Well done Ann, I personally wouldn’t take anything yet til you know if you’ll need it but am sure it won’t do any harm! after my first I felt like you, a bit shocked, and like I was sitting around waiting for SEs to kick in so i just had my tea and went to bed at about 8, it’s a tiring day and I just wanted it to be oVer! Hope you sleep ok xxx
Well done Ann hope your SE’s are minimal. x
Ann, well done 1 down… Don’t worry about weight or anything get through fighting this first then when you have the rest of your life to look forward to worry about the weight that’s my plan anyway…
I also had a warm face like windburn also the burping headache breathless and light headedness.
You should be proud… You’ve done it…
Sending big gentle hugs xxxx
Marie
Rachel- I have to take amitriptilline for IBS when it gets bad (which is incidently not now!) (incase you were wondering!) and every time I do I wonder why I didn’t take it before as it improves my sleep no end. And I feel better in myself all day long and start sorting things out for myself and others which I tend to just let slide when I am feeling physically weak. I’m not someone with chronic depression but I do get depressed and I reckon we need every little bit of help we can get. Depression is commoner than the common cold. And among cancer patients? Must be pretty high. Froot loop? Whoaa…you should see some of the people I work with, mental Health Professionals all of them and you could base a comedy series on any one of them.
Ann- I have been praying for you loads and I have to say that you take the biscuit for bravery in my book- you have exceeded my expectations. Which by the way were pretty high!
FEC 1 DAY 9
All of you: I have an unexpected SE to report- my aches and pains have gone! Is it the steroids? The increased hours of sleep? The action of FEC on my auto-immune reaction underlying OA? Or just that I’ve been off Letrozole for a week and a half? Who knows? Who cares? !! 
Having said all this I do have other aches and pains mostly to do with indigestion SEs.
Another SE: funny knobbly skin condition on my face and it feels like I have it on my upper gums. When I was watching Springwatch the other night I enjoyed the film about the female Toads striding through the forests to mate- their skin is exactly how my skin looks. They secrete a poison if you handle them. Wonder if there was any of that toad poison in the FEC?
That did it, I read all those lovely comments and burst into tears !! I have spoken to the hospital and I can have a good gulp of gaviscon, that has just dampened the fire down. Half a pint of spring fizzy water and the burping has reached a scale a hairy arsed builder would be proud of - but it does not hurt as much and feels like some much needed release of wind is happening. God help us all if the direction turns to the south.
Breathing is easing a little now and I am feeling hungry but not sure what to try if anything.
Ann I’m so proud of you!! Been thinking of you all day so glad you got through it. On the food front I find savoury/salty is my saviour especially oat cakes and hula hoops. I too have been burping for Britain but it really does help to drink fizzy rather than flat even though it makes it worse. I’ve developed a taste for 7-up and sprite.
on the vein front basically the area where the cannula was was bruised for a couple of days and that’s now moving up the arm following the direction of the vein. Very weird I blame the red stuff.
The scarf workshop was fun and I ended up with 3 which I rather love and will probably wear even if the ColdCap works. Also tried on one of my 2 wigs which looked fab and calmed me down about the reality of losing my hair.
Penny - how fab to have a positive side effect long may it continue.
take card moonbeams wishing you all a restful and SE free evening.
xxx
Well done Ann- what a relief once the first is done! Hope you’re ok Rachel- love to all undergoing this.
Aly, have an open mind regarding the cold cap. I had convinced myself I could do it, after all I have been splattered from here to kingdom come off horses and had some very painful injuries, therefore I can cope with pain can’t I.
The cold cap is in a different league of pain and I was really shocked to find I could not stick it, especially as I had told myself I would be fine and my hair would hang on to a certain extent. I am now disappointed with myself.
Been a while since I’ve dropped in, had a read through and had a bit of a catch up.
The OH’s parents have been staying for the last few days, been a good distraction from thinking about BC. Looks like your all progressing well. It’s been over a week now and I have lots of the classic side effects.
Runny nose and sore eyes
ZzzZzz…tiredness
Sore throat, teeth and gums…but hey I’m coping
Have had both my CT scan and Bone scan (where I could of easily drifted off), results Monday, so fingers crossed.
Ordering up the wig at the weekend, got to keep it similar as my mum is very ill with dementia, doesn’t know about my BC let alone not know who I am when I lose my hair. Thankfully her eye sight is rubbish.
