Message for DilysP,Lollie, Pauline, Candy

Lucy

Thanks - you’ve definitely raised a smile this end.

Off to visit my aged aunt tomorrow so have just taken a cake out of the oven for her. Time for a cuppa, some mindless TV (most of it is mindless these days!) and then bye byes.

Hope you all have an excellent weekend.

Love D

Dear Lucy

My OH’s doctor asked me (wearing a turban - me that is) if I was going to a funeral the other day. Made me feel just great!

Hope everyone’s weekend is good. Pauline - I have had to hand back the Westies!

Taxotere is making me feel a bit achy but the worst thing seems to be that everything including water tastes disgusting!

Lots of love

Dilys

xxxx

Dear All

Thanks for the laugh Lucy, glad your Mum saw the funny side.

Dilys sorry to hear the Westies have gone back, I shall miss hearing about them. Fancy your Doctor asking if you were going to a funeral! You would have thought they would be a bit more sensitive!!!

Glad you are still feeling fairly okay Dilys. Know what you mean about taste,I have had a bit of that. Can’t seem to find anything good to drink. I used to be a real tea pot, but don’t drink it now.

Dahlia hope your Aunt was in good spirits, did you save us a bit of cake?

Love to all
Pauline
xx

Hi Ladies

I am glad to see you are all in fine fettle, oh dear Dahlia i was sorry to hear about your bike chain…I hope it is fixed now… I had horrid taste with FEC is it worse with tax then??? what sort of turban is it then Dilys is it in black??/how rude and like Pauline says insensative, but it made me laugh anyway…yes the thing with mum the old lady that said it wasnt very discreet her voice was very loud in a quite waiting area…at least she has finished her rads now so mum wont have to chat to them while waiting for me…

oh well back to the grind stone tomorrow. 8 days to go and cooking nicely, infact I am simmering well to the point of boiling I think…

Love
Lucy…xxxxxxxxx

Sorry all, didn’t save you any cake! Visited some tearooms with aged aunt yesterday and although they are well recommended it was too crowded and at least two women sitting at tables breastfeeding! Time and place and all that - call me old fashioned. In fact call me anything you like!

Yes, sorry, when I listed the side effects of the Tax I forgot to say oral thrush and nasty mouth. Nasty mouth didn’t go until it was all finished so I lost a stone. I don’t care for ice cream but maybe that’s worth a try, curry was ok (they’re not keen on you eating such things on chemo!), some fruits were good, bananas were foul, baked apples were on my menu every flippin’ day, Heinz tomato soup with soldiers was just about edible but couldn’t swallow toast, spuds, bread, pasta, biscuits - quite, quite weird. I suppose it’s okay if you need to lose a few pounds but I didn’t/don’t. I did manage a cream tea one day but even that was “just not tasting right”. I ended up on prescribed high calorie juice drinks which were disgusting (they had the cheek to say they were this flavour or that flavour) and all tasted of chemicals but looking at the list of “ingredients” they were jam packed with nutrients and I mixed them with fizzy water and knocked them back quickly - still water was unpalatable.

I’m rambling - just call me Sid Rumpole (I’ll bet Dilys has heard of him!).

Night to you all, have a good week, hope the underground service is tip top Lucy!

Love D

Dear All

Oh yes rambling Sid! This foul mouth is ghastly isn’t it? I am also now crawling round with pains everywhere like a 90 year old and feeling a bit sorry for myself. I have already lost a stone over this and can do without losing any more! I am even quite glad the Westies are back with their mum as I am not sure I could cope right now. Hoepfully the pains will pass soon and I’ll get some sleep.

Anyway hope you are all well and we are not putting you off too much Pauline. Your turn this week? Good luck with the roasting Lucy.

Lots of love

Dilys

Dear All
Yes my turn this week. Doctors tomorrow and Tax on Wednesday!!

Sorry to hear you are now feeling a bit poorly Dilys. I am just hoping that at least it can’t be as bad as being sick all the time?

I have managed to put on half a stone so far, so don’t need any more thank you. Probably just as well there’s no cake Dahlia!!

Only 8 more roastings to go Lucy well done.

