Mine was because of spotting. Yes you should mention it just for your own peace of mind I know what it’s like …well I’m all clear for the next year ? and my pension came through so it’s win win at the moment lol xx
Sarah- my symptom was spotting too. My appointment was brought forward to today and I had the scan, womb lining 15 mm. They do not seem concerned as this is what tamo does. Will have hysteroscopy to make sure, which is the procedure I am a bit worried by. But will not have until returned from holiday in May. They are looking after us well, but I had the scan on the same ward where I had my mastectomy and it brought back how distressed I was then. Still also shows how far we have come. Hope all goes well Zuzy and Rachel and congrats to Marie on retirement. Hope others can make the 17th. Xx
Hi guys,
Sorry I haven’t popped on for a while but I have tried to stay away - kind of a New Year’s Resolution to move on. However, I do pop in and see how you all are from time to time and there seems to be so much going on I thought I needed to say hello.
I had extremely heavy bleeding about a year ago and was referred for a gynaecological investigation which ended up with me having a biopsy as I had thickened womb lining. It turned out to be my periods returning and nothing to worry about. Since that first one, the bleeding had not been as heavy (even as it was before) but comes regularly every 26 days!
I have also been back in the waiting room recently having had lower back pain and numbness/tingling in my leg (one side only). This had all the signs of being sciatica and is gradually improving anyway but I was sent for an xray to exclude bone cancer. Literally, just got the results and all looks ok - phew!
My lymphodema is well under control with the compression glove and daily exercise routines and I am now self-managing this. Sorry to hear yours has got worse Marie - good news about your early retirement though.
Anyway, just a note to say hello and let you all know I do think of you all the time. I probably won’t be back for a while but you are and will always be close to my heart. Love to you all. Jo x
Hi all, wanted to share good news, I had my yearly check up today and after a week of worry (had some breast pain and had a swollen area) nothing suspisious found. Just had an examination, no mamogramme because i have MRIs. So, very happy days. Also thought i would say for those of us on tamoxifen, after a year and a half on it i can say the hot flushes have subsided, some days none at all. Hope you are all ok. thinking of you all xx PS still waiting for hair to grow down and not out with curls lol
Sarah, please try not to over worry… The onc told me that the effects of chemo last for two years or so which is why they attribute some bleeding to this. Also, you are young and your body thinks you need periods!!?
Will miss seeing you today but looking forward to lunch with those that are coming.
We can definitely come up your way next time Sarah xxx
Lovely lunch today!
So next time we will come up to Marie and Sarah’s area… Is that ok with everyone!? We thought a weekend? Or just the Saturday and Sunday if not? I have cheekily asked Marie to research places to stay!
Xxx
Hi Sarah
Hope you are ok, I know it is stressful but we need to be reassured that they check it all out. Like Rachel, it turned out impossible to get to my womb for the biopsy so I will be having a general anaesthetic for this in the next two weeks. Rachel goes first though!
I am up and down, mostly up, but down when I feel I can’t move away from it all. Don’t want this to interfere with my tamoxifen- despite hot flushes I am really keen to take it. Generally I feel better now than ever -since treatment started.
It was lovely to see Aly, Suzanne and Rachel and be able to laugh as we remembered having to inject our tummies!
Hope all other moonbeams doing well two years on. Take care. Xx
Hello lovely ladies!
Well the whole hysterescopy under a general was easy peasy. It’s a very short time to be under so recovery is quicker although legally not allowed to drive for 48 hours. Anyway, just a bit of bleeding after but that’s stopped now, in fact, stopped last night. And in really good news, the lining of my womb has shrunk back since I stopped taking tamoxifen two weeks ago. They removed a polyps which was what was blocking entry to womb. They did a d and c (scrape) and a biopsy and two other things but I can’t remember what. So they did not find any signs of Cancer!! Whoop! They were surprised as scan had looked like I was stage one already. So obviously not taking tamoxifen is the way forward for me but don’t think I am telling anyone else to stop taking it. I see the oncologist on 25th June when I expect he will give me Anastrazole as he mentioned before. He will have the results of blood test then to be able to say definitively where I stand with regards to menopause.
Ladies, especially Sarah, who I know is very worried about her problems, please keep the faith. Us Moonbeams have our own guardian angel called karen who is doing her best for us.
Much love to all and thank you for your support. I really love and appreciate all of you
Rachel xxxx
Hi Sarah
It is really good to be able to share this stuff and quite odd that several of us are getting similar issues at the same time. Still sore from hysteroscopy and waiting for results in a couple of weeks. Had 2 polyps removed. The docs seem pretty relaxed so I am not worried. Like you I haven’t told many people, just my husband and a couple of friends. I don’t tell my children now nor my parents any of this because I don’t want to worry them and I think that most other people just think that it is all in the past now so I tend to keep quiet. Other people want to put a line under it but we know it’s just not like that. Anyway, we shall continue being there for each other. Take care. Xx
Hi Namaste, I find myself in the waiting room again too after having a painful hip for a couple of days I went to A&E had a X-ray now got to have bone scan it may be they are being cautious because I’ve had cancer the Dr said. It could be osteoporosis or it could be bone cancer or it could be nothing, but as its out of my control ther is not a lot I can do? but I’m not giving up without a fight
Hi ladies and hi again Namaste. We wouldn’t ever forget you! You’re still part of us.
The bloody waiting is such as pain in the arse ladies.
Hope things ease soon Namaste xxxx
Hi Namaste, lovely to hear from you again, although sorry it’s in campy circumstances, hope you don’t have to wait too long, will be thinking if you xxx
Namaste, I have osteoarthritis so it could be osteoporosis (fingers crossed) I’ve got to wait they will ring in the next couple of days to arrange appointment for scan. Keeping busy doing some sewing…
God yes never give up fighting whatever it is got too much to live for ?
Well I hadn’t heard anything Thursday so I phones the secretary who said " I have your file in the pile on my desk I will be typing the notes up today or tomorrow " red flag to a bull I said " he wrote the card our whilst I was there but X-ray have not got it a week later " she said" I will look at your notes today and if he hasn’t written one out will get him to do one" arghhhhhhh I asked if she could let me know either way so if not I would get my dr to do one urgently but she rang back and said he had done one and was trying to get in touch with nuclear medicine to see what was goin on. I am going to ring today and see if they have had my card yet! ? pulling ones hair out lol
So they continue to torture you Marie… Hoping for good results and soon. Love to everyone but especially Marie, Sarah and Namaste as they continue to wait… Xxx
Left a message but no return phone call will ring again in the morning… Me feels a complaining letter needs to be sent…
Had onc today. Put me on Anastrazole now. Any news Sarah, Marie and Namaste? Thinking of you all,
Rachel x
Hi everyone,
Sorry to hear so many of you have been in the waiting room again - me too! I have just seen the consultant today fot my latest mammogram results and all clear. Phew, I can breath again. Rachel’s lucky wish bean helped me through. I have now been moved on to annual check ups. Love to all. xxx
Got home today from a few days away and I have a appointment for Tuesday for bone scan.