T x x x
Good morning Ladies,
FEC x6 day 2
Welcome to the world of steriods. Slept 3-5am and if this is the case for the next 18 weeks, FEC can go live where the monkey puts his nuts.
I feel ok, seemed to have gained 5lb overnight, assume that is fluid ? Chronic burning acid reflux, gavision did not touch it so will ring hospital later. It has to go, every sentence I speak has burps, bubbles and rumbles in. Face like a balloon and hot but temp 36. Drinking ok but not seeming to pee much. Food is a problem. Breathlessness and chest pain gone,
The first steriod is going now and the other 2 being brought right forward in the hope tonight is better.
xx
Marleypop- your post made me smile. There is a lot of humour in these wigs, really. I wonder if the folks at work will notice when I turn up in one?
Thanks Penny,
You’ve got to laugh really, dementia is a blessing in some ways…she doesn’t really know who I am at the moment, odds are though she’ll recognise me more with a new wig…always the way x
Morning everyone 
Pacletaxol - 2/12 - day 4
Getting used to the way the cycle flows and managing to get stuff done. Last week I seemed to be just waiting for SE’s, this week I’m just going with the flow. Steriods keep me awake a lot but none tomorrow so there’ll be a crash but I know it’s doable. Seem to have developed a lovely blotchy rash across my chest this week but apparantly that’s a known SE… as there could be some sun this weekend it’ll look like a bit of sunburn! Hair still intact but expecting something to happen when the steroids are finished this time. If not this week then next week for sure.
Well done Anne… the first is the worst in many ways, at least you know what you’re dealing with now and you’ve done it!!!
Glad I’m not the only one putting on weight… I was hoping to lose some. I think it’s more the inactivity rather than the steroids. I usually do a physical job and walk miles every day. I still go for a walk but an hour a day just isn’t enough to keep the blubber off! I guess there’s worse things than being a few extra pounds tho eh?
My mission for today is to clean the bathroom before the afternoon crash… wish me luck xx
FEC-T 2/6 Day 10.
Glad I am not the only one who has an afternoon crash Namaste - there is a point when it just seems to kick in and I can’t do much more.
Rachel hope you are feeling better today.
Ann - I symathise entirely with the indigestion - that has been the worst part for me so far. I am just eating small and often and drinkiing lots. It tends to clear up a few days after you stop taking the anti-sickness meds in my case.
Has anyone heard from LittleScoot - I really hope you are ok LS. x
Hi ladies,
Hope you dont mind the intrusion, Im a June jewel, so not started any treatment since MX/ANC 3 weeks ago, just had bone & Ct scans prior to chemo that should be in the next couple of weeks, BUT wanted to ask if any of you had a tissue expander put in after MX??..
There doesnt seem to be anyone in the Jewels who has, and i just wanted some insight, so thought i’d go back one month at a time to see if anyone else had a similar skin saving MX so i could find out how theyve found having a cricket ball attached to them lol.
Anyway, thanks for the time and hope you are all coping with the chemo SE’s fiarly well.
Take care
Vicki xx
Hi ladies,
Hope all ok?
Well done Ann
Sadly I’m back in hosp with neutropenia? White count too low, went in Wednesday to get checked over trots business lol and they not allowed me out 
Ensure you keep close eye on temp and other side effects as apparently it is a serious thing
Im climbing the walls too, sun is out and I’m stuck in but best they keep an eye out. They are now reviewing my next dose, maybe reduce it or give something else, so on the whole I’m feeling quite low today
Take care
Karen
Xxx
Karen so sorry to hear that you are not well again. Have you been having the injections to boost wbc? Hope you are out in the sunshine again soon. Jo x
No they have me on umpteen drips , they have talked about the injection plus blood transfusion of some sort but they will decide after the weekend
Im busy digging my escape lol! Trouble is its not ground floor!
Oh well I’m sure they will sort it but it appears I am too sensitive to FECT do will adjust it or alter it but they assure me it doesn’t effect the effectiveness but I just feel I’m now able to give it all I’ve got, it’s not gonna beat me
Hugs to you brabe ladies
Karen
Xxxxx
Hi Karen, sorry you’re in hospital and hope they let you out soon, there’s lots the can do to make it better for next time so am sure they’ll sort you out! Xxx
Hi Karen , sorry you in detention lol, will come with ladders and sheet knotting skills to release you lol.
Perhaps they will give you just EC like I am having ?
sending hugs
Marie