@stafford22 I’m shaven so thankfully not had that but hubby caught me balling my eyes out in the shower, as so much hair came out today, this is the first time during all this that he’s cried 
bloods tomorrow morning.
5 Likes
Oh no it’s so hard isn’t it. Are you cold capping? Hope you and hubby are ok x
1 Like
We’re ok thanks, no, I decided not to cold cap.
1 Like
This!!!
This happened to me yesterday too. I thought the hair on my head would have been first so it did take me by surprise! My scalp has been itchy/burning for days now. I may need to shave it just for relief even though the hair is still there.
4 Likes
Loads of hair came off my head when brushing and washing my hair today. 13 days after first EC.
This is the start of the whole world knowing I have cancer - whether I choose to tell them or not. It’s the thing I’ve been dreading most but my scalp is so sore I’m hoping the hair loss brings some relief 
5 Likes
I really hope you’re ok. Are you cold capping? Do you have a wig, scarves? I get my wig on Friday x
1 Like
I’m not cold capping. Have wig sorted and lots of head covers too.
Just seen the oncologist and my next treatment has been delayed for a week due to signs of wound infection so a week on antibiotics before any further treatment. So frustrating when I was just begining to plan my life around predicted ‘good’ days. Ah well. Treating the infection is more important than any of that.
Take care everyone.
5 Likes
@fubc sorry you’ve been delayed but like you said infection needs clearing up first, did you have any symptoms? I had bloods this morning fingers crossed I don’t get a call saying I cant go Thursday for 2nd EC. Mine started coming out day 15, I realy felt the wind on my scalp today, husband said my scalp is showing now, so I recon the scarfs will be on by Friday, this is pretty miserable isn’t it big hugs to everyone xx
4 Likes
@cruising @fubc
Hope you are both ok. Such a shame you next treatment is delayed, but you need the infection sorted. @cruising hope Thursday goes well and I’m sure you’ll look amazing in scarves. I’ve got oncologist on Monday then treatment. EC number 2 on weds if blood tests are ok wig appt is now on Thursday. I’m hoping they’ll reduce my dose for next week as I had a v rough ride on cycle number one x
5 Likes
The only sign of infection is redness and discomfort around my mastectomy site which I had been concerned about last week, saw BCN who asked a Dr for second opinion but I was told not to worry. No temp or issue with bloods indicating it.
I’m seeing it as a bonus week where I’m feeling quite well before it all starts again. X
5 Likes
Yes def look at it as a bonus week especially with the nice weather x
3 Likes
Hello everyone, I know I didn’t write in a while was hectic week.
I had my port insertion on 25th was good and then my first chemo session 27th was good but the Phesgo injection was scary bit painful.
I had my Biopsy guided by an MRI on 29th and was sooooooo painful that I screamed and cried inside it and they add more anaesthesia but was too late.
I had paracetamol but kept on crying for 20min until start working.
The next day when the steroids finished I had tough 4&5 day post chemo, a some moments my brain couldn’t handle it and had to close my eyes and sleep for couple of hours but felt better on 6th day.
Still holding my self to do the white cells injections as it’s my first time doing it for my self and hopefully tomorrow is the last one for this round.
My symptoms was nausea, dry mouth, nose bleeding, indigestion body ache.
My 4yo boy is sick and coughing and I ring the 24h line they said just wear a mask and check your temperature frequently.
I find it very hard to sleep with mask on as he sleeps with me.
Still freaking out when I heard that next rounds are tougher.
Wish me and you all the courage and strength in the world.Xx
6 Likes
It’s so hard but a huge well done getting through one cycle. That’s a big tick. Before your next cycle you will meet with the oncologist. Tell them how you’ve felt and they can make changes to make it more manageable. They can reduce the dosage without affecting the treatment. Keep talking and posting on here or phone the support line x
3 Likes
2nd cycle done, my blood results look pretty stable, even though the nurse got into the vein ok she had difficulty pushing it further so I felt that a bit sharp, she told me to relax (hadn’t realised I was tense) when I did, it went straight in, so my tip is to RELAX. I’ve been shopping, done an hour walk, so home now enjoying my post treatment chocolate, never tasted so good lol.
I’ve been trying to get thought to oncology, my filgastrim injections say start on Sunday but last time it started on the Monday, no idea if this one day early makes a difference but just wanted to make sure. On Saturday, as long as I’m felling ok, were off to a Holistic Fair in Upway Wishingwell (Weymouth, if anyone is interested free to get in, I’ll be wearing my Purple turban, so do say hello) Hope everyone is doing well and SE are minimal sending warm hugs xx
3 Likes
Well done! So glad it went ahead. You def deserve the chocolate! Hopefully you’ll get through to someone to check about the injections. We love Weymouth (we live in bristol) but we go to Weymouth for weekends away or day trips. You can’t beat it! Really hope your side effects will be minimal and you have a great day out. My next ec (number 2) is next Wednesday, I’m hoping for an easier ride this time. The nurse is coming to the oncologist appt with me and I’m going to tell them how much I struggled to even walk! She said they can make lots of changes so fingers crossed xx
1 Like
Today I got my wig! I still have hair and I’m cold capping but I wanted a wig. I’m really impressed with it and went shopping in it earlier and showed a few friends. It looks v good. It makes me feel a little less scared of losing my hair now but will still be traumatic. Having the wig gets my whole family including my kids get used to my new hair. I don’t want them seeing me without hair. I will put it on every morning in my room. This may change over time x
7 Likes
It was windy on Tuesday and I was feeling the cold on my scalp, so hubby put on his walking towel, I looked ridiculous haha.
Captain Hudson to the rescue yesterday, the nurses all loved that I was colour coordinated, I spoke to a lady waiting and she said she was on her 40th cycle and said the hair dose grow back, she has a just below ear bob and its so full. I was disappointing thought that I left before the food trolley came out, I told another lady she could have my cake lol. Well so far feeling good but only got 1hr sleep… steroids grrr.
I got through to oncology this morning and I’m to start filgisrim Sunday.
8 Likes
You look fantastic! V coordinated! Good you got through to oncology. Well done another one ticked off the list x
3 Likes
Today my hair has started shedding and my scalp is v tender. Mainly shedding around the ears. V odd feeling x
4 Likes
Feeling very low today despite some good news. Did MRI on Tuesday and it seems that my tumor shrinked from 4-5cm to only 1,5 after 3 cycles! 
my oncologist said it’s a very good result.
On the other hand, my one single immunotherapy session caused thyroid inflammation and apparently I’ll have to take hormones for the rest of my life now. How messed up is that?! They will monitor it for a month now to make sure.
At the same time my boyfriend got to the limit apparently and decided to break up after 3 years 
he suggested to live together as friends till the end of my treatment so he could support me but I’m not sure I can. This kind of stress is the last thing I need right now… I’m very upset and angry but not sure I can handle the treatment on my own
3 Likes