May 2017 chemo starters

They ask about my hands a lot!!! So far no problem I am still sewing ?. The steroids help me feel good for first 3 days but it does mean 1 more sleepless night.

Fantastic news about lump shrinking and going squishy Mai. That must make your day. So why does treatment change halfway? I feel so out of your loop.
Do you think they are using me as a guinea pig ? ?
It is nice to feel special but I do wonder sometimes ?

Rosie, I think the genetics will take so long because from testing about 10 or more years ago I already know that I’m not BRACA positive but back then that was all they really tested for and to continue they needed a living relative but there wasn’t one (I am now the living relative) the braca test doesn’t take so long but other genes take longer they are still not sure they will be able to identify it??

Mai, sooooooooo glad your responding so well and all that shrinking xxx

Treehouse, I can understand your anxiety over having 2 her dressed up and party weddings and things if you can get yourself out I’m sure it will do you and your confidence wonders. X

So picc Line is in the procedure wasn’t as bad as I’d imagined it to be but it has been put in low down she said that’s just the way my vein was and it needed to be so it catches on my crease of arm but on Friday they will change the dressing and try make it a bit more comfortable. At the moment I’m not so bothered I’m still just happy and relived that it’s in I had been so worried about it.

MKJ, do you cover your picc at night?

Misyangel. Movicoll is my new best friend I love it.

anniej, I really hope the flush goes ok on Thursday, easier said than done but try and not think about it until Thursday enjoy and we will all keep eveything crossed for you. Xxxxx

Thanks Wolfee.
And Mai you had me howling out loud, my son asked what was funny. ?

I wear like a tubi grip thing all the time. But its not elasticated. Stops me catching the dangly bit on bedding or clothes. Glad it went well for you :slight_smile:

Wolfee well done for the picc line. I felt for you, I know the idea gives me the wibbles. Very brave ladies stronger than we think we are.
Really should give your self credit today.
At the risk of sounding hippy dippy clappy circle , maybe we should all think about our ’ strong ? ’ moments and celebrate those. This journey is changing us all…and some ways stronger and more resilient.
feel free to tell me to shut up ?

Good morning ? ? ? ? ? ? ?
I had a great night sleep and woke up feeling NORMAL.
God that feels good.
Today is a good day ?

Good luck for treatment today Mai
Thinking of you today Annie .

Hope everyone is ok.

? x

Mai - so pleased to hear about your shrinkage, let that chemo work its magic again today!

 

treehouse - glad you finally feel normal again. It really is a cause for celebration these days. Normal feels so fantastic.

Treehouse a normal day how wonderful few and far between but oh how lovely when the come. Just think one day (and it will come) we will have days, weeks of normal days. Wish we could all fast forward a year have a peep see how we feel and then jump back and do it but with knowledge that we will be normal again!! One day we will day to someone well… I remember… when I was doing the chemo… or god it’s a bit of a memory but if I remember correctly when I was on chemo!!!

I have kodi and amazon fire stick so can watch most things but I do love my box sets. At the moment I’m watching once upon a time it’s based on fairy tail characters trapped in the modern world sounds weird and childish but it’s really really good. Also I’m watching sons of anarchy. But I’m counting down the days for the new game of thrones (can’t wait)

My sister in law brought me her old Ally mcbeal DVDs.
?
That is definitely going to be my strongest chemo memory.

Treehouse, glad you’re having a good day. WolfEE, good to hear the PICC fitting went well. I tend to have a longer length of bandage which I take above it and then fold over as a syringe sandwich I found this fairly comfortable as mine is quite close to the elbow too. You’ll find a way that’s comfortable for you. Mai7 great to hear the lump is going soft and shrinking. Go zap it and show it who’s the boss. I’m just out for my walk. Research suggests that half an hour walking 5 times a week reduces breast cancer recurrence rate by 50%. Have a good day everyone. X

MKJ - I had just made myself an omelette sandwich (sounds awful but the craving was there) then sat down 2 read and saw the syringe sandwich description ? Not sure what’s the strangest image a syringe sandwich or omelette sandwich. Is that bandage thing something I can buy from boots? The piece the hospital put on yesterday is short and I think I would like 2 fold it over plus maybe change it every few days I think it would fall apart in the machine. I’m going 2 order a proper one online once I measure my arm. I’ll use that during the day and then the bandage sandwich at night.

Also (may wait until after surgery) I think I may get a Fitbit encourage me 2 walk more. 50% that is a big big reason 2 get walking and it doesn’t cost anything.

Morning all, glad to hear we are all on the up at least for now ! Good luck to all of you on treatment.

MJK the walking is good way to keep active and clear the head! I manage to walk my dog for half an hour a day and it really does help with chemo se .

Treehouse -ally mcbeal I use to love it!!!

Just back from my boys singing morning at school so feeling all marshmallowy! Love that new word treehouse xx

Do you go out walking on your own? I like walking in my own but a little worried 2 do so during chemo incase I walk 2 far and a sleepy episode happens and I struggle 2 get back. Just paranoid really. My sister works late sometimes doesn’t get in until 8 then by the time she has eaten she doesn’t always feel like going out again. It’s partly my laziness also because evenings I have other friends who I’m sure if I ask would come walking with me but I find seeing other friends difficult because the topic of conversation always ends up back on me and my treatment etc and I get sick of hearing my own voice repeating eveytbing over and over. I always say right I’m feeling good let’s not talk about how I’m feeling what’s ahead or mention ‘c’ and then somehow 15 mins later it’s being discussed ? I know it’s a massive part of our lives right now so it does come up and tbh as hard as I try and not make it my entire life at the moment and keep things normal it’s actually difficult becaue like it or not it is our entire being at the moment eveytbing we do, going out, eating, working, sitting in a park, resting, shopping, cleaning the house EVERYTHING has consequences it is on mind and dictating what we do, don’t do, how we do it etc with every little thing we do. Even going 2 the toilet or brushing out teeth there is no escaping it.

Yeah wolfee I go on my own. My chemo se haven’t been too harsh so far so feel confident on my own. I only ever really walk locally on roads so always someone around if I need it but I’ve been fine x

I remember that was mai7 the other day. It was Rimmel brow away I believe from the wonderful amazon
X

Brow this way even!!

I go walking on my own. Luckily the chemo hasn’t been too bad although dose 2 and heat last week meant I didn’t manage it. I don’t have a dog but the route I go has so many dog walkers that help would always be there if I needed it. I use my Samsung Health app on my phone (back pocket) to track steps and so I van call for help if needed. WolfEE, I was given a roll of tubigrip by the community nursing team. Failing that a clean tubigrip would do it. Not recommended for human consumption though! ?? Hopetoday went well Mai7.

Big hug Anniej. So glad they are making this work for you. I understand the mix of emotions.

I just did the school run and a tiny person covered in chicken pox walked right past me. I am trying not to freak out but have used anti bac on every bit of exposed skin.
Probably pointless as I think chicken pox is a virus.
Eeeek