I’ve got one more EC left then pac. I too have really suffered on EC and each cycle been in hospital. They did a 20% dose reduction but around day 5/6 on both cycles my legs go v weak and I struggle to get to bathroom and back. Dr said to get moving more but that’s easier said than done when legs are weak!
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It’s so horrible isn’t it. I’m trying to juggle my mental health snd also the chemo.
@lucy99 that’s great that you didn’t have a reaction and you’ve found it easier than the EC. I’m really hoping I find it better. How long does the bone pain last? I’ll be having it 2 weekly - hoping I’ll have time to recover between rounds as with the EC I was ko for pretty much 10-12 days so would only get 2 ‘normal’ days.
@sa72 congratulations on completing you last EC 
Oh gosh that’s horrible that you’ve had such a bad time with the injection’s. I had pelvic pain which felt like full blown labour on my first cycle, then tolerated them cycle 2 & 3 by taking paracetamol and ibuprofen together 30 mins before I injected. But cycle 4 I getting light headed an hourish after I’d injected and feeling a bit breathless. I passed out on the toilet and fell on my face, bruising my cheekbone!
I hope this last EC is kind to you and you find Docetaxel easier x
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Or poor you 
I have been seeing your posts on how much of a hard time you’ve been having. What day are you on today? Hoping it’s getting easier for you as the days are going on. Are you drinking enough fluids? The best advice I got given before I started was to make sure I was drinking plenty, I buy the big bottles of water and just keep drinking to help flush the chemo out, especially the first few days. Probably around 2 1/2-3 litres.
Yes, the mental health side is awful. It’s completely taken over me and I’m ashamed of how I’m dealing with all this. I have panic disorder and had finally gotten myself in a real good place. Had weaned off of my antidepressants and was ready to start a ‘new me’ life. Then the diagnosis happened and I’ve spiralled into depression and the anxiety and fear is back full force.
If you ever want to talk I’m here x
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@lauzloo bless you, I hear you on the pelvic pain! That’s what put me in hospital, it turned out to be a spinal compression….nothing nasty thankfully, just a disc that had gone further than it should’ve. However it did mirror the pelvic pain from injection initially….just prior to the not walking part 
I have to be able to laugh on these little hurdles sometimes otherwise I would cry, but honestly the goofy stuff that happens we could honestly write a comedy sketch 
I’m hoping by the weekend I’ll have more energy, taste back and we can enjoy Easter and forget this whole nightmare for a few days. I’ve got to keep telling myself that by the end of July the chemo part will be done. I’m crossing off the weeks! EC has been harsh but I’m hoping it’s blasting any nasty cells. Hope you have a good day x
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I really hope you’re ok, the mental health side of things is huge. I’m on antidepressants and got my anxiety under control but I feel with the rough ride I’m having on chemo is really affecting my mental health. My nurse said the steroids affect anti depressants. I’m on day 7, today has been a bit better x
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Oh really? Affects them as in the steroids stop them from working?
Just to add, from your previous post about the EC being harsh but hopefully blasting away any nasty cells - after 3 EC’s I had an ultrasound and my tumour had shrunk 50% so it’s definitely potent and doing it’s job.
Hope you wake up feeling better x
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@lauzloo that’s great news the nasty bugger has shrunk, hope you told your team about passing out.
@stafford22 yes roll on july, then 5 radio for me, I’m also on anti-d’s, thankfully they are working, though didnt know about the steroids issue.
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Thank you. Yes the nurse said the steroid crash is when it affects the anti d’s so they will try a tapered steroid reduction. Amazing results, I needed to hear that today x
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I did. Because I think it was a combo of the chemo and the injection - I had to go into the oncology unit the next day to be given the injection and monitored for an hour after
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Wow that’s incredible! 
Huge congrats!
I’m finally feeling like a human again after 2 days of crazy nausea and almost not eating or drinking. The water started tasting awfully so I’m trying to find some alternatives, so far only sweetened drinks go well
The mental health is even lower during these bad days, I start having some really dark thoughts during those moments. Luckily it passes 
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Oh gosh. I was told the steroid dose I’ll take tomorrow before the paclitaxel will be quite high, but then the 2 days after I’ll be back down to just 2x 2mg a day.
They reduced my dose because I thought the steroids were making me feel awful
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Yay that you are coming out the other side
Which chemo are you on?
The dark thoughts are scary aren’t they. But I guess atleast we know they don’t stay for too long.
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Yeah it’s not nice. I’m on 3x EC then 12 x weekly pac. I’ve done 2 x EC so far
I’m on weekly Paclitaxel and 3-weekly Carboplatin. Tbh only Paclitaxel weeks are completely fine, some minor nausea here and there.
I’ll switch to EC in May if nothing changes.
Yeah, I noticed as long as I feel nausea or fatigue, my mental health drops a lot. As soon as I feel better physically, it passes. I’m also on antidepressants, maybe will talk to my psychiatrist about it 
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Today my energy is better and I’ve gone shopping. But then this afternoon I’ve had a meltdown. I think when I’m feeling stronger I can process it all and then it scares me. It hits me that I’ve had cancer and now having chemo. I’ve been on a conveyor belt and suddenly it hits home. Anyone else feels like this?
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Sad day when I’m excited at getting chemo but after two weeks delay I’m finally back on track! Oncologist happy enough that redness on breast area is reduced and I’ve just had my second cycle of EC. Feel much better this time around as I’ve - hopefully - got a better idea of what’s ahead.
Hope everyone is ok. The dark thoughts consume me sometimes too. Mainly at about 3am when the rest of the world are sleeping. X
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Great news that it’s gone ahead! You’re back with me @fubc
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All the time.
It’ll get easier as time goes on
Sending you a hug x
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