I had my first Paclitaxel today. All went well, no reaction. Have been given steroids though that I have to take morning and evening for 2 days. So I’m coming to terms with the idea of no sleep for a few nights.
Hope everyone is doing ok today
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Please tell your team how you are feeling. Many are so concerned with getting you through your treatment they don’t consider the mental health issues we all deal with. The dark thoughts could be medication or mental health, so worth checking, if it was me I would.
Also you can call the BCN nurses to chat about your thoughts and feelings as well as the medical side of this journey between 9-4 Mon to Fri or 9-1 Sat 0808 8006000
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Definitely feel the same, I went to a friends today they asked about my hair so I showed them, they said I still look like me, she said she could see it upset me but it didn’t bother them and her husband saw it as a badge of strength that I’m fighting.
I had my review today, nurse said my temp was up, didn’t seem too concerned, I told her I had been sat in a hot conservatory and car was hot, they are happy that Ive tolerated it so far, bloods tue/ cycle 3 thurs. Someone had messed up my appointments, they hadn’t given me 3wk recovery but booked me in for pac the week after next EC, good job I caught what she said, I showed her my appointment card and she said no no no and she had to explain to reception the mistake and what it should be. So there was me thinking Id be finished early, I’ve just worked it out that, without any delays, I should be finished all treatments by begining Aug… so another thing to mess with my head knowing this THING will have taken up 10 months of my life, so feel I have the right to be peed off with it and I will definatly be celebrating in style when its done.
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@cruising I think we all will 
My friends try and get me out for a cocktail the weekend prior to the chemo cocktail …just to lift me up which definitely helps xxx
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I’m on exactly the same timescale as you as I finish first week in August. But I try to tell myself it’s the end of July as it feels less time. I have my 3rd EC the week after you then move onto paclitaxal (weekly x 12 weeks). I haven’t tolerated EC very well (as you all know!) so I’ll be glad when I get thru the last one. I will punch the air when the last EC is done! We are doing well, it’s a long slog but we’re getting there x
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Ahh what a good idea!
I hope everyone is holding on! I threw up today for the first time during the treatment 
I was shocked tbh, had this crazy wave of nausea after the breakfast.
I had my 8th Paclitaxel yesterday and felt fine, even exercised a bit…but it seems this nausea became permanent… Might need to call my team to get some advice.
And I’m supposed to be omw to a friend’s bday lunch and now I can just lie on a sofa with my makeup on and feel sorry for myself 
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Upd: the pills do magic, I’m already omw to the bday lunch, just a bit late 
This is another reminder that no matter how bad it feels in a moment, it WILL feel better, remember
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Glad the pills worked but yes, you are supposed to use the red card if you’ve been sick, hope you enjoy the lunch xx
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Hi, agree with other replies too but you can take it for even up to an hour before and setting an alarm helps! I kept forgetting as I never looked forward to
It.
Rotate the sides and I found if I injected nearer middle/bellybutton I was less sensitive. You can test this yourself by scratching/touching your skin from the sides to the middle.
You can do this!
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Good morning ladies, hope everyone is doing ok
Just wondering if anyone is still getting their period on chemo? I am and this time I’m
in lots of pain
Mine stopped on cycle 1, and haven’t had one on cycle 2. I’m hoping this is a good sign as it means less estrogen
I am, but this time it was light when usually I get it really heavy, however it lasted about 2 weeks so really strange. But after my last chemo I have started to get hot flushes so wondering if it is start of menopause, be interesting to see if I get another one.
If you are concerned perhaps speak to your bcn or if pain really bad maybe call 24hr line just to make sure its nothing else? I hope it eases for you x
Hey @lucy99
How long does the bone pain last for you? I’m on day 5 and it’s not easing up at all
Hi @lauzloo
I think it eased to some extent on the Wednesday, having had Pac on the Thursday so is this day 6 or 7? Had my next Pac on the Thursday again but this time without Herceptin, and the bone pain was back up by Saturday early evening. Very painful today but trying to get a few things done anyway, just hurts a lot and feels like my hips and legs might snap doh. Codeine Phosphate helps but I am trying to stay off this as it can lead to constipation. This said I might treat myself later 
If you haven’t got any decent pain relief, ask your team if they can prescribe some for you. So far, having had a rough time with EC I am coping better with Pac so kind off count my blessings through the pain.
Hope you get some relief and manage to do some things that cheer you up xx
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Afternoon everyone
I’m now day 11 post 2nd ec and still feel rubbish, had a couple of good day but now feel so weak again. I’m really worried I won’t be able to do my last ec before moving onto packitaxal. It’s also starting affect my mood and i can feel I’m getting low and depressed. Some people seem to sail thru chemo but it seems to hit me really hard. I just feel like I’m trying so hard to eat, drink, rest but I feel terrible.
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Yes the hip pain is something else. It feels like the worst period pain to me. I’m shocked by how painful it is. What pain relief are you taking? I’m alternating paracetamol and ibuprofen but it’s not touching the sides. I think I might have to get some codeine and deal with the constipation!!
I’m sorry you are feeling so rubbish. I had a cycle on EC similar to what you are describing. Felt like I was on the mend and then crashed again until day 12. I really didn’t sail through EC and can completely understand the low mood that it brings. Try be kind to yourself. Chemo is tough and you are doing your best. I know it doesn’t feel like it when you are in the depths of it but this will soon be in your past and you will look back and think to yourself ‘I did that’
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Thank you. I’ve got to keep telling myself the next EC is the last (then I go onto 12 paclitaxal). I need some kind of pep talk as in 15 weeks the chemo part should be over. I need to find a way to keep pushing on. I will talk to my nurse this week x
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Yes 1 more to go but if your still feeling bad, then mabie they will move you straight to pac, hope you feel better soon xx
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