May chemo starters 2018

Sarah ???whoop, whooppp we’ll done, so you’ll be getting the round in the airport lounge for rest of the ladies, Leanne, glad to hear you are home now catch up on the ? nearly there everyone, ? ready for ops :white_check_mark: ? ready for rads :white_check_mark: ops ladies, front fasteners by pyjamas and bras ( good zip front bra and racer back which is comfortable for nodes too from m&s go up a size or two because of swelling after op I.evif a 36 then get a 40) take hand cream and lip balm for some reason your hands and lips get dry after op. Rads ladies creams with no sos, dr organically aloe Vera gel with t a tree was good, keep in fridge and one in handbag for slapping on when you are out and about, other good ones ladies used was e45, Moogoo, aveno drink lots of water too helped with fatigue which rads can cause ???You are all ???and get ready to sing ooooopppphhhhhh as you get off in ?? ???:sparkles::sparkles::sparkles::sparkles:Shi xx

Slightly better day here - no energy and some nausea but everything’s relative!

@leanne I hope no further setbacks, and the SE’s are being managed.

Op tips from me (v basic one) - take the advice from hospital and drink plenty of fluids and lots of carbs in the 48 hours before. For me I wish I had turned down codeine in the first 48 hours because of constipation complications. And one for further down the line but a friend started swimming 4 weeks after DMX and node clearance and after 4 sessions the pain/stiffness under her arm had gone. Xxx

Herts - so pleased you are feeling a little better today ?. Me too ?bone pain gone- meds reduces drastically, still have the horrid metal mouth but feeling a little more ‘me’ like - was beginning to think the whole cycle would be rubbish.
Hope se are starting to diminish for others- back to the 1 day at a time.
We’re off on hols to Somerset on Friday morning/ not even done the washing ?- but after a better day somehow will be ready.
Jem xx

Hets, Leanne, Linda, Tropic, hope you are all feeling better than earlier this week.
Tanya, I am in Velindre for my 2nd T this afternoon. Managed 2.5 hours sleep after 16mg of the lovely dexamethosone even though i take my 2nd dose no later than 1pm. Good luck with your last one on Friday.
We are all getting closer to the finish line so get packing for Greece ??? we can do this.

Thanks Jem,
Have a lovely time in Somerset ??

Hi all

Hope you’re all feeling ok today. Don’t want to tempt fate today on day 7 but haven’t been to A&E this cycle yet! Had a few days of aches, particularly lower back and around hips but have felt much better than on the first T cycle in general…maybe the cooler weather has helped too as sleeping a big better, though last night wasn’t amazing as was so hot in our house.

 

Hopefully as people have said the first T cycle is the worst. Food is tasting a bit strange over these days so not particularly enjoying it again but feeling less sicky with bile in mouth and my mouth isn’t so sore. Maybe the omeprazole is helping there…thought that one more drug wouldn’t hurt! 

 

Thanks for your constant support and advice Shi :heart:

 

My advice for after your op is to get active and do your exercises every day, lots, then you’ll get the movement back in good time. I have several Physio friends so was pushed to make sure I kept them up. It worked though and I had good movement quickly. 

 

We’re all all doing so well and I can see Greece on the horizon now.

Hope your last cycle is going well Sarah…you’re leading us in ?

 

Tropic x

Been to see onc this morning (plus still feeling v nauseous and a bit dizzy). Long story but he’s stopped my chemo so no cycle 6 - risks with clot, passing out, hip pain etc have become too high. I’m struggling with it but will come to terms with it over the next couple of days. I does mean without realising it I’m at the end of this phase and fingers crossed no more (already have a prescription for tamoxifen!). I also have an MRI scan on my hip and local next week to remove the port. All too overwhelming. But on the positive side my daughter got fantastic GCSE results - kids really do keep u going don’t they! X

??tropical about exercises post op, don’t do too much too soon, get some sticky dots so you can mark your daily progress up the door and door frame, give you indication how well you are doing daily and make you ??because you can see daily progress ???Keep going girls that 2 in airport lounge getting the round in now. ???:white_check_mark::white_check_mark::white_check_mark:???Herts well done beautiful you’ve completed chemo too ???:sparkles::sparkles::sparkles::sparkles:Shi xx

Hets many congratulations to your daughter too for brilliant gcse result ???:sparkles::sparkles::sparkles:Shi xx

Mixed feelings Hets I am sure but you are finished with the poison, let’s celebrate that. Great success for your daughter too.
I just returned from 5th chemo so one more to go and fingers crossed for less sever we this time.

Less severe se even!

Aww, Hets, I don’t know what to say.
Great that it’s over but maybe not the way you wanted it to end.

I’m day 5 after my last chemo and after the euphoria of finishing got plunged into the side effects I’d sort of glossed over in my head.

Bone pain and and a sljmy feeling mouth with dulled taste have marred the last two days for me, and I’ve really struggled to sleep at night due to feeling whacked and resting in the day.

Docetaxol certainly ends with a sting in its tail!

Sarah x

Hi Kip
My oncologist agreed to a reduction of 10% for docetaxel, that and the filgrastim injections kept me out of hospital for the last dose. Hope yours can come up with a plan to keep you at home. Great news about your son’s exam results, just got to love that warm fuzzy feeling when your kids make you proud ?
Jacq x

I’m Currently battling a nasty cold and chesty cough, my surgery is in nine days time and I really hope I’m over this bug well before then. I was checked out at hospital yesterday but as it’s a virus there’s nothing they can do but advise rest. Does anyone here know any immune boosting supplements? All suggestions gratefully accepted.
Jacq x

Hi ladies
So I’ve just washed my wig (dead cat) for the first time. I’ve been putting it off as I’ve grown quite attached to it and was nervous about it getting it all tangled. I Added fabric conditioner to the final rinse so I will be jasmine and orchid blossom scented!
Fingers crossed that my dead cat dries ok!
Jacq x

Hi Jaqb sorry to hear you have a bad cough and cold. I walk a lot and have read how this boosts immunity and can even reduce risk of infection after surgery. I also drink echinacea and elderberry tea, I don’t know if if helps but it tastes nice! Hope you feel better soon x

Thanks Michelle
I definitely need to get out and walk more. I know I would feel better after, but I haven’t had the energy. Need to push myself.
?

I know it is difficult to push yourself escpecially when you don’t feel well, do what you can hopefully it will help x

Oh I meant to say I had surgery a week ago and have enjoyed the post surgery tips you’ve all been giving, especially the swimming one! Thanks everyone x

Hello ladies x well done Sarah for finishing chemo. Today I crossed the finish line too, NO MORE CHEMO all went well straight in plus had an early appointment as it was my last. Got to ring the bell and photos too, now three weeks break before rads. So sorry to hear that some of you lovely ladies are having a rough time with the side effects I am so lucky that I have stayed away from hospital throughout my treatment. Wishing everyone one a speedy recovery and just remember the finishing line is getting closer xx