MBC 5+ year survivor

That’s amazing Julie. So delighted to hear your story. Reading the positive helped me so much when I was going through treatment. I was diagnosed with de novo breast cancer in June 2021 and so far after treatment I’m flying.I had chemotherapy , a mastectomy and radiotherapy. I’m on tamoxifen, Zoladex with Zometa every 3 months. I’m keeping busy and doing everything I did before cancer. Your story gives me such hope .
Xx

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Hi guys
I’m new around here, sadly not new to cancer. But I do have a positive story to share, a story over 20 years.
Diagnosed with stage 3 BC at 32, mastectomy and chemo
Then again at age 37, other side, stage 2, same treatment as above.
Tested positive for Braca 2 gene, had ovaries removed
Age 42 I was diagnosed with secondary breast cancer on my liver, I had successful surgery to remove the tumour and very intense chemotherapy
I am now 52, living a cancer free life , continuing with annual CT scans.

I really hope one day we read more about positive outcomes

Xx

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Wow that’s long time!! Thank you for sharing your story of hope with us!
Do you are on a maintenance therapy or any treatment? (If you don’t mind me asking)
Anyways what an amazing story, you must be very strong

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Hi ya

Ask away, any questions
I have been on Exemestane since 2013, no plans to take me off this as yet, that’s 1x day . Due to medical induced menopause at an early age I now have osteoporosis so I take Ibandronic acid 1 x month and x 4, Adcal per day, that all on the drug side, then CT scan annually x

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Thank you! I really think it is important for us to ear stories like yours, and everybody else that have post here!
Thank you, you ladyes experiences are precious, and I think it is what keep me going…the hope medicines will keep me alive and well for that long! And hopefully in the future there will be some new cures that will be easier or even curative.
Best luck to everyone!

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Hi Katie

Wow! Your story was just what I needed to read. I have a single liver met and I am hopefully having surgery soon. Are you still on any form of treatment. Did your consultant consider you cured?? Sorry for all the questions :woman_shrugging:

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Hi Sarah
This makes me so happy to read.
I had 1/8 of my liver removed with clear margins then chemotherapy, adjunctive " chemotherapy Gemcitabine/Carboplatin

I have been on Exemestane since 2013, no plans to take me off this as yet, that’s 1x day . Due to medical induced menopause at an early age I now have osteoporosis so I take Ibandronic acid 1 x month and x 4, Adcal per day, that all on the drug side, then I have a annual CT scan to keep tabs.

In regard to my status, honestly I’m not sure if I’m classed as cured? Or currently no sign of disease, which is what is on my clinic letter, but if a confusing one

X

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Hi everybody! Best Easter wishes to whoever celebrate or good Sunday to everybody else!
I just wanted to post this interesting story of hope! Nomatter what stage or situation you are, there can always be hope. And medicines are improving quikly!
Best wishes everyone

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Thank you for your post. I’m 65 & was diagnosed end of May 24 with bone mets. Primary bc Oct 2020, (7.5cm tumour,Hormone + HER -), lymph nodes were clear. Lumpectomy & reconstruction (due to tumour size), followed by radiotherapy, Anastrazole then changed to letrazole & then tamoxifen due to side effects. I’m now on Denusomab & abemaciclib. In July I have stop meds for 3 weeks to have SABR.

I have to admit mostly I’m mentally fine & physical well, but every now & again I am scared. I’m concerned that coming off the meds for 3 weeks will lead to a spread of the disease.
It’s hard also not knowing what the future holds & not knowing how long I have to live.

My husband is amazing, as are my (adult) children, parents & siblings.

I exercise at a circuits class 3 times weekly & walk when possible.

Reading all the posts is helpful … so thank you everyone xx

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Thank you for your post. xx

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Hi, sorry about your diagnosis.
From what I understand the meds circulate in your body for a while after you stop taking them, so 3 weeks should not be a problem…
Also exercise is really good against cancer.
I’m 2 and half year in, still terrified, but s
Try to live my life at the fullest!

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Thank you for your message Amel. It really helped me. I hope you are ok :sparkling_heart: I think you are right in trying to live life to its fullest xx

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Hi Deb

Just came across to this post. Unfortunately early this year i was diagnosed with bc mets to my lungs at age 36, was straight diagnosed with secondary cancer never been on chemo or radiation i had mastectomy and lymph nodes surgery before they knew it was spread.
I have been on Kisqali, letrozole and zoladex for 6 months now and my lady scan showed reduction of my nodules my next scan is next month hoping for NED.
My bc is epr + her2 -.
Whats your and how has your scans been so far?

Thanks wish you very well

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It is a long time since I posted on here - there doesn’t seem to be as many posts on the secondary thread as there were before the reorganisation of breastcancernow.

I am a lot older than most of you so I thought I would share my story. I was diagnosed with primary breast cancer in 1995 after my first memogram aged 50.

I don’t know what happened there, I didn’t mean to post yet so I will continue. I had a lumpectomy, radiotherapy and “mild” adjuvant tablet chemotherapy then tamoxifen for five years. I can’t remember having any side effects from tamoxifen except occasional hot flushes. I was then discharged with normal three yearly mammograms (in 2000). In 2015 I was taken ill with tummy pains and kept being sick. A CT scan revealed a blocked small bowel caused by secondary breast cancer in my peritoneum. I had to have an ileostomy which is the worst thing breast cancer has done to me. I also had cancer dotted around my bones, but none elsewhere. I was given FEC chemotherapy then anastrozole and denosumab. After six years this was stopped as the denosumab effected my jaw and I had two teeth removed.
I was then put on palbociclib and fulvestrant injections which I am still on. My cancer has been stable ever since 2015 with a small change recently.
I am now eighty, something I would never have thought possible in 1995 or 2015 so would just like to tell you all that it is possible to live years with secondaries and wish all of you best wishes.
Windflower

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Hello, I’m HER2+ only. I had pulmonary nodules and they have metabolically resolved the last two PET scans, there are still some but no metabolic activity.
Breast has completely resolved. My oncologist is discussing surgery in March after my PET and mammogram. I also go for a CT scan every nine weeks. I’m on Enhertu and pertuzumab.
So I don’t know if I’m considered NEAD because there are still nodules and no activity.

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Hi! i am new in this forum, please excuse my poor english, I am from Colombia, South America. I was diagnosed with breast cancer stage 3 on 2018. One year ago (2024), cancer returned to my cervical and mediatsinal lymph nodes… so now, I am a stage 4 woman. I am dealing with tumoral markers behavior… at the begining of treatment, ca 15.3 was on 50. Next month it started to decresed very slowly. Suddenly, few months later, it get down almost to a normal level, but next month (my doctor makes ca15.3 exam every month) the level duplicates (it was on september 2024), and since then, every month it increase 6 o 7 points … on december 2024, i had my periodic ct scans, i thought that with the increasing behavior of the tumor marker, it will show new tumors… but unexpecting that, the mediastinal lymph nodes were gone… the cervical ones are still there, they are stable. Yesterday, i recived ca 15.3 results for my january laboratory exams, ad it shows more increment on ca 15.3 results… I have on february, new ct scans, but for now, I am a little nervous and crazy about the “crazy” behavior of that tumor marker . Can you please share something about that topic on your experience? Thank you so much!!