Every day that passes is another day closer to the end of this 
My Trust connects folk with macmillan people for emotional/counselling support for those that want it. Hopefully you have same opportunity ? And / or is there a Maggies near you?
Give yourself credit for what you have already done - we all should 
weāre doing one of the hardest things there is to do
Thank you. Iāll see what the oncologist says on Thursday. My main side effect is weakness and hair loss. Iām a relatively fit 49 year old and the extreme weakness is so hard. Hopefully they will come up with a plan. My nurse said theyād move me into pac sooner. Hope youāre ok and had a njce easter Sunday x
Hi there my nurse has referred me for counselling but thereās a waiting list. Iām in touch with maggjes.as Iāve struggled with the last 2 cycles Iām now getting anxious about the final one. The weakness in my legs scares me and my whole body feels like Iāve got no energy left in me
You should be seeing Onc before next session but maybe contact them now for a chat?
Sorry to hear that @stafford22, that sounds tough going, especially as you were feeling a lot better by day 7&8 last cycle. I do hope you have a better day tomorrow x
Iām seeing him on Thursday and my bcn is coming to the appointment with me. Iām hoping he can make a few changes to make it more bearable x
Thank you, I slept like a log last night for 12 hours straight so I do feel much better today. Wonāt overdo it but nice to feel a bit more normal. Hope youāre ok x
Thank you for listening to me, itās a hard slog for us all and itās good weāre supporting each other. We will soon be through this. Every Monday I cross off another week and it feels like itās one step closer to the finish line x
Hi @warmfuzzies I just came across your last message as I was looking for advice re letrozole and radiotherapy waiting times, and realised we had shared posts before.
I had a mastectomy on 18th Feb with a total maxillary lymph node clearance (two were cancer affected). Was given a choice re mastectomy/lumpectomy but glad I went for mastectomy option as pathology found another small tumour, which would have remained if I only had a lumpectomy.
Fast forward, had convinced myself I was having chemo due to lymph node involvement, only to be told that due to low oncotype score of 7 will not need chemo, but letrozole and radiotherapy (which I am waiting forā¦ and worriedā¦ as 10 weeks post op and still not started).
I do hope you now know re chemo or not. X
@sue9 thatās a really great oncotype score and a great result that you donāt need chemo. I had 2 lymphās affected from the SNB and an oncotype of 19 so the recommendation was to take out all the lymph nodes to check for more.
A CT scan showed that 3 more were thickened but they canāt tell for sure unless they check them under a microscope.
So I need to wait for those results on 2 May.
Itās so good you went for the mastectomy under those circumstances. Itās scary to think some cancer could have been missed.
I really hope I can avoid chemo as the drugs they will give us will do the right job for us. Hope you get the meds soon and get on well with them x
Since being on chemo (last 6 weeks) I have very loose bowel movements once a day! Itās like I have to go right now!
Today Iāve been and noticed some bright red blood on tissue after wiping, I know Iāve got piles but I havenāt strained to go to the toiletā¦.complete opposite!
Should I be worried? Or should I use anusol and keep an eye on it x
Call your team ? however reported same this morning after Docetaxal yesterday. Feedback is donāt worry , plenty fluids, if all normal otherwise and eating/drinking ok, no temp, no cramps , not watery or straining etc then monitor - but if persists then call acute onc 24/7 line for advice or possible visit. At moment feedback is they are not worried (but I feel completely fine at moment anyway)
3 soft but not watery or anything BMs today
Whereas with EC I was on laxido as a bit constipated for few days
Have ordered some loperamide on nurse advice yesterday to have in case but nothing needed yet - nothing unmanageable or uncomfortable (for me)
Thanks for the info. I will monitor it, Iām seeing nurse and oncologist tomorrow so I can mention it then. I just thought on god what now!
Iām so windy and havenāt had a solid poo for weeks now. But only go once/twice a day. Hope yours soon goes x
I met the oncologist today and theyāre going ahead with my EC number 3 but at at reduced dose of 70%. For cycle 2 they reduced one drug to 80% but this time theyāre reducing both to 70%. He said it does not affect the treatment effectiveness. So next Tuesday Iāll be having my last EC! Then I go over to weekly paclitaxal. Heās also tapering the steroids rather than an abrupt stop x
So glad they reduced you again, dose make you wonder why they give so much to begin with, if lower dose has same outcome.
I had my 3rd and final EC today, via canula, all went well, hoping insomnia doesnāt happen again and my last filgastrim starts Sunday. I asked about pac/carbo, apparently they are both an hour long, so definitely need to take something to pass the time, a bit nervous starting something new.
Well done. The oncologist said anything 70% and above works the same as 100%. Apparently they give 120% in first dose to see how people react!
For those on pac, were you given an anti-sickness pill to take at home an hour before treatment? Iāve had them on EC but wasnāt given one in my goodie bag yesterday, i start in 3 weeks. so plenty of time to get one if needed.
I managed to sleep until 5am, so thatās better than my 2am insomnia, hope this continues, good luck everyone, were checking them off one by one love to you all xx
Had 1st Docetaxal Tuesday (not Pac so no info sorry on that). No reaction. Steroids and anti-sickness meds day prior to chemo, as well as on the day and day after plus usual additional anti-emetics if needed (havenāt needed). Iād certainly check with the team ā¦
4 chemo down, two to go 
Some extravasatation of Dox but seems to be resolving nicely (anther week of monitoring) - still had full dose but resolution took nearly an hour (nurses on it quickly)
Brought in and placed my hands and feet on food freezer packs during infusion (protect against neuropathy suggestion from onc if I wanted to try) - got some funny looks 
Still cold capping, have so far kept c85% of hair just a little thin in few places right on top. Will see how that goes during Docetaxal
Can almost see the end of this particular round ā¦ she says optimistically
Silly question, did you have socks/gloves on with the freezer packs, or bare skin? great tip thanks, great to hear youāve kept most of your hair so far, I didnāt cold cap and mine is very sparce now
No such thing as silly questions on here!
Yes cheap cotton gloves from Amazon for hands and a thin pair of socks for feet
Was ok. As I cold cap I always have big coat on and layers anyway