May be of interest to anyone in the SE/Brighton area

Hi all

I’ve posted this as it was passed on to me, but it’s item 6 that’s of most immediate interest to people in the UK.

"American Lymphedema Framework Project Updates:

  1. We presented a paper on the ALFP stakeholders meeting at the International Society of Lymphology in Sydney, September 21-25, 2009.

  2. A manuscript on the process and outcomes of the ALFP stakeholders open space meeting has been published in the fall 2009 issue of the Journal of Lymphoedema (

  3. Under the guidance of the research and executive committees, the ALFP conducted a lymphedema therapist survey to ascertain the current practices of lymphedema therapists in the US in November 2009.

  4. On November 18, 2009, a MEDCAC meeting was held to discuss the management of secondary lymphedema in the United States. Jane Armer, PhD, RN, FAAN, and Director of the ALFP, was invited as one of the two guest speakers for the meeting to talk about the current state of research in lymphedema and to discuss the next steps for research. Janice Cormier, MD, MPH, and executive committee member of the ALFP, was invited to be a guest panel member at the meeting. Several steering committee members and stakeholders of the ALFP were also in attendance. Meeting results can be found at Centers for Medicare & Medicaid Services website.

  5. Current projects underway include the analysis of data collected from the lymphedema therapist survey and a literature review for the update of the UK Best Practice Document (BPD) for application in the US. Review of the BPD by the ALFP Best Practices Committee took place during fall 2009 and is continuing in winter 2010. Review and selection of the literature by two independent reviewers will take place in 2010, and distribution of the updated document is projected for 2011.

  6. The International Lymphoedema Framework (ILF) will hold the 2nd ILF Conference in Brighton Centre, UK, March 23-25, 2010. For more information please visit

  7. A 2009 annual progress report of the ALFP will soon be available at