I was just wondering if anyone n this site has Lupus and Breast CA. When I went in for my biopsy result I was offered a lumpectomy and radiation. I did research and found that Lupus patients should NOT have radiation due to toxicity, severe burns and difficulty healing. During this meeting I mentioned this and the breast surgeon knew nothing about this. She said the radiologist oncologist did not voice any concerns during the Multidisciplinary team meeting and was quite puzzled as to why nothing was mentioned on his behalf. I also contacted the rheumatology nurse consultant who was unsure too. I was offered an appointment with the rad oncologist and I felt it would be a waste of time being he was willing to offer radiation treatment to a person who research say’s should not have. I am a bit concerned about my treatment if the medical professionals in charge of my care dismiss important things like this. Am I being funny or does anyone think that this should have been looked into before saying to offer her radiation, it is his job to know who can or cannot have radiation and if he didn’t know then he should have looked into it or contacted his professional colleagues. My breast surgeon was happy to plan all treatment around the Lupus and trying to prevent flares by having limited surgeries and avoiding radiation unless there is absolutely no other options to save my life.
Hi slc
I would have thought it would be worth meeting the rad onc in any case. There have been a couple occasions when my onc hasn’t been able to answer a question, but has happily gone away and done some research and come back with an answer. I would expect your rad onc to do the same thing - consult with a lupus specialist and decide the best course of action. I hope you get a satisfactory response - good luck. finty x