Thank you Tili, I had the final biopsy yesterday so hopefully things will start moving soon
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These things take time and many times they get dates mixed up. But know that it is not that fast growing once they find it and all will be fine…waiting and not knowing is the hardest part. Makes you crazy. We’ve all been there. The surgery is the easiest…just lots of ice packs and over the counter pain meds. Seriously …
Deep breaths …but stay on top of them to keep things on track. 
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Thanks Victoria2 . I think my problem is I just cannot think rationally at the moment . I know they are doing their best but like everyone else I am finding the waiting horrendous .Any appointment I go to is nerve racking and then I go home and read all sorts into what was said - the waiting feeds my paranoia
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Sorry you’re going through this. Not sure if you have an update by now and your waiting has ended, but I urge you to continue to advocate for yourself and get second opinions! I certainly had to advocate for myself at a top medical center bc I had a misdiagnosis only discovered through a second pathology I pushed for. Changed my diagnosis and treatment plan completely. People do their best, but I can tell you lots of mistakes are made. It’s your life and you must ask Qs and push for clarification if you’re not getting satisfactory answers. Sending you love and support. You got this!!
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I am so sorry that you had lots of mistakes. It really worries me that people have to push.
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Yes the wait and thought notes arent read are annoying and i too experienced this, but we cant control these irritable annoyances. I could use other words but dont want to curse on here ! 
What we can do is control our mental health by not letting it run away with our sanity. Think about being present in the moment and not thinking too far ahead. Take one day at a time and relax. Stress is not our friend
Hope you get your results sooner than later and before you know you’ll have your treatment plan.
Best of luck xx
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Any news llanwinno123?
I waited for six months for my diagnosis in 2003 June to Dec and had the shock of my life when the lump I had was in fact cancer. I am still alive but I have had a recurrence since. Unfortunately I had DCIS as well, which I think nowadays is treated as if it is cancer although it isn’t as it hasn’t moved from where it started out of the ducts. I know a lot has changed since 2003.
In fact the advice on how to prevent lymphoedema is now the exact opposite of what it was at my first diagnosis. I don’t think there have been enough randomised controlled trials to prove or disprove a lot of the advice you are given. That is why it all seems smoke and mirrors.
I had to look at the NICE guidance then and I look at it now too. NICE stands for National Institute of Clinical Excellence I believe. They write standards which all docs are supposed to follow. Standardisation has been found to be more effective than doctors all doing their own thing.
At least they can then find out if whatever they are doing is effective and how effective it is, what the side effects are etc.
Once they have carried out clinical trials showing another treatment is better, they can bring the guidance up to date in light of developments. They can look at what other countries are doing too as many places have better outcomes than the UK despite the NHS being held in high regard.
Seagulls
Finally getting somewhere - Surgery on Tuesday 6th Feb , apprehensive but glad I have a date . I should get home in the evening all things being well . I go up to Inverness tomorrow to have the dye injected in preparation. Then it will be a 2 week wait for the results……
I had a few sessions with the psychologist at Maggie’s and that was really helpful. I have also joined their 6 week course on Living with Stress . It starts on the 13th February, I am hoping this will help with the overwhelming stress and dread that I feel at times !
I am thinking of booking a retreat at the end of treatment . Maybe at the Penny Brohn centre is Bristol . I can get a flight direct from Inverness to Bristol and I could link it into a visit with family in Wales .
I am trying really hard to just deal with what I know and not what might be . It helped that I have stopped googling and only come on this site .
Wishing everyone on here some positivity, We can have a life after cancer
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Good luck with trip to Inverness and then surgery on Tuesday. I will keep my wings crossed for you
Seagulls
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