Thinking of you and your OH at this horrible time for you both.
meanwhile, Namaste, great news!, enjoy Bonny Scotland
my brother twin, had a stroke. Ridiculously fit and healthy normally. Sod’s law.
he is expected to recover
xx
We have had 7 hospital or GP appointments in 8 days, but the good news is my OH’s melanoma has only spead to his lymph glands so he is down for a Axillary Clearance and re-excision very soon. 5 weeks from diagnosis to treatment plan. It seems an awfully long time. It has (I’m afraid) made a difference that someone has woken up and realized he is still working at 78. I do so miss something as brilliant as this forum for his cancer! Other forums are available I know but I miss the support we all got here. Maybe it’s me- I’ve been round the park once already and my expectations are so high.
As for me, when I am not driving him to appointments I am off work draped around a hot water bottle with an attack of diverticulitis which seems to be a reaction to the blood pressure meds- useless, as the pain has pushed my blood pressure up.
Off to the hospital now for another gig and then I’ll look out my old heart cushion and drainage bag carrier as he is going to need them.
Hi Penny,
Sorry it seems that you have really been through the mill lately but at leats the news is relatively good. Could I just ask what the symptoms of your heart condition were? Jo x
I have felt generally unwell for a couple of weeks. I am very tired and sometimes feel it is hard to breath although I am not gasping for breath at all. I also have a blocked up sensation though and a sore throat and am at the end of a very long and stressful half term so it could just be that I need a good rest! Cancer makes you paranoid though don’t you think?
Hope everyone else is well and moving on positively. x
Hi moonbeams.
I Think you should ask for a blood test Jo. Also get your blood pressure checked. You are correct when you say cancer made us paranoid… And for some it really has been awful , eg Penny getting cardiomyopathy.
I hope you get plenty of rest during half term Jo.
how long is your hair now? Is it shoulder length yet!?
Love to all
rachel xx
ps my brother is doing very well. Much improved. Walking and talking!
Hi Rachel,
So glad to hear your brother is improving. Great news.
I am going to see how I feel this week after more sleep and less stress. I already feel better so I think I am just worn out. Thanks fr your advice.
Jo
xx
Just thought I would pop on to make sure everyone is ok and ready for Christmas?
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Ignore the previous comment dont know what happened there,
Well hello ladies Happy New Year to you all and I hope you had a very good christmas…
i have a date for my MRI its on Saturday the 23rd of Jan at 8.15 yes 8.15 on a saturday morning. Jeepers means I have to get up at 6 in the morning…
The hope is that it is a bulging disc causing all the pain if so it will be a bloody relief to find out what it is as I am sooooo fed up of taking pain killers just to get through the day, and also would like to get back to as near normal life as is possible… but hey ho there are people worse off than myself but sometimes it dosen’t feel like it,
Marie
Well it’s that time of the year again got my appointment for mammogram on the 1st Feb early this year it was in April last year…
Just to say that I have seen the cardiologist who is 90% sure my heart problem is due to the chemo. With the new meds my strength and stamina have grown and I am now in a cardio rehab course and feeling great. My husband’s cancer has advanced and he has secondaries on his lymph glands and he will have treatment- probably immunological (but it is the same drill as the chemo ie hours of waiting, step up to the bar for an infusion, then sick days and two reasonable weeks before the next medical cosh. Only this one will probably not just be for 6 months. We don’t know yet.) The waiting with someone is worse than the waiting for results for oneself. Over on the Melanomates facebook page they call it “scanxiety”. The good news is that he is fine in himself and if he hadn’t had all these tests we wouldn’t know he was ill. Hoping you are all coping and enjoying this lovely early spring weather we’ve been having 
Well ladies! Long time no speak. This obviously means we are all getting on with our lives.
Anyway, I don’t need to remind you all that we all started chemo three years ago this month. Look how far we have come!
I would love love to see you all some time this year… We said we would go up towards Marie and Sarah’s locality. Anyone free over half term?
Love to you all
rachel xxx
Hi everyone,
Long time no speak. I am good thanks - looking forward to my annual mammogram on Tuesday followed by the results in late June. I find March to June the most difficult months for staying positive - don’t know about anyone else?
I am very busy at work. I have been moved to years 5 and 6 this year and have just taken on acting SENCo duties for a year too. I am constantly tired but enjoying being useful again.
Unfortunately, I am report writing through most of half term so cannot really meet up but send my love to you all and hope you are all ok.
Jo
xx
Have either of you heard from anyone else? It would be nice to hear their news.
Hooray! They are cysts, now I can sleep again. Xx
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Hello everyone, just catching up on everyone’s news, hard to believe we were all in the midst of it 3 years ago. Seems like another life sometimes and yet still so raw. Someone at work bought some elderflower and ginger cordial into work and I couldn’t even look at the bottle it made me feel so sick. Jo great news that the results have come back clear must have been quite a scare. Penny I hope your OH is doing ok. I’m doing well (with a large touching of wood) I’ve returned back to work 4 days a week (maternity cover) and have to say I am loving it. I’m very tired by the end of the week but feel so much more like me, and enjoying being useful to someone other than my kids / the school. I also took on the role of moderator for the YBCN FB page a few of us are members of. I’ve found this so rewarding, I was worried it would impact on me ‘moving on’ but in a funny way it’s helped. Anyway I just wanted to let you all know you’re never far from my thoughts and send you all lots of love xxxx
Ooh we can add hugs - when did that happen?? Shows how long it is since I’ve bee here ?
Back in the waiting room again - does it never end? My back is still sporadicaly playing up and so I have been sent for another xray of lower back/pelvis area. Fed up!
In the waiting room for the second time in 3 months only this time I haven’t had a reassuring phone call that the biopsy was negative. Seeing the surgeon and BCN tomorrow and expecting a set of options for treatment. It finally hit me this evening when I was making dinner and I had to sit down and have a drink (in this case ginger ale!) - at least I only have a few hours before I know what is in store for me. I spend so much time at the hospital with my husband I’m sure I will adjust to treatment again! But apart from this and having pneumonia after Christmas life is good!
4 years and counting my lovely moonbeams! Hope you are all well. xx