I just had an oncology meeting to discuss what’s going to happen next. Once chemo is done I am being prescribed Zoladex injections, Anastrozole and Tamoxifen (although I am hoping they change this to Olaparib but it’s an expensive drug) I believe this concoction will change a little bit after ive had my ovaries removed (for my mutant BRCA2 gene) So all this on top of my double mastectomy mid July. What will become of me!
6 Likes
Wow @foxgem I have no idea what is happening with me beyond radiation which starts in 3 weeks. Sending you love with going through all of this 
. Everything seems so organised for you. Is radiation not part of your plan if you dont mind me asking!
I know I have got to have hormone treatment but not sure which one as my periods have stopped during chemo. Has this happened to anyone else??? My chemo omcologist appointment isnt until.the 20th July now after radiation..when I guess i will find.out what happens next 
1 Like
Wow - it can feel a lot when you hear it all can’t it. Especially as we’re still in the chemo process. How are you feeling @foxgem - is it good to know what’s happening or more yikes !!!
1 Like
@clarabelle1 i am already quite nervous about the whole thing amd feel relatively normal now after having all that time off from treatmemt which is why its gping to make the next one doubly hard as it will be like starting again .
Radiotherapy was part of the plan but they’ve taken it off the table now because they can do my double mastectomy within 4 weeks of my last chemo. Periods stopping during chemo is very common yes
@clarabelle1 it is a lot. I have nearly let it overwhelm me but now I’m thinking it just is what it is. In my case I can’t afford not to try these things so I’m just going to accept it. Throw myself into the process and see what happens. I’m going to get back to thinking of one step at a time
4 Likes
I have been absolutely fascinated to see if my period arrives this month as it’s the first one due since starting chemo. I do appear to be getting the symptoms as though it’s in the post but nothing’s arrived as yet!
2 Likes
Absolutely get that @cazgib10.
If something happens regularly and as planned, even if it’s horrible, you get used to it. I’d be feeling the same I’m sure
It really is a lot @foxgem. Shifting sands from where you started and with all the other things that have happened during chemo it’s no surprise it’s felt overwhelming. It’s bloody overwhelming without any of that. I think you’re right though - sometimes if we look too far ahead it paralyses us - all we can do is focus on the next thing in front of us.
You always come across so positively and I can hear that’s where you’ve landed again - the idea that it is what I have to face, hard as it is - power (and love) to you
2 Likes
@foxgem that really is a lot to handle. You’re so strong and brave. What a trooper!
Am surprised you’re getting Anatrezole and Tamoxifen - I thought they did very similar things. Possible cause of your age (young) and having the ovaries removed? It’s a lot for your body to handle. Hope you’re doing ok despite all this
1 Like
@cazgib10 That’s really unacceptable - I’m so sorry this is happening to you. There must be a next level where you can put in a complaint, but it’s probably the last thing you feel like doing right now. Xx
As far as I undertand it anastrozole reduces the production of estrogen in the body, not just from ovaries but body fat. And tamoxifen blocks estrogen being used by the body. Because of my gene they dont want to reduce my estrogen they want to get rid of it completely. My oncologist isnt worried about my bones, they’ve said they will manage that. They other concerns, heart, side effects just have to be taken as they come. I’ll be honest other than reading the loooong list of side effects I havent really looked into this yet but I know I cant avoid it too long
1 Like
@m1sty.george i feel quite ok apart from this ringing in my Ears , that is what is making this hard going forward sittting in that chair again because the side effects from the chemo are starting to wear off so it makes all this that much harder
1 Like
@foxgem yes that all makes sense and I guess takes into account you being pre-menopause. It’s such a lot though 
2 Likes
@foxgem hope your oncologist is able to provide the right information in a helpful way at the time that is right for you so you can make the best choices for you. Youare dealing with so much so try to be as kind and gentle with yourself as you can.
2 Likes
had a follow up ultrasound today prior to seeing the surgeon on the 22nd. Lovely trauma counsellor has arranged to see me for a debrief after
nothing was showing around the one marker and the other with the her+ is smaller, sentinel lymph node now looking clear so in spite of the bloody side effects Ìt does look like the chemotheraphy is doing more than leaving me with uber dry skin, dry eyes, no hair, no appetite and a loathing of the smell of any food with almost constant grade1 runs. seeing the oncologist again on Monday, trauma therapy on Tuesday ( aiming so I can have surgery without risking another anaesthetist needing A&E because in a half with it state I tend to react to anyone who feels like they could be a risk to my life. I will be asking the BCN on the 22nd if I can speak to the anaesthetist before surgery as I know they are trying to help) round five on Weds. Last round hopefully 1st July.
2 Likes
Sounds like a case for PALS and also your MP…
1 Like
@2kittens they just said that some paclitaxol is 3 weekly so it should be fine.
Hey @cazgib10
Did your oncologist say it should be fine to miss treatments or the staff at the chemo suite?
@msteel its Just delayed both hospitals are at capacity the other hospital was a week later, the oncclogist is aware and the breast care nurse .
2 Likes
Chemo round 7 done 
Super tired and drained. A combo of the overall day and the drugs I guess. But I am so glad it’s done. 2 weeks recovery now and hoping the dreaded day 3 to 8 is kind to me this time 
7 Likes