Hey @big welcome to the thread none of us wish we had to be in 
A school friend of mine has just finished chemo for TNBC and has smashed it, sheās onto surgery next. Is there any threads on here specifically for TNBC? Maybe look at starting a TNBC chemo thread if there isnāt one?
The road ahead always feels like a mountain before we start doesnāt it! How many EC plus B will you be having? I had my 1st EC yesterday and other than being wide awake since 2am this morning (think itās the steroid buzz 
) it was all very chilled and uneventful for me!
Not long until you can get cracking with it now and tick off that 1st one sending lots of love and keep us posted xxxxxx
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So glad itās ok so far except the sleep!
I was the same to the nurse - had seen my oncologist before and her advice was very much stay ahead of sickness prevention so I am following that and so far it has helped a lot. I had some little naps yesterday on day 1 post EC then had the injection.
I was sleeping well last night until my nearly 4yo randomly woke at 0130 and that was game over - I was awake until 5am! Will try to have a restful day.
Hope you can rest up today xxx
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Sounds like we are going to need some night owl activities! I donāt want to lay in bed for hours awake. Id rather get up and do something quiet downstairs, have a quiet cuppa to myself. Sounds quite nice actually 
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@foxgem @katie91 glad your first infusions went well. Just catching up with the thread. Have spent this week trying to do all my pre-chemo admin. I have my heart scan today, and a tooth removal (JOY!). I am embracing 2026 as my toothless kick arse bald pirate cancer era. However I am glad I was able to get the dentist to sort the tooth pre chemo-kick off. The tomorrow is a flu jab. Life bowls on as exciting as ever
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Yes Iād much rather stop any nausea before it starts and so far so good so Iāll be keeping up with the meds for sure!! I was awake until 6.30an but then fell asleep until 8.30am. My husband booked today off as weāve got a poorly 2 year old who was in our bed last night (not too worried about the germs as I think she has the cold that I started with a couple of days ago)! And a 5 year old whose in school. Sounds like you had a rough night too!! Do you have somebody with you or is your little one in school today so you can rest for abit?
How are you feeling today?
Iāve pottered around the house for abit and Iām back in bed chilling with a brew, Iām normally non stop so itās actually quite nice to be going abit slower!!
Hope youāre OK today xx
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Yeah I ended up scrolling but I think if it happens again tonight Iām going to get up with a brew nd do some Colouring or something hoping the steroids have worn off though! Xx
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Ohhh itās all fun and games isnāt it hope all goes well with the heart scan and tooth removal!
Now thatās the spirit pirate joodles 
if we canāt embrace it what else can we do hey! Xx
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Hey @sammy75 how you doing today? Hope youāre feeling abit better 
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@joodles just a casual tooth extractionā¦ but such a good shout to get that sorted pre-chemo! I have a very dodgy crown Iām worried about. Just hoping it behaves for the next 4 months. Hope it isnāt too sore!
@katie91 poorly 2yo is Sodās Law! Hope that the bug passes quickly. My little one was off nursery Friday with a sickness bug. Perfect timingā¦ I am feeling ok again today so far! Tomorrow is last day of the main sickness meds (have others to take as needed but the main regime stops) so hoping itās not too much of a crash. Iām also a busy person usually so a slightly slower pace is nice but I expect that novelty will wear off. Luckily my husbandās employer has been lovely and given him some paid time off work to support me which has been so helpful.
@foxgem are you still on for 10th?
@big hope youāre doing ok. I was just put in touch with a friend of a friend with an aggressive subtype of TNBC and sheās 8 months in and things are going well! I have found reaching out to others with similar experiences is so helpful. It has made me feel less alone. There are so many incredible stories out there too about people defying stats which can be scary (and are based on older science and older treatment).
Sending love to all xxx
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Still booked in for the 9th march Got my picc line being installed tomorrow and my pixie hair cut. Not sure which one Iām dreading more 
Sounds like you are off to a good start
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@jululemon - re tooth - itās a failed crown that I donāt think will behave when my immune system is tanked by chemo. I had to wait for a late Feb appointment with a specialist dentist after a Nov referral only for him to go āthe tooth youāve been referred for is fine and your normal dentist can take the next door one with a proper failed crown outā. So could have been done in Novā
@foxgem @katie91 - hope youāre feeling better and manage to grab some rest today. I maintain your children always sense your weakness or if youāve had a glass of wine/G&T and then mount some illness offensive. Itās a conspiracy they are all in on it! 
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@joodles you are absolutely right, our kids are 100% out to get usā¦ Especially girls
Feeling great this afternoon managed a couple of hours sleep and lots of rest today, I sense Iāve still got the steroid buzzā¦ Just waiting for the complete bus crash now 
xx
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Well done - thatās reassuring!
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I found I could get my Asda sweater on without lifting both arms
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Little day 3 update following 1st ECā¦ I slept like a log last night (9pm-6am) after being up from 2-6.30am the night before being wired off the steroids so feel quite well rested today! Woke up with a slight nauseous feeling so took an anti sickness straight away and thatās gone now, just abit of constipation and bloating. Hope the rest of today stays like this!!
Going to drop my eldest daughter off at school and then nip to a little playgroup with my youngest daughter (Onc said small playgrouos are OK just use caution around anybody obviously poorly!).
Hope youāre all doing OK
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Thatās great Katie!!! Keep moving Iām sure your body will tell you when its time to rest
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Just had my PICC line installed
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Great news! Iām so glad you got a good sleep. I had a wired night again but Iām still feeling ok. What anti sickness have you got? I take 4 x dexamethasone per day and 2 x domperidone. From tomorrow I donāt have the dexamethasone. But theyāve been amazing so far and Iāve felt really hungry which has been reassuring. I think itāll be bad from tomorrow from what Iāve read but I relieved the first few days have been okish (and the sun is out). xx
) and chatted to the nurses. They made me a brew and bought biscuits round. Was like a weird little day out