@stafford22 have 3 a day for two days post chemo, then 1 a day for two days, wonder if we get them on Pac? I showed my hair (or lack of) to my sister via whatsap, it didn’t phase her, not sure what I was expecting. I zonked out in the garden after taking paracetamol, felt better after, do you think your more tired this round?
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That’s interesting. I’m going to ask them if I could take the steroid like you. I do feel tired but I did first time around. Well done showing your sister. I think we’re more concerned than others about how we look. You’re doing great x
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I have 4 a day of the steroids for first 3 days then they stop x
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I’ve just finished my last EC. I was always given 2 to take morning and lunchtime for 2 days after. Isn’t it funny how we are all given a different dosage
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I have 4 in morning and at lunch time, day before, then steroids though drip day of then 4 in morning and lunch time day after, then thats it. Days 3-5 are my worst days which is tomorrow although very tired now. Think we just gotta be kind to ourselves on the hard days x
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I promise I’m not ignoring you. I’ve been struggling to find strength & the thought of even talking about chemo was making me nauseous.
I know my first cycle is AC but I have to read what the second will be.
Will catch up & update as I find the energy to do so. I hope everyone is doing well.
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My hard days are the same as yours. Usually days 4-6 are the hardest. Not sure if it’s stopping the steroids or injections. But something def changes on day 4 for a few days. At least we know this feeling does ease in a few days and energy levels come back. Keep going, we will get through this x
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I should be happy that my SE have been minimal but right now I just needed to say that Im feeling pretty miserable right now, just looked in the mirror and hardly any hair left, I hate it 
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Tough days for everyone it seems…I feel so nauseous today, can barely move. Can eat only grapes for some reason, can’t imagine trying anything else.
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It does seem like a tough day for lots of us today. Have a cry, let it all out. Remember it’s a phase of our lives and it won’t be forever. Although at the moment it feels like forever. I’ve had lots of tears today about my lack of hair, mastectomy and feeling lousy. I just want to go asleep and to wake up tomorrow and feel much better. Sending you all lots of hugs. It’s hard but it will pass x
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Hoping everyone feels a bit brighter this week…
I had a tough week too. Spent all day on the assessment unit yesterday having CT due to cough and shortness if breath. All ok but another anxious day when already feeling rubbish is a lot. Looking forward to a ‘good’ soon 
Sending strength to everyone this week x
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I’m so happy that I’ve finally finished the EC. I found it really tough (more mentally. I was so anxious and low)
But now I’m starting to get nervous for my first lot of Paclitaxel on Wednesday. I spoke to the oncologist today and she said that they give you a higher dose of steroids before the chemo as people can have an allergic reaction to Pax. I’m now worried I’m going to have a reaction 
Also, I was hoping I wouldn’t have to have the filgrastim but she’s confirmed that I will have to have them again. Hate the buggers! Have had a few bad side effects from them.
Is anyone having Paclitaxel at the moment and have any tips for me? Xx
Should also say I’m having it 2 weekly
I’m on a similar regime as you. I’ve got one more EC to go. Then I’m onto 12 x weekly paclitaxal.on weekly I won’t have the injections but I think on 2-weekly you do. Im a bit worried about the reaction to pac. I’ve had a rough time with my last 2 ecs and been in hospital twice. So I’m hoping pax will I’ll be easier x
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Do you think it was the crash after steroids that affected your mental health? I feel the same x
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Anyone else struggling with no taste? Had herbs on chicken and tried a fresh pineapple… nothing, I thought the fruit wasn’t ripe but hubby said it was realy sweet, I know I need to eat but its got to the stage ware I rely don’t fancy eating if I cant taste anything apart from lemon/ginger/spicy/mint sauce, even a bacon sarni smothered in brown sauce nothing
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It’s hard to know for sure but I think so. If not, it’s just the chemo in general.
My mental health is in bits anyway since diagnosis. But as soon as I’ve had the chemo and have stopped the steroids I just feel awful x
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Hi @lauzloo I had my first Pac last week alongside Herceptin. I was worried about reactions etc. All went well, no issues. I have found Pac so much easier than EC. Lots of bone pain but this could be the Herceptin. I felt okay for 24 hours then mild nausea, took one tablet for this and it didn’t come back. 2 days of fatigue then energy okay. So far the bone pain is the worst but I take pain relief which helps. Again though I think this is mostly the Herceptin. I found EC too harsh all round. due my next Pac on Thursday and not dreading it. Hope this helps x
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I’m on a similar regime to you and just had my last EC yesterday, had horrible experience with the injections at home and ended up in hospital with one round.
My next batch of chemo (or 3) will be DOCETAXEL which I’m kinda dreading but also looking forward to getting it over with. …but same as you they’ve given me extra steroids pre-treatment 
…roll on the end …then radiotherapy! Then some normal xxx
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Yes I’m the same. Zero taste!
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