Thats a nice idea treehouse . I think that they are all amazing too.
My onc has also said the weekly Pacitaxol isn’t as harsh as EC too . So we ll see.
Has anyone else claimed or in the process of claiming for pip payments? I didn’t know you could but my friend has just had her claim accepted so maybe worth looking into? X
Hi Mai7 yes definitely a pattern to my tummy trouble. It is manageable but. Bottom is very sore as per conversation 2 days ago. I really can predict which bits break and when now. It starts a mouth and works its way through my digestive system.
Katie I took out critical illness cover and am in the process of a claim. Will let you know what happens. I was going to bring it up if and when it was resolved.
Treehouse I also had critical illness cover and I made a successful claim. The pip (personal independent paymemt) claims are a non means tested benefit from the goverment. My friend who has just finished her chemo made a claim and has been successful so I’m going to have look into it.
Hope everyone else is doing ok xx
I’ve feel like I’ve used everything on mouth/throat problems. Started a few days ago with the bicarbonate, Gengigel gel and mouthwash and cleaning teeth after every meal which has helped the ulcers. Now with sore throat have stepped up to Gelclair, Difflam and paracetamol! It is a bit better than last time no white patches but still sore.
Also have stomach tenderness so just had bath which was nice. Not logging many work hours.
Must be nice to have your son home Mai and to make the most of the good days. My son is here until Friday which is lovely (when he gets paid!!!). He has been through uni and is out the other side.
Hi rosie. Am on all of the above. I find difflam the best but also given Nysatin. You swill it and swallow. Coats the mouth.
.Also Xylocaine 10 mg spray which numbs it all for a little while. The hospital gave me these and have helped. Am feeling the pain with you! Have just been discharged from hospital and on way home. Let me know how u get on x
Rosie and Trish it sounds horrible. I think that must be the FEC curse. I hope you find something that soothes. I remember someone mentioned frozen yogurt. Was going to try it myself when I eventually get out of the house.
The sore mouth sounds horrible. I’ve been lucky so far but had Benzydamine in my goody bag just in case. Not sure if it works but as everything else RBH has given me has been spot on it’s worth checking out. Here’s the link for PIP. gov.uk/pip/overview
Hi all,
I’ve not got any type of insurance not even on mortgage because I had genetic testing 15 years ago even though they were unable then to identify anything (due to lack of knowledge outside of BRCA genes) back then and no living relative to test against it was abandoned (I saw them again today as I am now the living relative but results will take around six months Xmas time) anyway because of the testing any life or illness cover was difficult or so increadably expensive I haven’t taken any!!
I popped in2 the oncology ward today because I was told my picc Line would be done this week and I hadn’t yet heard anything. When they chased it hasn’t yet been processed but they said a space they could fit me in tomorrow so it’s booked tomorrow morning 10am I’m so nervous and worried sick over it. I had assumed I’d be put 2 sleep but I’m sure the nurse told me I’d be awake and able 2 drive later in the afternoon. I’ve got other appointments later in the day.
Can anyone tell me what actually happens when you have it put in??
Xxxx
Glad your home Trisha must feel great being back in your own home out of the hospital. Take it easy and look after yourself with plenty of rest xxxx
Glad you are home and staying positive Trish. I guess knowing what is to come helps you prepare. I know I am half way through chemo but that is a small part of this very long journey. One step at a time. X x
Oh forgot to mention my bottom problem got worse on Sunday it was like trying to pass glass and so much bleeding. The pain was constant even watching tv in the chair so I called the help line and was told to visit A&E
So five hours and an examination later I was told it was a fissure. As they take 2-3 weeks to heal (sometimes longer) the chances are it won’t go until chemo and steroids finish. They told me to drink fibre drinks daily keeping eveything toothpaste consistency so avoiding making it worse and then gave me a numbing cream that I can try and apply 20 mins before going to the loo!!!
WolfEE, sorry to hear your sill suffering but glad you went and got it checked out. At least you now have some measures in place to try to alleviate the symptoms. If it follows a pattern in your treatment cycle you’ll know when to prepare next time.
Glad you’re back home Trisha.
AnnieJ, how are you getting on?
Ooh Wolfee I feel for you . I am similar with diarrhoea causing burning. Not much blood but a real pain in the ar**.
If it’s not one thing it’s another.
Trish we are similar with both being HER2. ?
Hi WolfEE, I hope you’re feeling better today and the PICC line fitting goes well. Like Trisha I found it very straightforward and quick, the longest bit seemed to bemaking sure everythingwas sterile which is reassuring. Trisha, I hope you had a good night’s sleep in your own bed. X
Morning ladies.
Hope you got a good sleep Trish and you take it was today.
Wolfee, thinking of you today with your line fitting. ?
Mai7, good luck with onc today, fingers crossed for tomorrow.
Annie A treatment 3 ? good luck.
Anniej thinking of you. Really hope you are ok x
Good to hear from you Annie. Are you at home or still in hosp?
Manuka has been my go to since I started. I have 6 in the cupboard as everyone brings them as gifts ? ?
Thanks Trish, throat is a lot better today. Hope yours is too. Will definitely ask for something stronger from onc next time. Although throwing everything at it does seem to have shortened the agony.
WolfEE - hope all has gone well today. Six months seems a long time for genetic results. Where was it done? I got mine in 7 weeks. I’m the same with insurance, have contacted genetics before but for personal reasons at that time my sister did not want to be tested and surgeon would not remove healthy breasts without knowing I had gene. Maybe could have paid privately, but all too late now!!! Sort of thing I dwell on when I wake at 4am
Hope onc appt ok Mai - will be thinking of you tomorrow
Have got some Manuka honey but don’t really like it - think I’m starting to associate it with chemo
Ooh I just got an email saying that someone pulled out of a look good session and I was first on reserve list.
20th July. Looking forward to it, just hope I am well enough after next treatment.
I also have a work do and wedding coming up. I feel so crappy for a whole week after treatment I am scared to make plans and get my hopes up. ?
EC round 3 went well, appointments so much quicker when not using the cold cap. Been sent home with my usual goodie bag but with extra steroids to take before my next round which changes to taxotere.
I read a lot about ladies going to oncologist appointments, I haven’t seen mine since he gave me my treatment plan 
have seen my surgeon though so maybe that’s the way it goes for me having had my chemo first.
Feeling slightly wiped out so I’m having a rest in bed ready for the 5 - 6 days ahead.
Hope everyone is well x
That is interesting. I just assumed you all had steroids before treatment like me. What were you getting on fec?