Hope you soon feel a bit better Dilys, let us know.

lots of love
Pauline
xxxx

Oh God our posts do cunjure up the imagination - I dread to think what outsiders think when they read them…what with Dahlias quips and Dilys crawling around the floor and me roasting and Pauline acting as a tea pot…I know it’s not funny but I couldnt help but laugh to myself…seriously though I hope that you are ok Dily’s - I thought that FEC was bad I spent a lot of time with my head down the pan crawling around the floor but at least I wasnt in pain it must be awful…at least you only have to have 2 it will soon be over…

It is quite sore under my arm today I feel like I have been in the without the sunscreen and they say you shouldnt do that ??? was a bit late being seen today they had a lot of stretcher cases as they call them to see and there was a back log on my machine so I got switched to another…old woman came in there ranting and raving with her shopping trolley I said to mum oh well I’m sure you will get stuck with her whilst I am in the treatment room you normally do!!!

Love
Lucy XXXXXXXXX

Hi all

Very sorry to hear that you are in pain Dilys. When I had the bone pain I took codeine and paracetamol but to be honest once I’d done my Inspector Wexford bit and refused the Neulasta (blood count booster) I was relatively pain free.

If you cannot afford to lose wait then go to your GP and get him/her to prescribe the Enlive drinks (unless you can stomach the milky types, I don’t drink milk). My chemist got them in less than 24 hours and the GP asked for 20 so I had £60 worth for the price of a prescription. I still have some of them but they’re probably out of date and you are out of reach!!! They are the size of a small carton of kiddy juice and loaded - 1500 (!!!) calories apiece so one a day will make all the difference.

Please get some Dilys and take something for the pain. Codeine will bung you up a bit (sorry to be graphic) but take either a Dulcolax with it or get a bottle of Mil-Par, looks like Milk of Magnesia bottle and works very gently. Codeine and chemo both do a good bung you up job. Can you tolerate strawberries perhaps?

Thinking of you, thinking of you all in fact.
D

P.S. I’m now ashamed that I squealed like a baby today when I went for a blood test (three stabs for a vein), what a wimp.

Pauline you must have posted at the same time as me how funny…best wishes for the tax this week Pauline maybe you will be lucky with that at least like you say no more sickness that reallyis the pit’s being sick on that FEC muck…life saver or not.

I know what you mean about the weight Pauline, I am still trying to shift it and after all the walking I do each day it still isnt budging, I am only really eating salad and fruit, I put on nearly 2.5 stones on chemo, most of my clothes no longer fit and I need to get down to my normal size 12 before going back to work, cant really exercise drastically as rads seems to be making me tired and out of breath.

just 7 to go now and counting…3 stabs isnt wimpy Dahlia - doesnt it get better once you have finished chemo is the needle thing always going to be a nuisance, when I was sent to hospital with a temp of 38.2 the stupid nurse was trying to milk my arm like a cows udder to get the blood out daft bat…

love Lucy
XXXXXX

Lucy, Dilys, team!

It is 51 weeks since my final chemo so I guess it take a long old time for the veins to repair and one of mine seems to be in a permanent state of collapse - the doctor always rolls his eyes when he sees me - they send for him as a last resort although not today. I think the worst time was when they went in at my wrist - successfully - but hurt like wotsit, right where you’d slash your wrists, if you’d a mind to!

7 microwavings to go and then “ping pong” please take Lucy out, she’s cooked through. Like microwaving, you carry on cooking i.e. the skin carries on going downhill, so to speak, for a further 7-10 days before it starts to heal - just to warn you. Just keep piling on the Aeqeous cream and never sunbathe those bits again. That area of my skin is like paper 9 months after finishing and I get the impression from the surgeon that it won’t ever get much better, bummer.

Anyway, must dash - Just A Minute has started and I love the nonsensical now and then.

D
X

yes I know what you mean Dahlia about paper - good description,I think the local rag would feel softer than my boob right now…I dont really sunbathe these days. I find it hard going to sit in the sun for too long, when I was younger I loved it…

I wonder what they will do for a vein when I have my next op - doesnt bare thinking about really…I think I will quiz the consultant on that one when I next see him…

I will be so glad when I have pinged, I will feel then like it is really time to get on with my life and enjoy it whilst I can…

Love
Lucy xxxxxxxxxxx

Hi All

Just summoned up the strength to have a look on here and thanks everyone - you do cheer me up! Thanks Dahlia for the advice on painkillers and Enlive drinks. I keep hoping it will pass on its own but may be I have a few weeks like this? Oh dear. Must be doing some good. Scarily the implant is now hurting which it hasn’t up to now. Anyone else get that? All this will teach me to be so smug about the FEC going so well!

