Mmmmm prawns ? I am being a good girl but will definitely be having a big dinner out when all this is over. Medium rare steak, sea food, pate. All the yummy stuff. This has not affected my appetite ?. Finally made it out in the sun with the family.
Good to hear you’re out enjoying the sun. X
My smell is so exaggerated I’ve had to stop my sister using cocobutter after her shower if we are watching tv because the smell (that I normally love was making me ill)
My appetite has doubled even tripled I used to try eat low carb now breakfast toast, lunch cheese on toast, dinner pizza or tonnes of pasta, snacks of chewy sweets, crisps, biscuits, ice cream - I’m eating like crazy!
So… my bottom is really sore I’m dreading the next time I have to go! Even sitting hurts and there is blood when I go. Does this sound like piles? I will call doctors on Monday and try and get an appointment but I’m so uncomfortable so very very sore. Are we allowed to use sudocream I was told avoid becaue of the lavender but I think i may and use it regardless I have to do something.
Sounds like it might be piles. See gp. Mine gave me Anusol. You can get it at boots. Or it might be side effects. Bleeding is a sign of low platelets . Try not to worry, eat lots of fruit and granola always helps soften things for me. Good luck x
Hi WolfEE. I’m having the bottom issue as well, but only when I go to loo. Was going to phone help line yesterday but wasn’t sure how to start that conversation! I decided to take senokot and see if it helps. I’m on day 11, last cycle the pain peaked on day 12 so not looking forward to tmrw… usually last 3-4 days then eases. I’ll try to get through it this time and ask next time I go for treatment if there’s anything I can take/use. I guess the lining has been 'stripped so nerves are a bit exposed. Hope you find something to help.
Saw oncologist for a review meeting in week, she asked if periods had stopped - haven’t had 1 since end April. Guess what made an appearance today?! No wonder I’ve been raiding the cupboards!
Hope everyone’s been able to get out and enjoy the day.
My gorgeous little step daughter left a note on my bed. She had a school task to write a sentence to make someone smile. She chose me. Saying she knows my treatment is tough but I am not alone. Bless her. Happy tears ? x
So my day went from bad to worse. Am in hospital with Neutropenic Sepsis. My levels at 0.5
On IV antibiotics and fluids. Waiting for chest x ray. The mouth ulcers still agony. But at least am in the best place. X
Oh god Trish!!!
Sending hugs. What happened? Are you feeling any better? Do you have support?
Here for you x
Oh no Trish that’s not good, but as you say you are in the best place. Big hug xxx
Have a couple of new cancer friends in the area. But family miles away. Ill be ok. Just want sleep but got wait the nurse swap antibiotics over to fluids. Then can hopefully sleep til 2am when they wake me up for obs. Thanku all of you. I would be lost without this site. Sweet dreams all xx
Trisha69, omg poor you, hoping you get the infection under control quick.
How did you realise you needed the hospital was it that you were feeling far worse outside the chemo SEs or was it raised temperature?
I’ll be thinking of you and wishing you a speedy recovery.
Keep us updated xxxxxxxx
Keep in touch Trish. I hope you get some rest. X x x
Anniej, your in as well. 3rd time this is really hitting you hard I’m so sorry is there a connection are you reacting on a drug or sometime or is it just bad luck and an unrelated infection each time?
Are you on the mend now does it look like you can get home soon?
Thinking of you also wishing get strong quick xxxxx
Annie that sounds awful. How are you feeling now?
I stupidly assume when we don’t hear from people for a while that they are coping so well they don’t need to chat. Annie we are here for you.
Sending hugs x
Gosh ladies big big hugs to you both must a scary experience. Hope you both make speedy recovery xx
Anniej are they changing or stopping your chemo now?
Treehouse that note from your step daughter is lovely made me smile x
Too right well done hubby!!!
Have they recommend infection reduction methods for home? Or is this just really bad luck? I often think I should be using proper wipes on my tummy before I do my injections. I use hand sanitizer.
You are sounding so brave Annie. X ??
Was just thinking the same treehouse!
Well done anniej s hubby! Must be more scary for him thinking about it now and what could have happened.
You are sounding very strong and positive anniej even after all you have been through. After all this there won’t ever be anything you can’t handle! Keep going, big hug xx
My throat was getting worse and used temperature gauge and after ibuprofen and paracetamol 2 hours earlier ir was 37.7 & had a banging head. The hospital said come straight in. They immediately put me on IV antibiotics and took bloods. I didn’t know til 4 hours later that was Neutropenic. My reading was 0.5. Am in isolation and tired and fed up and still my throat is killing. Rant over. Thank you for listening x
Oh Anniej. In the same boat. Hope your getting lots of support! Where in the UK r u? Im in Devon and the hospital ia brill. Mt ward isn’t open at the weekend so am on a side room on mens side of the Acute Dependency Unit. Sending hugs xoxox
Not had any injections as yet. Just IV antibiotics fluids and Oramorph which I think is a morphine based pain killer. Got 3 hours sleep. Soneone coughing in the ward. Had sleeping tablets too. But am a light sleeper and thw throat a problem. Big hugs xoxox