May Moonbeams

Had a look but no LGFB sessions near to me so don’t think I will get to one - shame sounds great.
Aly - glad you are ok after number 2. You made me laugh with your expensive wees.
FEC t 3/6 Day 6 - My veins are really playing up right now. Not sure will get many more cannula’s in so they must be telling me I need the port. Still not keen though. Indigestion easing so hoping tomorrow will be a better day.

Well done today Aly and Mills.
Jo- I have a PIC line and understand the reluctance to have something permanently in your body- well for duration of treatment - but it has been no problem at all and when little problems do arise- needing extra blood tests or AB’s it is there and ready- as well as making chemo experience smooth and the stingy E of FEC is I think easier to take this way. It is slightly inconvenient for baths and it is a visible reminder but many advantages. Only tiny prob I have had is with allergic reaction to the dressings which brought up bulbous blisters.
Have also done LGFB- got a cancellation just before my first chemo so still with hair etc. Have more make up than prob had in my life! Love looking in the goodie bag at all the stuff but don’t really know what to do with some of it- I only have sons so can’t pass it on!
Has anybody joined a local support group? One meets near here. When I did LGFB I somehow didn’t feel ready (prob. didn’t want to ‘belong’ to cancer at that point) but wonder if it might be helpful at all- anyone thinking of it?

Aly Cannula- I had almost the same experience halfway through the F. This because they were in such a hurry they dispensed with the warmup first of all. I stupidly played along cos I wanted to get in and out quickly. Next time I am taking a hot water bottle in an insulated bag. Definitely. The wait was so long last time I would have had a cold water bottle by the end of it!
Barbara- well you may have sons now but one day you may have their partners to hand stuff on to? Can it wait that long? I’ve got 3 daughters but two of them have different colouriing from me. We will see…quite looking forward to it. The way I am going through skin cream and foundation I may have an empty makeup box by July.

Penny interesting that you had the same problem. They didnt warm my Veins on number 1 or this time round. Maybe that explains my sore veins post number 1, I had hand warmers in my bag and offered them up but they said they’d be fine without. Will insist next time. The ward was very busy today and you could tell my lovely nurse was being stretched all ways, she didn’t stop. Glad I’be only gOT one more FEC left.

hello ladies
aww sorry if I came across as making anyone feel awful, I didnt mean to, I am just litterally dreading number 2 tomorrow, after the crash I had on number 1 its made me paranoid that it will happen again, but I am going to kick its **** tomorrow (bloods permitting) - as its been said I havent gone bald for nothing, its taken me years to get long hair, cancer is not going to win that one ! Eleanor Wigby might even get an outing if she is lucky
I used to love jelly made like that Jane, although I remember mum making one with milk too (prob evaporated milk or something not ordinary milk) and that as a child was yummy lol ! must have a try lol
I am totally out of sync with everyone now :frowning:
anyone else think chocolate doesnt taste right - now that is bad !
I went chemo shopping today for all the little comforts that helped on round one and all the essentials, my basket in tesco would not help any marketing people for shopping habbits ie stuff for constipation, the trots (sorry cant spell the d word), indegestion etc - well cant make their life easy can we? I even dared to go in scarf (clothes too I might add I am not that brave) and couldnt care less who looked
hope you ladies are fine this evening
Karen
x

Hi Moonies, FEC T cycle 2 day 19
wore wiggy all day today! Getting used to it now. Even my son said " it’s looking good"
Sorry for my negativity the other day. thanks for all the good comments Of encouragement:)
i spent this evening with a childhood friend who had same dx as me 2 years ago and same treatment At same hospital including same consultants and nurses! Anyway, she said she thinks my attitude has improved since I started chemo and I seem more positive now since she last saw me 6 weeks ago (day before my 1st cycle). And she is right. I now believe I can be fixed.
i hope all of you with side effects feel better soon.
we are all worth the thousands of pounds we are costing the nhs!!
x

FEC-T 2/6 -day 2

Morning Moonbeams. No more apologies ladies!!! This is the place to come and vent your frustrations and anxieties. If you can’t be honest here where can you be? We are all here for you and for me I really feel supported knowing what everyone in going through good and bad. Knowledge is power and means I can warn the people around me what may lie ahead.

im glad to say my first night post FEC was pretty good, better than last time much less nausea, and although up a few times for a wee thanks to the large amount of water I drank yesterday I actually managed to sleep and steroid effect not so bad. Feel totally wiped out but intend to spend the day in bed. Mum is up to look after me & the girls whilst OH is as work :slight_smile:

as you know I’m cold capping, had it on for nearly 4.5 hours yesterday. had visions of all my hair coming off with it when the nurse took it off like one of those Scottish hats with ginger hair!!! Luckily it didn’t but I did look like my dearly departed dad with a rab c Nesbit bald patch!!!

