Just finished last chemo ? ? ding ding no bell in my unit tho. All went smoothly thank god after bad reaction last time was hoping I’d be ok. Just sitting waiting for my prescription to come up from pharmacy then home and chill. Booked a holiday for the beginning of October to celebrate.
I’m not on face book but on WhatsApp so if we could do a group on both that be fab.
Hope everyone doing ok have a good weekend xxx
Congratulations Leanne ??? you’ve done it?.
Well done Tropic and well done Leanne ???.. you have done it … now just get se out the way ! I am in bed feeling quesy having slept mostly yesterday. I plan to keep my head down for couple of days when hopefully start to see some signs of it going . Still waiting for appts to come through re next stage which is making me irritable… i am such a joy ! … i am on whats app but not facebook . Have managed not to all these years but can join in needs be for a special group ! Hope everyone has good weekend xx
Does nayone know if the risk of infection continues after chemo has finished & how long for? I guess its 3-6 weeks after chemo has finished but not sure whilst having radiotherapy if there is still a risk of infection? Does anyone know as I am being asked at work as we are expanding so they need to know what my requirements are. I am just in a corner so there is still a risk & currently in another office as someone has a possible infection as they have lost their voice almost. Thanks in advance. x
Well done Tropic and Leanne. ???
Hi Linda, it will take a month or two to get your immune system back to normal. There is one research paper which suggests nine months! Kx
Tropic_al ???well done you’ve done it.
Jacq- did you sort PICC line after district nurse pulled it?
Joandbasilthedog - hope resting today has helped. The good news here is bone pain OK?.
Planning on relaxing over weekend.
Linda - good question re immune system. I was going to ask nurses if I should have flu & pneumonia jab - usually have flu one as asthmatic- not sure if they are live viruses or not??
Xx
Hi Jem
Thanks for asking ? I’ve decided to ask when I go on Monday to have my drain removed. It’s a fifty mile round trip and I just couldn’t face the prospect of them asking me to come to the hospital. I just want to clarify that they do need to be careful as the district nurse made me feel that I was making a fuss about nothing. If I find out I need a chest X-ray to check it then I will get in touch with the district nurse manager. The care from my district nurses has been terribly hit and miss. Whereas the chemo nurses take such care over the dressing change and flush. It’s a simple procedure but I think the district nurses here need more training.
Jacq x
Hi Linda I think it’s about 6 months after chemo that you need to be bit vigilant for but best speak to your team and go with their advise 
Jacqb please don’t be too hard on the district nurses, they are overstretched and also don’t get given correct dressing to change you with either, I had the same after my op, it’s not their fault but I have to say her manner with you leaves a lot to be desired to say the least, maybe she’s got something going on in her life too and was not in the correct frame of mind when she was like that with you? ???Jem are you leading the conga round the busses ???There’s a good line on ladies now ??????well done all of you beautiful ???amazing ladies ???don’t forget the club Tropicana thread awaits when you’ve done ops and rads ???
Shi xx
Hi Sarah how are u x I’m exactly the same as you regarding the pain my legs ache really bad most of the time and hills are terrible I even get out of breath. I also get lower back pain kind of like period pain but without the period my last one was may so not sure if they will return or not. I have started walking every day and now doing 6000 steps but finding it hard to get to the recommended 10. I’m also finding it hard to get rid of the weight I put on through chemo which is a stone and a half and constantly feel bloated. But the same as you thank God no more steroids. Good luck for Monday let me know how you get on. Well done to everyone who has finished treatment and stay strong to you ladies who are nearly there x
@tanya this muscle fatigue after chemo finishes is definitely not something I was expecting!
Here’s hoping it’s short lived.
Have yoh started on Tamoxifen yet?
I’m hoping to avoid it until after radiation, but I have an oncologist appointment on 17th September and am expecting to be presented with the ominous box of tablets.
Sarah xx
Morning Tanya and Sarah - I experienced the muscle pain cycle 5- climbing hills and cycling. Not much strength in my hands at the mo. Consultant explained drugs attack all cells in body & muscles become weak. Slowly building up is the key- Tanya I’m walking too & finding a bit more difficult . I’m looking at yoga at Haven Breast Center. Think it will take time but I will need to be focussed- my main aim before Christmas is to build myself up- heatltjy eating and fitness .
Good news- not in hospital yesterday ??but the worst se day- slept most of the day & night! But just few days to get through.
Sarah - good luck for tomorrow. I have pre rads ct scan on Tuesday- did you have one? What happens? Rads start 24th for 3 weeks. Have script for Tamixifen??to start 3 weeks post chemo- feeling a bit worried about this.
