March 2025 chemo starters

Yes i have my husband, who is taking on everything else and 2 daughters whomare being really helpful. They are 14 and 10 and doing bits ofcooking and cleaning. I am very lucky. Like i said feling sorry for myself and just willing it to be over!

3 Likes

I totally understand. I am sick of this bs now and just want to feel like me again. Hate the injections too. X

4 Likes

The injections are awful. I was originally sent home needing 7 days but my Neutrophils have been shooting up so had bloods on mon and they decided in only need 5. So glad to be done with them for another couple of weeks now.

Hope you got some rest and feel a bit brighter today :crossed_fingers:

1 Like

@joast79 - that’s great you only need 5! Any tips on getting them up? I have 8 and am sick of them. Got some sedatives from the gp which have helped with the sleeping. I wake up every morning and think ā€œI have cancer.ā€. Genuinely still can’t believe this is happening.

Im not sure im doing anything specifically to increase Neuts, consultant said cos of my age (46) and health they probably more responsive to the injections and i am being over stimulated which caused lots of pain. They have been over 30 at one point!

Do you have any support at home or around you. It is a horrible diagnosis which i certainly wasnt prepared for. I am trying to focus on what i can control. The fact that we are all fighting this as hard as we can. I keep a diary, when i feel up to it, so i can look back and see how far i have come. I find being grateful for the fact the cancer was found and i am able to have treatment helps. Cancer sucks and i have to say yesterday i was thoroughly done with it all but today i have hope and focusing on this temporary situation which we will get through. I never knew i could dig so deep but we all have and will continue to do.

@sbee i hope you have someone to talk to. Take the low days and have a good cry. There are always ppl on here to talk things through with. You are definately not alone :heart_eyes:

4 Likes

Thank you for your reply @joast79. I had read that (had a friend that had been through similar) that shared kiwi fruit can help!

Unfortunately I live solo, but have actually come to stay with my parents of late as I have been struggling to do it all. Where are you in your treatment plan? X

2 Likes

It’s good to stay with your parents as being alone is tough, my sister comes to stay with me and help as I can’t do 80% of things I used to do.
It’s ok to cry as I just did,just the tough of getting better a little bit to be able to go for a walk and then will get hit with another chemo that will smash you for 10days is tough.
I am counting down now to be able to carry on.

3 Likes

Do you live solo too @hasnae87? I am finding it hard being 38 and being taken care of by parents :broken_heart:

How many treatments do you have left? X

1 Like

I am 38yo too and my sister who looking after me is 53yo @sbee
I am married with 4yo boy but since my chemotherapy start my husband move to his mum to look after my son.
After the tough days of chemo he bring him for couple of hours to see him and spend some time with us.
I have two docetaxol/carboplatin left out of 6.
Will have phesgo for 18cycles then single mastectomy and radiotherapy.
I hate it and I will suggest to stop at 5 when I will talk to my oncologist as I am struggling physically and mentally.
I have counselling tomorrow hopefully will make me feel better

3 Likes

I totally get you wanting to stop, I cried last night too, Im going to ask chemo nurse tomorow to speak to oncol and get reduction.

2 Likes

Hi @hasnae87 & @cruising - can totally relate. I feel like the chemo has practically killed me & have said to my oncologist many times that I can’t do it anymore.

2 Likes

I have completed 12 weeks of Paclitaxel with 4 lots of carboplatin alongside. Just started EC last week. Feels like ive come so far but still have so far to go!! One step at a time x

1 Like

I hope you’re all ok. I would ask for a reduction of chemo and they’ll also reduce the steroids then. I’m finding the paclitaxel quite hard going. Had reduction this week and I’m now on day 3 and just been to the shop and back. Legs still quite weak but the reduction has helped. Take care x

3 Likes

2 out of 4 ECs done! :+1: slept today most of the day but these strong antisickness meds seem to work
I started having a weird sweet taste in my mouth after steroids that makes me more nauseous, so thinking of skipping them…

5 Likes

Talk to your oncologist or bcn as they’ll arrange for you steroids to be reduced. That’s what they did with me x

2 Likes

Have to say I had a bit of a meltdown yesterday in the chair, told them I was having a hard time, though think it was a tad obvious, Im wiped out, no oncologist on site but the nurse went out and spoke to someone, I hadn’t taken AS day before but was feeling iffy yesterday ,so nurse said to make sure I carry on taking 1 Cyclizine am/pm and 1 Ondansatron midday, if this dosn’t stop the nausea they will try something else. Also had a chat with the Nurse who took the initial information session, she said write everything down and Oncoligist will more than likey reduce next dose, as it seems to be this combo making me so rough, she runs the local Look Good Feel Better and said, while I can go during treatment, suggested I wait until I’m done, in case I’m not feeling well … guess what? I actually started to feel better last night but steroids kicked in so now can’t sleep grrrr, I’ve got 4 more sessions left, wish it was done now. How are you all? xx

3 Likes

I’m awake too after steroids.
I had my very last paclitaxel yesterday. No more chemo for me!!!

Just need to get over these side effects. My dose was reduced so I hope that helps

I hope the nausea stays away for you. Feeling sick is horrible.

The 4 you have left will fly by. You’re nearly there!! :smiling_face:

Xx

6 Likes

Thank you, fantastic news your all done with chemo, cant remember if you still have op/ radio to go? I should finish on 10th Jly, no date yet for my 5 days radio but it would be nice to get away for a few days in between xx.

1 Like

I have surgery and then it’ll be radio. Been told to expect 4 weeks between chemo/surgery and radio

Oh yes definitely, I think we deserve a little break after what our bodies have been through.
I’m planning to get away just before surgery.

Hope you managed to get some sleep and have a nauseous free day xx

2 Likes

I’m interested to learn where we all live.

Sometimes I wish that I had someone going through this too who I could meet for a coffee and a good old moan :sweat_smile:

I’m in Cambridge. Is anyone close?

Xx

3 Likes