Hi - I have just had a mastectomy after a unsuccessful lumpectomy - in between these operations I had several nodules on my breast and a further lump near my nipple appeared. I had an appoitment with my breast consultant and oncologist yesterday and they told me that there were still cancer cells remaining and radiotherpy will start in the next few weeks for five weeks. I am a bit worried that they have now said there is a high risk of further spread in the breast and I am waiting now to have a CT scan to see whether it has spread in other regions of my body. They have both said that this is still curable but have been told that a reconstruction may not be possible and I will have to wait for two years for a decision to be made. I am alarmed that orginally I would only have to wait a year after radiotherapy. Has anyone had a similar experience as I feel that this grade 3 Invasive cancer cannot be stopped. I have been on Tamioxfen since the nodules appeared and will remain on this until the radioterhapy and then for five years. Please reply.
So frustrating and scary when the original “plan” that took a hell of alot to come to terms with in the first place takes a turn for the worse - lumpectomy to mastectomy/recon after 12 months to recon after 2 years. There have been other women in a similar position and hopefully they’ll come along and help you soon…
Bump.
Hi Pauline1
Welcome to the forums, I’m sorry to hear that you are having a pretty tough time at the moment.
As well as the support you receive from the other users you may find it helpful to talk things through with a trained member of staff on the helpline. Here you can share your concerns with someone who will offer you a listening ear as well as emotional support and practical information. The free phone number is 0808 800 600 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 9.00 to 2.00.
Best wishes Sam, BCC Facilitator