Hi Joandbasilthefog, I have finished chemo now and have my op on Thursday. I was told op is usually between 4-6 weeks after the last chemo was given. I have also been that rads is usually 6 weeks after the op. But I think both of these are approx and can vary from person to person. I hope chemo 5 and 6 go ok for you x
Hi all,
sorry for the silence. I’ve been feeling better so working and out and about a bit. What a difference a week makes. Got my taste buds back after about day 11 so that helped too. Now on count down to T number 2 on Friday so steroids on Thursday…always such a shame when you start to feel better. Bloods tomorrow and hopefully ok…it is strange to want to be well enough to have toxins pumped into you isn’t it? The nurse who takes my blood always texts me with ‘bloods good for chemo’ with a smiley face. Everyone seems to be saying that the first T is the worst so I’m holding onto that for all I’m worth as it would be good to not feel so tired but we’ll see. I don’t think I can avoid the sickly feeling or loss of taste buds altogether but I’ll settle for avoiding an A&E visit! This is number 5 so my last T will be on 7th Sept as long as bloods are ok.
Jem, I hope you’re feeling ok after your chemo session. Hope everyone else isn’t feeling too bad this week.
Will be back soon,
Take care all, Tropic_al xx
@tropical. I’m same as you 5th cycle Friday. Just had bloods. Hoping side effects are better than last time. And last chemo on the 7th sept so we will be crossing the finish line together. I don’t have to have radiotherapy and had my op in March so that’s me done I think.
Hope everyone doing ok
Leanne xx
Neuts were up to 2.2 from 0.75 yesterday so 6th chemo is going ahead as planned thank god. Don’t know if eating fruit green veg and manuka honey helped or not but seems to work for me. Went to work today and just did normal stuff last night after work. Didn’t sleep well though as thinking about today and appointment re survey on 28th.
I wonder how low my nests actually went though? They may reduce the dose they said but didn’t this time. Thanks all for advice and support.
Linda - what a difference a day makes ? pleased to hear heirs back up. Hope all is going well with chemo today. Hoping for all us t ladies side effects much better this cycle,
Joandvasilthedog - I had the palonestron via a drip yesterday- 1st dose as usual have arkensio (not sure spelling correct)- for the first time I felt really sick during chemo, might change back for last dose. How are you on it? Sorry to hear how your diabetes has not been good with all the other drugs. I agree with you that our bodies have been through an awful lot over the past few months, but we are nearly there the finishing line is now in sight. The flight to Greece is ready to land in a short time. Do you know what surgery you are having ?
Mystard and grey - think you will be the first past the finish line ??. I get sweats too- thought it might be hot flushes, might be chemo sweats. Like you I’ve had the full treatment- 2 surgeries, chemo and then rads followed by meds for 5 years- but the chemo had been the hardest thing ever.
Take care all, hope your bloods are good to go for cycle 5 Tropical and Leanne
?
Oops Linda meant neuts are back up!
Hi everyone just catching up on how everyone is doing and Im another one with the night sweats I never knew they were a se either. My first chemo was in may and my last period was in April so they stopped instantly too. I have to sleep with a fan on my bedside table. I’ve also put on a stone since starting treatment and can’t shift it at all , Im hoping that after I’ve finished treatment I can loose it. Been practicing holding my breath for my rads scan tomorrow hope all goes well . Big hugs to everyone we’re nearly there ladies 
Hi jem the drug name was Akynzeo so dont know it that was the same . Feeling sicky and tired today but my blood sugars are high because last day of steriods so might be combination. I was hoping for a wonder cure as its my 14 yr old sons birthday tmw and mine on Friday ( slightly older) … i dont want to be sick into the birthday chinese ! … i spoke to Bcnurse today for first time since starting chemo after leaving message and she was fab at talking through various scenarios and time scales . Michele you were spot on 4-6 weeks after last chemo but it will be when I have fully recovered from the chemo as i need to be a full strength. We discussed going back to work but probably full time might not help recovery so might get signed off and see how i go . I have to wait for my next scan and then discuss with new surgeon ( my oncologist has just retired as well wont take it personally !!) . I was told they will look at the ‘ safest outcome’ and it will be my choice. It was heavily leaning towards a mastectomy and rads before chemo so we’ll have to see. I also have evidence in nodes so will need clearance too . She said I could have reconstruction at any point but generally a year after rads but I am not sure . My bikini days are over a long time ago but will see how i go. … See lots of you having the sweats … i just look like aunt sally with rosy cheeks and forhead . I have a ceiling fan on constantly… but temps are fine . Like Tanya an absence of periods probably are in the mix too or just the cocktail of anti sick tablets , anti heartburn , steriods, chemo and other tablets !?..I am just going to sleep it out i think till middle of September!! Keep going Chemo ladies xx
@Linda well done! My bloods ok too so chemo today - dreading it. Sweats - so relieved to see this!! And I’m only on FEC but still a massive problem, I also have a lot of pain at night in my bones and also my ribs where I had the mastectomy. Can’t wait for all this to be over! Xxx
Went to work today and came straight home as someone sitting near me has a cold. Only day 2 but unless she is in another room I can’t risk it. She’s off tomorrow so back then.Def seeing surgeon on 28th then back again for an mri at the end of chemo.
