a silk pillowcase helps and I busted beauty despite cancer scalp care kit which also helped my scalp, just sharing as these helped me, you can get a wig cap that sits under the wig that can be gentler on scalp I found always keeping bit on make up on helped me too:heart:
Shi xx
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Hey @chita scalp is really sensitive at first. I got a bamboo/cotton cap off of Amazon (pack of 2) which I wore to bed to start with. The wig really freaked me to start with even though I really liked it, it suited me and looked like my hair, I still wore silk scarves tied on my head. I’ve finished 4 CE, still bald and still prefer my scarves although the wig is used 2-3 times a week. Sometimes just easier, or depends who I seeing or how warm it is outside. Tiktok and YouTube have great videos on how to tie them. You do whatever suits you. Keep well, Fiona
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Thanks for the tip! Do you have a favorite way to tie a scarf? I still need to learn this, never tried before. Since summer is approaching, I think silk scarfs will be my go-to, it’s already a bit too warm in a wig…
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Today the weakness from my first EC last Tuesday got too much. I phoned the 24 hr number and had lots of tests, all normal. I’m home now, I’m so weak I can only crawl to the bathroom. The dr said it’s the affects of chemo. It’s nearly been a week and I feel this weak. I’m contacting my oncologist tomorrow to make them aware as the dose seems far too high. It’s scared me so much as last week I was strong,now I feel so weak and my legs are like jelly where they’re so weak x
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Im so sorry this first one has knocked you for six, mabie they will lower the next dose, sending gentle hugs xx
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I really hope so, I’ve emailed the oncologist to tell them how bad it’s been. It doesn’t seem normal up to other people x
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Hopefully you will very quickly feel better. So sorry @stafford22 !
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@stafford22 ive been thinking about you all day and really hoping today was better. Glad the tests have come back good but that doesn’t help you find a cause for it. I really hope you start feeling stronger soon. Xx
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If no better tomorrow try one of the BCN on here as you do seem to be very hard hit and don’t worry about trying the team again - keep taking temp few times a day 
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Hope you feel better soon. I was ok for a couple of days but have been floored today. Can’t quite put my finger on it though. Head feels thick and I’m generally achy but no temp. Hoping it doesn’t last.
Take care x
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Let’s see if I can attach a couple. Funny as I prefer my scarves too and wear them most days but I love me wig…although no pictures of me wearing it. I think my silk scarf is about 1.5 metre by 90 cm although I double them up length ways. The cream one is literally twisted between the nap of my neck and my ear. The blue one I put on with long ends at the back, bring it up top and twist back to the nap of my neck. Then hide the ends. This picture show too much forehead so was adjusted.
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Thank you. It has been v hard. I don’t want anyone else to go thru this but good to make people aware. I was okish (bad hangover feeling) for first few days then day 5:6 has been another level. Today is day 7, I have today walked v slowly to the bathroom which is progress from crawling or holding onto the wall.
I emailed my oncologist and he’s replied and said he’s changing it for the next cycle. So I’m not sure if they’ll reduce it or change the meds. The thrush in my mouth is getting better, the 24 hr team gave me some gel that I swish around in my mouth. Thank you everyone for your messages x
Also found day 4 I was v emotional (seem to cry all day!)
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It looks very nice on you! 
I’ll start looking for some scarfs then, it seems like a great alternative
I like my wig too, just think it might be really hot in summer…
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@chita I bought loads on temu, all different colours, some patterned. Also shein had some. They were only a few £ each so could afford a few
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How are you feeling now? If you feel awful then please get checked over by the 24:7 team. Also remember that this awful feeling won’t last forever, it’s for several days then you’ll start to get stronger again x
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I love Temu! I’ve ordered a few hats x
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You will need antibiotics for thrush mouth ask for fluconzole 
are you on 21 day cycle you might be going into nadir phase if you are ring your rapid response please keep safe tell them about the thrush mouth Shi xx
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@stafford22 goodness that does sound rough, especially as they dont seem to know exactly why. I really hope you are on the up today?
Can I ask what the symptoms of oral thrush were like? This one seems to be a really common side effect.
Good to know about the emotional days too, I guess thats not surprising at all, as long as we all remember that this is temporary and it too shall pass!
All teh best for you feeling much better very soon
Kath xx
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The oral thrush is a very white thickly coated tongue and it’s sore. I’ve also got mouth ulcers. But they gave me some mouth gel and it is helping.
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@stafford22 sounds yuk! Mouth ulcers also sound very common.
Ive bought bonjela and corsodyl mouthwash in preparation but good to know that there is a magical gel.
Ive heard that day 8 is supposed to be a turning point where people suddenly start feeling better. I hope that happens to you tomorrow. x
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