Konw what you mean about veins too. The one in the crook of my good arm is awful, but they can at least still use the hand. Mind you after 18 herceptins the mind boggles!

Good luck with the raosting Lucy and wish you well for tomorrow Pauline. Hope it goes better for you!

Lots of love

Dilys
xxxx

Hi All

I’m back! I’ve had a lovely 2 week holiday in Ibiza with all my family and hardly thought about BC at all.

Dilys, I’m sorry you have been suffering from aches and pains. It is quite common with taxotere I think. I hope you are soon feeling a bit better.

Lucy, you must have nearly finished rads now and that means all your treatment will be finished doesn’t it. Are you still thinking of having a holiday?

I have browsed through the posts from the last 2 weeks and saw someone, Dahlia I think, mentioned meeting up when we all up to it so we can put faces to names. That would be great wouldn’t it.

I didn’t see any posts from Candy. I hope she is ok.

Pauline, good luck for your 1st taxotere tomorrow. I hope all goes well for you.

Love to all.

Love Lollie x

HI Lollie

Welcome back Lollie! So lovely that you had a good holiday. What a great thought for the rest of us. You deserve it. It would be great to meet up when we are all ok to do so, I would be up for that! I am feeling 75 today rather than 90 so must be going in the right direction I think. The vile taste in the mouth is the worst thing! Eurgh…

Loads of love and great to have you back. You feeling ok?

Lots of love

Dilys

PS Hope your tax went well Pauline, and you stay clear of the side effects. Just duck when you see something coming! I wasn’t quick enough this time!

xxxxxxx

Hi Lollie

lovely to hear that you had a great holiday, yes I am going on holiday only in the uk to cornwall as I have pleaded with my rads team and they say they are only willing to let me go within the next 5 weeks within the uk…they really do look after you at the hospital where I go and I know they want me to be safe…it is only for a week.

Dily’s glad you are feeling better - Pauline I hope it has gone ok with your tax…

I feel a bit down and have gotten in a state yesterday & today but thats another story

Love
LucyXXXXXXX

Hi Lucy

What is the matter? You ok? I seem to be feeling better by the minute except for the mouth and not eating. Won’t kill me. I LOVE Cornwall. Whereabouts are you going? If you need us you know where we are!

Much love

Dilys
xxx

Hello all

Glad to hear you’re a bit better Dilys, give it a few more days, you’ll be lively by the weekend again.

Hope it’s gone ok for you today Pauline, first one is worst because of apprehension and the unknown but you’ll be comparing notes with Dilys shortly.

I’ve been reading about a woman who had a bone marrow transplant - made chemo sound like a picnic. Some picnics are nicer than others!

Sorry to hear you’re feeling low Lucy, anything we can do or say to perk you up? I know it’s not always something specific, I often feel down for no reason and sometimes it goes on and on, all part and parcel of BC I suppose. Can you do something to cheer yourself up? Do you have an iPod? I listen to podcasts a lot especially in bed when I cannot sleep and I’ve a few funnies on there e.g. Alan Bennett. I could get some onto disc and post them! I cycle when I can - it lets off steam and de-stresses a bit although I don’t always have enough time. If the weather isn’t good then I rattle my baking tins and the neigbours get a treat and I feel a bit better for it sometimes. Sometimes you just have to wait till it passes. Please say if we can help.

I’ve really got to stop playing those daft word games on chit chat & fun. I should be doing some mind improving reading! Trouble is the concentration is very slow to improve despite the passage of time.

Well the Archers has just finished so time for a soak in the tub in peace and quiet.

Have a good evening.

Love
D

Hi Dilys and Dahlia

No I had some bad family news yesterday…thats all

I am going to st ives - well carbis bay I have freinds that own appartments there…

Lucy
XX

Hi Dahlia

Enjoy the bath. And another Archers fan - woopee! Yes indeed Lucy - have a huge cuddle from us all. Must dash to the loo…

Lots of love

Dilys
xx