Lymphoedema - has anyone got better?

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Hi all

Has anyone out there with this horrible condition got rid of it or managed to improve it? I was diagnosed with this a few weeks ago at the end of my chemo. I now have giant fingers like pork sausages and my hand is swollen but my arm looks ok. I cant see how wearing the full length sleeve with hand is going to help cos the fluid will surely still be trapped at the bottom (when it arrives). Would love to hear other ladies experiences of this.

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i also find that fluid stays in my knuckles all the time .and i wear a sleeve and a glove .its a real pain as i get no relief from it .my symptoms started a year after radiotherapy had finished ,dont think it ever goes away but with massage and sleeves supposed to get better ,i wait and see ! lynnn x

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Thanks Lynn…isnt it awful especially this hot weather. I only had 9 lymph nodes removed and cant believe I have got the condition so quickly after dx

Judy x

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Hi Judy

You may have already seen this but just thought I’d mention BCC have a booklet called ‘Living with with lymphoedema’ which you may find useful to read. It can be found by following the link below:_

breastcancercare.org.uk//docs/bcc_lymph06_0.pdf

Best wishes
Lucy

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I go to my Lymphodema clinic every three months. Was there last Monday. Every time I go the nurse measures my arm and this time my arm is less swollen so yes mine has slightly improves. Don’t wear sleeve all the time but do whenever i am driving, working or anything that involves lifting or carrying.
Now have to tackle the lymphodema in my breast. Massage hasnt helped much as its around my scar which is quite painful. Have ordered some compression bras so hope that will help
xx Jools