Hope you all able to enjoy your day xx
Morning All , well this euphoria of the last chemo hasnt hit . I like you jem have been in bed since friday. The leg pains ( arthritis in knee from youthful gymnastics ?♀️ days) are constant . I have now exhausted all anti sick and convinced none of them work . I cant even take dear Basil out ?.. I think this is the lowest I have felt mentally since the whole diagnosis. It didnt help that yesterday to research what happens next re op rads and tamoxifen I found found myself reading pages of ladies with horrible side effects . Unlike you ladies who seem quite fit , i wasnt a runner or gym bunny before but I so realise the benefits of being in good shape when something like this hits. I want to get my body into a reasonable healthy state and these muscle aches are just stopping me even walking ! … sorry ? being miserable… everyone in family out today doing normal stuff and i have said i am fine just so they get on with stuff … sending a big hug to all … grumpy jo xxx
Hi Jo empathising - feeling the same today?.
Re tamoxifen- in my very positive way thinking of all the 1000s women who don’t have horrid side effects don’t write about it, therefore only a few. If have se then perhaps look at changing brand.
I’m trying to remind myself 1 cycle at a time, 1 step at a time.
My 12 year old bought his acoustic amp yesterday for his guitar- I’m trying to smile on the outside but ?inside.
Think we need to rest in Greece for a while ?
Take care xx
@jo and @jem sending a big hug xx
The pre radiation appointment is fine…I was nervous about gettingcthe tattoos but they are tiny and the procedure is quick and virtually painless.
You will talk with the radiology doctor before being lined up on the scanner to check everything is looking good on the computer.
Most bizarrely I had to strip my top half in a corner of the room with two radiologists present, yet was given a modesty gown to put on to walk the six steps to the machine 
Hope yob start to feel better soon.
Hard to celebrate the end of chdmo when the side effects are kicking on, and I definitely wasn’t prepared for the muscle pain.
Or the continuation of the random chemo/menopahsal sweats that leave me with a clammy head!
On the positivd sode my baby hair is looking quite fluffy now, although my lower eyelashes have now completely departed, leaving me with really watery eyes outside.
I also failed a field of vision eye test on one eye and have to be retested on Tuesday…the optician thinks it was due to fatigue and eye watering as it was at the end of an hour long appointment so fingers crossed!
I have heard that chemo affects the eyes and they can take months to return to normal so I’m hopi g it’s a temporary blip.
Sarah xx
Hi Ladies,
I have been reading everyone’s posts and hoping that you are all recovering and coping with side effects and emotions.
I am fighting off a cold which has been hanging on for a couple of weeks now. Last chemo this week so fingers crossed my bloods are okay with fighting this virus. I really want to ring that bell and join you all for cocktails on the beach xx
I am not keen on the tattoos and am going to ask re using a plastic see through cover that can be used instead and marked up with scars and birthmark. Has anyone else used anything else other than tattoos for radiotherapy?
Feeling very tired yesterday and today after finishing chemo on Wednesday but was the same last cycle. Been listening to the podcasts on Spotify which I recommend. I seem to have constipation again even though not taken any anti sickness tablets and my mouth is dry and gums are bleeding again . Hope everyone is ok as its a love!y sunny day in the south west! X
Hi all,
Just catching up with you all. The happiness of the last chemo soon disappears with SEs doesn’t it. Interesting reading your comments of achy muscles in legs as that’s exactly what I have too. Pretty tired today and finding it hard to get going on day 3. Guess we all need that sleep on the beach! I’m just going to take it easy for the next few days to get through the worst bits. Hoping to build up my exercise once the cycle three weeks are over but looks like it might take some time. Having Herceptin does make me want to try though.
Will also find out how long the immune system is lower for but at least I feel I can re-join society a little more soon ?.
My rads start in October so will be interested to see how you all get on. My mum went through it years ago and was fine but not after chemo. I’m trying to be positive about it and just get it done. One more thing to tick off the list ahead of winter.
if someone is starting up the Facebook group then let me know if I have to message someone with an email address. I’ve never set a what’s app group up before without having phone numbers of people as a contact, but if that’s the way to do it then message me your numbers with your name and I’ll attempt to do it ?.
Hugs to all X
Hugs to all suffering se today. We can do this, 1 day at a time . Relaxing on a beach in Greece is what we all need ?
Linda - apparently I won’t need tattoos - something about a new machine using lasers around the room??? I’ll let you know after Tuesday ct scan,
Tracey_Mac - nearly there ?we are waiting for you to join us post-chemo.
I’ll try and sort Facebook next few days after se,
Jem xx
Hi Jo and Jem
I know you are both having a difficult time emotionally today. It will get better this is just a bad day. You are at the end now and it’s surprising how quickly you can move on mentally from chemo once you are out of the cycle. You can do this not long now. Xx