Hi i am currently on week four of kinesio taping for my breast lymphoedema,i am also on the enormous waiting list for the mld, i had a very interesting conversation with a lady at the weekend who has been having treatment with this machine for her arm lymphoedema,i have googled it and it does seem to be possible,views anyone?
Hi Kary,
I am sorry to see you haven’t received a response yet and I am sure some of our users will be along to share their experiences and show their support soon.
In the meantime you could try postin on our Ask the Nurse board or call our helpline on 0808 800 6000, who will be able to talk you through any questions you have and offer a friendly ear. The opening hours are below:
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Best wishes,
Bonita
Hi Kary I have had lymphoedema for 4 years but have never heard of this treatment. I have just looked it up and it does sound like it may be worth trying as it helps with blood flow and lymphatic drainage so in theory it sounds like it would help but I would check with the lymphoedema service that you are under just to get their view. I may try it myself but I will also check with my service. I have tried everything but am still waiting for laser treatment on NHS have been waiting for over a year all down to availability and funding X
Sorry long post -
dilemma do I have the rest off my lymph nodes removed ??
Going through yet another operation risking getting lymphedema …
When the lymph node was only over in size by 0.5mm,
Normal protocol was if under 2mm then they do not remove the rest off the nodes but as I have gone over by 0.5mm I am having make a choice,
Back in the days they did not ask people in the uk they just went ahead and removed and if you was found to have cancer cells then you would go on to have radiotherapy along with other treatment planed for the cancers found,
I have recently on 4.5.17 had
left breast skin sparing mastectomy and sentinel lymph node biopsy.
Pathology report said
Found Invasive ductal carcinoma grade: 3 Cancer tissue size: 18mm, whole size: 26mm
Axillary lymph nodes present: SLNB x1 containing tumour: 1 x 2.5mm macrometastasis
ER: -8/8 (on previous core biopsy BH17-2940/LH17-12084) NPI: -5.36 TNM: -G3 pT1c pN1 (s n)
Cancer is receptive to Oestrogen and Herceptin.
My cancer team have said I need 6 rounds of chemotherapy
1 tab for 12 months
1 tab for 5 years
I was also told the consultant team believe that they believe my cancer if any in the lymph nodes is present they believe the chemotherapy along with the tablets and injections should be enough to treat me and they will closely monitor my lymph nodes with future monograms and regular checkups but under the guide lines they can not help me or make the choice for me ?
What do I do delay chemotherapy and agree to removal off lymph nodes or risk it and say NO to further treatment for lymph nodes
I now I do not want a computer making my choice
I also now but I do not want radiotherapy and I am scared off having lymphedema or more hypersensation problems
Thank you any replay in advance xx