead of me.
The best of luck with all your treatment and I hope you get some reassurance from those of us who are several years on from the treatment.
Anne
thajk you anng
it is so kind of you to reply and it gives me sooooo much hope as im in a dark
place right now.
still hospital packing so be vack soon. thk u xxxxxxxx
Thank you Calyco
I seem to be drawn to this website quite a lot. A lot of the time it gives me support and hope
though at other times scares the living daylights out of me.
Not too nervous about operation more worried about chemo in the near future.
Will post after op.
Thank you xxx