Herts - strange how things change - but happy to hear bloods are good for chemo - hope all goes well today. Another 1✅.
Steroids ?absolutely exhausted but sleep was hard to find last night. Hoping tonight better.
Joandbasilthedog - yes the same drug - thought my spellcheck g was a bit off the scale. For me this worked really well and didn’t have any nausea- hope the same for you.
Sharing our experiences of sweats have been really reassuring- Knowing I’m not the only one. Thanks
Jem xx
Well, just back from a pre chemo assessment before the final chemo on Monday.
And the excitment at reaching the finish line has been slightly marred by the possibility of needing a blood transfusion, due to low haemoglobin levels and crashing fatigue.
It all hinges on tomorrow morning’s blood test results 
The plus side is that it won’t affect my chemo date, as it would be done a few days after.
But I’m apprehensive.
Has anyone here had to gave a blood transfusion during chemo?
Sarah x
@joandbastilthedaog. My son is 16 tomorrow (same day as you) and I have chemo in morning so going for a meal tonight in case I’m not feeling up to it ?
@tanya I’ve also put a stone on since starting chemo. The steroids make me want to eat constantly.
And night sweats can be a nightmare. The things we have to endure hey ladies
Xx
Sarah sorry you might need a transfusion - what levels have your heamaglobin crashed too? Keep your focus on final chemo - what a mile stone you will have reached?. Time to ring the ?. Take care
@JemPD…after the chemo nurse mentioned the words blood transfusion I didn’t take much else in but I think the level was 101 and anything under 100 would mean a transfusion as I’ve had crashing fatigue for most of the last month, plus four weeks of radiation to go after chemo.
She said the radiation would probably swing it in favour of the blood transfusion as it woulx be a bad idea to go into radiation with low haemoglobin levels.
Sarah x
I had a blood transfusion after my op in March. It sounds so scary but it’s just a drip not painful. And it gives you energy good luck Sarah xx
Hope you are feeling better JemPD after the sickness hit you.
I am on my feeling good week, no side effects apart from the usual tiredness and not sleeping well but managing to work
Regarding reconstruction surgery, I have been told that mine won’t happen until 12 months post radiation treatment. It seems that each area/individual case is different
I think one of the ladies on our October thread had to have a blood transfusion near the end of chemo too, it’s quite a common thing so please keep ???we are having no wing walkers this round, captain costas says so, the 
is coming in over all this pretty Greek isles ladies, can you see the sparkling blue water and the pretty sugar cube white wash Greek houses? Not long now till we’ll have you on the op bus or the rads bus en route to club Tropicana ??? don’t forget to get you meet up arranged too, us Oct ladies had ???One in London a couple of weeks ago ???
Shi xx
Hi all,
Been reading all of your stories. Sorry you may need a transfusion Sarah but keep positive. Hope it all goes well.
I’ve had a great few days of feeling well, working and even went out for dinner. Bloods good…which can only mean one thing, chemo 5 tomorrow. Oh well one more down and one less time to suffer the cold cap! Interesting listening to the sweats comments. I haven’t had a period since April …every cloud…and get random hot sweats so could be a combination of menopause and chemo. Have had indigestion for the first time on T so my oncologist prescribed another drug to add to the mix today…just can’t get enough of these drugs! Plucked up the courage to ask about radio, apparently I’m borderline so will find out tomorrow if I’ll have it. I had an implant recon straight away do that could be ruined but will have to take the risk and see if I need radio. One more thing to endure.
I don’t seem to have too much of a problem with sleeping after the steroids, it’s the heat that was killing me. I don’t take any steroids after 2pm. Here’s hoping for an A&E free cycle.
Well done everyone…keep going. We’re getting there!
Lots of hugs to all, Tropic_al x