Lung secondaries: Letrozole after EC chemo poor results

Hello everybody! This is the first time I’ve plucked up the courage to enter anything onto the site but I’ve been reading lots of your comments for a couple of months now and have found alot of strength from knowing that there are lots of us out there with secondaries who are very brave and living day to day with this dreadful disease. I was orginally diagnosed in September 2001 aged 34 (my son was 6mths old and my daughter was 3) with DC in situ and had a lumpectomy followed by 25 sessions of radiotherapy and took Tamoxifen. I had a local reoccurrence in August 2004 and a mastectomy in September 2004. In December 2007, I was diagnosed with secondaries in the lung (which I’ve been told is low volume) and pleura (consultant originally thought it was also in the liver but they now think this is a cyst!) and had 6 cycles of EC chemo which looked as though it was having some effect at the halfway scan but the scan after the 6th chemo showed that the areas were bigger than when I started the chemo (devastated obviously!). I am now on Letrozole and have been since May and am due to be scanned again the 1st week in September. Please can anybody feedback to me who also has lung secondaries re results whilst on Letrozole because if the September scan shows that this isn’t having any effect, I’ve been told that the next chemo that I’ll starting will be Taxotere.

Thank you in anticipation and lots of love and hugs to everybody!

Aromatherapy.xxxx

Hi Aromatherapy

So sorry you have to join us on here but, as I have found, there is a wealth of knowledge and support available from all the lovely ladies who post on here - as I’m sure you have read.

I don’t know anything about lung secondaries or how they respond to Letrozole but I’m sure there will be someone who does. How awful that after an extra 3 sessions of chemo the BC was shown to be bigger, I can imagine how devastated you must be.

I hope the hormone treatment IS working for you and your next scan shows it is and also that someone on here can give you some reassurance.

Take care

Nicky x

Hi Aromatherapy

I too have secondaries on my lungs - a 2cm tumor and lesions, I was started on Taxotere and Avastin, after 3 sessions the scan showed a 20% reduction of the tumor but not much effect on the lesions, after 6 the scan showed it hadn’t worked but got worse!!! Floored by this info but they have now put me on Capecitabine which I hope works for me, I think it just depends on the individual as to which works best, I really hope the scan in sept shows success.

Christine x