May 2025 chemo starters

Hi @sim2 yep I think the fatigue, once the steroids wear off, seems to be worse each time. Some days I can hardly stay awake :yawning_face:
I’m trying to get out for a walk but not as regularly as before. I’ve been doing some jigsaws as they’re easy to pick up and leave depending on how you feel and a friend has just sent me a Lego orchid to build to pass the time!! I’m really struggling to read anything though as can’t really concentrate. As you say it’s quite frustrating to be bored but lacking the energy to do something about it. Take care

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Lego Orchid sounds fun :slight_smile:

My husband told me to stop spending money, so I’m having a spend free week and Piling my purchases for next week :smiley: I think a Hammock and a parasol is in order so I can then sleep outside haha.

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Hi there I’m 8 weeks into weekly pac after 3 ecs. EC is def harder but pax is v tiring. As soon as I start to get my energy back on the Monday then it’s time for the next one on the Tuesday so it’s relentless, and the fatigue builds week on week. So try and rest when you can. On EC i was wiped out for 10 days but on weekly I still can get dressed. Water the garden etc and go shopping in the morning but in the afternoon I need to go to bed x

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Hello everyone I hope you are all managing the best you can despite the fact we have yet another heatwave :hot_face: and are suffering the accumulated effects of chemo. Although in some ways it’s nice to not have any hair to worry about! I have my fifth round of chemo and first session of EC on Monday. I was pretty wiped out last weekend by final round of paclitaxel so looking forward to what EC brings!! Thinking of you all and sending hugs :heart:

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