markers up again

Public Archive
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hi just back from hospital , seems markers up again so the xeloda and megace dont seem to be working . sighhhhhhh , i felt sick in there when they told me as i have felt so well apart from heavy leg symdrome and sore feet .
now i feel rottern again , also my white blood count is high last 2 tests at 11 something going on maybe infection as my toe is bad .
well i have poured myself a brandy ( i know its only 3 ) but i feel crapp .

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Hi Tracey

I’m sorry to read that you have had this news today and are feeling so low, if you feel that you would like to talk to someone in confidence, please call the helpline where you can get support on a one to one basis. Tel 0808 800 6000 Mon-Fri 9am-5pm and Sat 9am-2pm.

Best wishes
Lucy

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Oh Tracy

So sorry to hear that your markers up again, although as u know my onc does not use them at all. Sending u a big cuddle and hopefully you will get things sorted out soon to find a treatment that works for you. Have u got appointment to see onc and find out what is going on and what can be done, I hope so, but if not I would make one to help you get some answers.

Sending lots of love to u
take care
Dawn
xxx

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thanks yes dawn on monday , every time i hear thuis news i feel it is the end of the road for me , they say maybe weekly taxol , when do we ever get a break ? xxx

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thanks lucy i think i may phone xx

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Hi Tracy

I have been wondering how you are. Sorry to hear about your markers as Dawn says some oncs don’t worry about markers, what have they gone up to. My friend who had bc a year ago has regular blood tests and her markers have gone up to 29 but she doesn’t appear to have the c back. My onc says they can go up and down and it doesn’t mean anything suspicious if a great increase then of course they will look at results. Your bad toe could have something to do with the white blood count.

I hope you feel better after the brandy please keep positive I know its hard and going to hospital gets us all keyed up.

Sending you a big hug and lots of love

Beli x

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So sorry to hear this, Tracy. Had been thinking of you as hadn’t seen you post recently.

Really hope the onc will come up with something good when you see him on Monday. I’ve “done” weekly Taxol and though it was tough going the last few cycles, initially it wasn’t too bad. Had 18 sessions that ended in early December.

Lots of hugs

Kay xx

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Tracy

I have been looking out for your news as well, sorry to hear that the markers have gone up. I know how upsetting this must be, I really want xeloda to wok for me when I have to take it, its a shame it can’t work for everyone even if just for a while, have been looking for your progress on this, was hoping things would stabilise.

I am glad you are going straight to see the onc on monday and will find out whats next, Try to enjoy the weekend if possible, maybe get out in the camper? Hope that the family is spoiling you.

Wish I could say something really helpful - but sending you cyber hug, Let us know what happens on monday.

love
cathy