Penny - hope the SE’s are keeping at bay.
karen good luck today I’ll be thinking if you and Eleanor.
ann & Rachael and anyone else this week hope the blood fairy is kind to you!
sarah - are you also this week?? Losing track again.
Aly xx

FEC-T 2/ 6 Day 7** Rachel** we ARE worth it! Not only have we been singled out for this “attention” but the fact we are all supporting each other is a little reminder of how much good can come out of how much horror. And if you count up the people we love and who love us the figure would be astonishing. I have a bee in my bonnet about NHS priorities & targets which make some patients look a “better bet” than others for the efforts of expensive doctors and surgeons…I really bonded with my CS when she described me as “young” but if I wasn’t so conceited I would have admired her for saying this because we all have so much to carry on doing! End of rant. For now. Good luck on Cycle 3-you are well on your way and halfway (as they say) to the car park.
Aly Thanks- still okay but I’m off to Maggie’s today for the second half of “Talking Heads” (I had to leave for Onc appt last month) and will keep the wristbands on just in case, even though I’m driving myself. Just think- when you get into your sixties and have to rise at dawn, you will look back on these days and (I hope) have a little nostalgic laugh!
Karen LOL going to Tescos in a scarf…I sometimes dream about going to Tescos in my PJ’s! BTW You are not out of sync just marching to a different drummer.
Good luck all the rest of you Cycle 2 ladies!

FEC T 3/6 Day 7
Feeling a bit better today. Indigestion nearly gone now and don’t feel so groggy. Might even get some lesson planning done today.
Barbara - thanks for your words of encouragement. I know it is for the best just have to get going with it now.
I wore wigfield yesterday and on Friday and my friends didn’t even realise it was a wig. I have had great compliments so need to feel more secure when I am wearing it. Less worried now about wearing my little turban cap out too. I guess you just adjust.
Those of you pre-op, have you got any inkling of shrinkage yet? I keep feeling but sometimes I feel it has and others I don’t. Waiting for my half way ultrasound scan now so will know more soon I guess…

Morning Ladies
Hope everyone’s feeling brighter today
Karen - I find chocolate’s not quite right for the first 10 days after FEC-T. I make up for it in week 3 though!
For the first week after FEC I really like jelly and fruit jelly / gummy sweets, melon, carrots, brocolli and salmon. For some reason the flavours are really intense.
Got my Race For Life t-shirt and off to find some sponsors today x
Take Care
S
x

Karen, dont feel bad , none of us should, if we can’t express our inner most thoughts and feeling here where can we. so no more sorrys. xx
Aly i’m the samas you FEC 2/6 day 2 and feeling a lot better than last time so far, touch wood and all that.
Good luck to everyone xxx

Hello moonies,
thats it I’m not feeling sorry for myself anymore too much energy wasted what I’ve said in previous posts.
Feel so much better when I eat crap when I feel sick I have realised !!
Sod the weight I will deal with that when I’m better…Rant over.
Weather is better here today measuring 26 outside positively a heat wave hey?
hope everyone having cocktails is doing o.k and don’t feel too bad later :slight_smile:
Have a good day all
Marie xxxxx

Good news!
my bloods are good to go for Thursday

but BEST news for ages, my step daughter (my sons half sister who lived with me full time from when she was two to the age if 14), ,she is now 28, has just had her results as she found a lump,it was just a cyst and has been drained… Yay!
Hope are you lovely ladies doing well today.
x

Double good news Rachel. Good luck for Thursday and celebrate the fantastic news about your step-daughter. x
Good luck to anyone else having more treatment this week.

That’s great news rachel and hope SE not too bad this time. Good luck for Thursday and thinking of you.
Marie, i’m the same, one minute im crying and feeling sorry for myself and i try to eat healthy but most of the time i think i’m going through this and if there is ever a time i should do, eat and drink whatever i like, it’s now and will deal with things later like you.
Sarah x

Sarah I think we have to forget about what we are eating just enjoy it I’m going to I’m having cheese and pot pie for tea because I fancie it lol will be the size of a hotel by the time I finish treatment lol
Rachel that is great brews such a relief. My daughter was cleared the other week so that was a relief to me :slight_smile:
right nw going to start tea may do cauliflower cheese as well lol oh my bad bad girl !!
Marie

Marie - cheese and potato pie & cauliflower cheese omg I’m having serious supper envy!! On the food front I agree go with what your body is telling you to eat, sometimes comfort food is the only way … to try and keep on the healthy side I’ve reverted to homemade soup so easy to make and keeps up the veggie intake. My mum always had a soup on the go when I was growing up so it triggers nice childhood feelings. I’ve also discovered the joy of a home made smoothie in the morning. Frozen berries and banana with some almond milk - yummy.

Suzy W how nice to have healthy cravings.

Rachel fantastic news on the bloods and your stepdaughter. Double relief.

Dodo - glad the SE’s are easing, the emend has made all the difference to me this time round.

sarah - hope your SE’s continue to be kind :slight_smile:

I got 2 lovely hats in the post today from suburban turban - pricey but lovely and so comfy and hide my ever growing cold cap bald patch. I’m starting to look a bit like Rab C Nesbit with a fringe - that or friar tuck. Still not quite ready to get the clippers out yet though. When the fringe goes its all coming off!

Aly Xx

I found this thread on the site. Tried to bump it up, but I think it may have been archived. I think the comments made are wonderful - I’m trying to memorise the best ones. breastcancercare.org.uk/community/forums/how-respond-which-tit-was-it-visual-inspection
Jane x

Jane - Thanks for bumping that thread, made me feel a whole lot better this morning

Well ladies I have noticed that people look at my boobs but not took any notice of it I’m sure I will now though lol.
Feel really drained today but not so emotional.
Still eating for England though…
Marie