Hi Ladies,
I am sure there is a thread, or more than one about lung mets, but I cannot find it.
I have been NED for 4 months but post a scan earlier in the week I have very good reason to believe that I now have mets in my lungs.
I hope I am wrong, but I don’t think so. I will find out for sure in a little over a week. I would really like to hear from anyone with lung mets as to how long they have had them and how they are being treated. I am particularly interested in experiences of anyone who is HER 2 +
V
Hello Verity,
I’m sorry to hear that you’re worried about lung mets. I have secondaries, but not in my lungs, so I can’t help you with specifics. I just wanted to suggest that you post in the secondary forums where you’re more likely to get a response from someone with a lung mets dx.
I really hope that your scan results show you’re still NED. Fingers and everything else crossed for you.
Take care, Angelfalls xx
Hi Verity,
Could I suggest you give the helpline team here a ring and talk to them about your concerns. Also as Angelfalls suggests posting in the secondary forum may get you more support.
To help you understand more about secondary BC I have put the link below to BCC’s publication regarding secondary breast cancer, and hope it helps.
www2.breastcancercare.org.uk/publications/secondary-breast-cancer/secondary-breast-cancer-bcc58
Take care,
Jo, Facilitator
Hi Verity,
Sorry to hear that you are concerned that you may have lungs met. I was first dx with lungs met 3 years ago I had a magliant pleural effusion which has subsequently has progressed into a node growing in my lung. I am HER + ER -.
There are a lot of threads about lung mets; it’s hard to go through all t he threads though. There’s a lady on here has just be able to manage for 7 years on hormone suppressants. I was first dx 5 years ago and had grade 1, stage 1 and had a lumpectomy and 15 sessions of radiotherapy. Then was put on to Tamoxifen which never di wokr for me unfotunately. It returned 20 months later I already knew something was wrong before they could find it and didn’t detect the secondaries until I had the effusion.
I really hope that you do not have secondaries but there are a lot of treatments and people do live a lot longer with new treatments coming onto the market.
Fingers and everything crossed for you. Please let me know how you get on.
Love
Chris xx
Hi Verity, I have Lung mets, I am Her2 +. I am having herceptin and letrozole.I was dx feb 2011 with primary and lung mets at the same time, I have had a good response to treatment and at the moment I am stable,My onc said she does not expect any problems whilst i am on herceptin, which i am having indefinetley,I have to say I have no symptoms at all, I know it’s scary at the moment but try not to worry, the treatments are very good now.Please PM me if I can help at all.
Jean.
hi verity,
i was dx 4 and half months ago with lung mets started taxol straight away and herceptin, had scan in april very good responce, due another one in three weeks hope for the same results.
Hi Verity,
Myself and tillybob (jean) were dx at the same time with both primary and secondaries to lungs, I am ER+ PR- and HER2+, I have done chemo/surgery/rads and am now on herceptin indefinately and tamoxifen for the standard 5 years, my latest ct scan revealed that the mets to the lungs are unchanged the dr who told me my results also mentioned this “I am not totally convinced that the stuff showing up on the ct scan is cancer!!! it could just be scar tissue left over after chemo or it could be scar tissue from a chest infection or a bad case of the flu” !!! as you can imagine I was in a state of shock as I thought I had lung mets for the best part of a year!! they can’t perform a biopsty cause the stuff on the lungs is too small, will still continue on the herceptin whilst it works or indefinately, feel very well and starting to get back to normal, I am experiencing some SE but can’t complain too much as I feel lucky to receive such treatments.
I completely understand what you are going through as I’ve been going through this for a year now but please have some faith and remember what I’ve just told you that not all stuff that shows up on scans is cancer it could be just scar tissue and if it is something then there are plenty of chemo’s etc that really do pack a punch on those mets, if you need any advice please feel free to pm me or go to my profile and read my blog. Hope this helps.
Sending you love and light
sarahlouise xxxxx
P.S. Hi Jean and steris glad that your both keeping well, luv to you both sarahlouise xx
hi verity,
i was dx 4 and half months ago with lung mets started taxol straight away and herceptin, had scan in april very good responce, due another one in three weeks hope for the same results.
Hi Ladies,
Thank you all SO much for your replies. I feel better/calmer now!
I will let you all know how I get on!!
Sorry for the delay in posting this…I have had troouble finding the thread!!!
VerityCx
Hello Everyone,
I am sorry not to have posted before, but just to say, my fears were not realised. I am still N.E.D.!!! Feels amazing.
Thank you to you all so much for your replies and I wish you all well!!
Verity x
Great news. Has cheered me up to read good news for a change. Well done Verity. Have a great weekend. V
Tillybob and Scottishlass - thank you!!
V xx