Hi everyone,
Yesterday I was diagnosed with secondaries to my lungs & liver. My CT scan also showed Lymphangitis in my lungs. I was just wondering if anybody else had suffered with this & what treatments were available. My breast care nurse mentioned steroids which I would like to avoid if possible due to the side effects I have experienced in the past. Would this be an ongoing problem? Can it be treated? Is it likely to improve when I start chemo?
Sorry for all the questions, this is all new to me.
Thanks in advance Lisa x
Hi Lisa, I’m so sorry you’ve had to join us. No doubt you’re feeling pretty rotten right now but hopefully the help and support you will get from this forum will be a great help to you.
I’m afraid I know nothing about lymphangitis but I’m sure someone will turn up soon who will be more helpful.
love Jackiexxx
Hello Lisa
I am in the same situation as you I haved lymphangitus in my left lung. I started off with a pleural effusion in my left lung which was then drained. This January I started having terible pain in m lung again and was diagnosed with lymphangitis. I have mets in my liver and lymph nodes. I have been taking steriods since then and have had a course of taxotere and I am now on capecitamine. The steriods have made me put on weight though.
I am also taking a lot of pain killers.I don’t know what they can do apat from the steriods and chemo I am just waiting to see what happens. I hope that you have some luck with your teratment. Have they said which chemo they want to give you? The Taxotere managed to keep it at bay.
Good luck
Caroline
Hi, Thanks for your replies.
I had FEC when I was first diagnosed with breast cancer in 2005 & I had Taxotere in 2007 when I had a recurrence. As these have obviously not worked I will be trying Capecitabine. I asume steroids will be given with my chemo for the sickness? I had terrible side effects from the steroids last time so I was hoping I had another option.
Lisa x
Hi Lisa
The capecitamine is given in tablet form and hasn’t made me very sick at all. I am given 15mg predniseralone(steriods) everyday and this is to help the pain and to reduce the inflammation caused by the lymphangitis. So far I have found this chemo not too bad apart from 6 of my fingers are split at the ends which is very painful.
When do you go back to the DR to find out when you start on the chemo?
Caroline
Hi Caroline,
I’m glad to hear the Capecitebine is not making you very sick. I hope I am the same as I suffered terribly with the FEC & Taxotere.
I am going to see my Onc on Thursday so hopefully I will start the chemo then.
Lisa x
Hi Lisa,
Just to let you know I am having Capecitabine but do not take any steroids. I have other anti sickness tablets and find these work well. Hope you don’t need steroids if thsy don’t agree with you.
Best wishes Gemini.
Hi all,
Been to see my Onc today. I am not having capecitebine now, I am having Navelbine with Herceptin (again) as I am waiting to see if I will be eligible for Lapatinib.
Lisa x