Welcome to @bea4 @sharync and @mssteel . This is such a lovely group. ![]()
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We love, and respect, grumbles as well as successes. ![]()
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. Thankyou for sharing your stories. Would be awful to not be able to share the tough stuff. Chemo and treatment is tough. Diagnosis is tough. But sharing gets us all through it.
So speak as you feel. Xxx![]()
So glad @alannah172 that your first session went well. And yes shaving head is tough.
But id rather that than clumps in the bath and bed. I use my wigs/scarves when I go out. Even though I have a PIXIE. I just feel more comfortable. Plus the weather is freezing ![]()
so they make me warm ![]()
Cancer Hair Care provide FREE wigs. So check them out. They are lovely. And they support you through hair loss.
All your symptoms are almost identical to mine…red face, cheeks
nausea, but not sick, on and off
less appetite
garbage fatigue constant
, PICC bleeding and stabbing daily
. Bleeding tongue once,
wobbly woozy a lot ![]()
What Ive done (have no idea if it helped but I think it did)![]()
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Eaten light meals, plenty of mixed protein types (fish at 4am![]()
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), veg/ fruit (lots), carbs, . NO fry ups
sad loss. .. Ive never really “wanted” to eat, but I DO. I can still taste food which is good. Homemade Smoothies (4/5 fruits) for breakfast are a good start to the day.
Took main anti sickness first 3 days. But I had another type “as and when”. So I took 3 extra days of 2 a day. Even though I DIDNT feel sick. But today Ive had none. Ive been fine.
Lots of:
juice… mixed (always ginger cordial with root ginger added), water/milk/smoothies/herbal teas. NO coffee/tea. Sick of going to the toilet
but Ive felt better washing out the chemo drugs. Really needed to drink.
Felt I have TOXIC blood…. ![]()
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PICC pain….Seems it takes 3/4 wks to BED in!!! ![]()
. It has tiny hooks at the end which are what stabs us. The hooks hold it in place. I have NO love for the PICC. I hate it like i hated the drain. But, it makes treatment easier.
I struggle with LIMBO so ended up with cling film and quick shower. LIMBO is really rigid so I feel I am going to pull the PICC out. I asked the Nurse at PICC cleaning today…re ideas to use it… She replied “ I have no idea. I havent seen one for 10years. Its the Pharmacists who give them out” ![]()
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I cant sleep on my sides with PICC (L)and bad lymph removal pain (R) . I hate back sleeping ![]()
. But I did roll over 3days ago and I ended up with 3days of pains around my chest/collarbones. Unnerving but its fine now.
. Wont do that again. So now I jam myself in with VShaped pillow. Lay like a corps. ![]()
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Fatigue …. ![]()
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Chronic, as I also have M.E. rest rest rest rest, as much as possible. If you can,( hard for young mums, and those working
), but if I didnt rest/sleep, I would crash.
So eg. Today I came home from the Hospital ( my new day out ![]()
) ate light lunch, drank loads, then bed for 3hrs. ![]()
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The bed that has saved my life? An old adjustable bed from charity shop. Its been a game changer. Just sitting up abit helps. But you can buy mattress wedges from Disability Websites. In fact Ive embraced being hopeless. Ive bought: bath board; bath Support bar; step for bath and bed; Mainly because I was worried about fainting, as I live on my own. So putting in aids means I can sit, or support myself, if I feel woozy in the shower etc. Its a bath shower so I have to step into the bath.
Bought new Freely TV for bedroom. (Luxury). ![]()
Bleeding tongue….fine. soft toothbrush and told to swish with vitamin C effervescent tablets (do not drink them though, just swish). They initially advised pineapple but that MAKES my lips bleed
. Hence the Vitamin C.
Today, Now??? I feel a bit better. Less symptoms. Still tired( But that is the new me anyway). But less TOXIC.
I am aware chemo is cumulative, hence hair falling out/bleeding tongue etc, but if the symptoms ease after treatment even a little bit, that is doable. ![]()
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not easy though.
And my heart goes out to @mssteel having to have more chemo. So sending you an extra hug. ![]()
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