Hi DaveF
I read your questions of how much to tell the children on your thread and thought you might like to know about a fantastic charity called Winston’s Wish. On their website they have a section called ‘Serious Illness’ which had loads of advice on when, how and what to tell the children, whether youngsters or teenagers.
They also publish a booklet called “As big as it gets”
Hope things are going well for your wife at the moment.
Hi vermont
Thank you for the info, and for keeping my post in your thoughts. we only have the one, 2 1/2 year old girl who we love to bits.
We tell her some basic info which she is comfortable with, anything more she would not comprehend anyway. I was mainly concerned for the future, and have looked at the site, your right good info here, thanks.
My wife is doing great; no, better than that - brilliantly, at the moment.
The radiotherapy to the base of the skull and extensively to the spine has worked a treat, she is walking realy well, is in no pain, off the steroids and all the other drugs she was taking which is amazing. The eyesight has improved dramaticly to near normal, the only time she gets double vision is in very bright light or strangley if watching out of the window of the car at rows of traffic cones or continuous crash barriers, I think its the strobe effect of lots of vertical lines passing by very quickly. We hope that the nerve will continue to repair itself. She feels almost as well as she has done before being diagnosed nearly 2 years ago.
All this is in stark contrast to the christmas hospital admission for spinal compression, (a day later she would of lost the use of her legs and other functions), huge amounts of fluid on the lungs and severe chest infection, I think it was the onset of pnemonia but the doctors won’t tell us, plus, bless her, a met to the base of the skull crushing her optic nerve(s). wow!. This is the 4th time the brilliant doctors, nurses and NHS have saved her life and fixed her, although they do have a habbit of leaving things to the last minuite which is very stressfull.
She continues on the monthly biophosphates and daily letrazole, this looks like it has started to work well at last. She is continuing to go once a week to a renowned spiritual healer which has some very strange effects, this could be the subject of a whole post itself, the healer has many cancer patients one of which is a gentleman whol has more than 200 different cancer sites, the doctors gave up on him 3 years ago apparently. Anyway I am rambeling…sorry, best wishes to you.
Dave F.
P.S. sorry about spelling, I am an engineer and the spell checker is not working on the site at the moment apparently.
Who cares about spelling when we have the brilliant news on how well your wife is doing at the moment!
So pleased for you both.