I didn’t really know where to post this because I didn’t know whether you’ve stopped reading other sites. From your posts you seem to be feeling down at the moment. I’m not surprised as you have had a rough time lately but at least you now know you’re going to be able to finish your chemo. You will join me on Fri 13th because I have my next to last chemo then.
The Taxotere, so far, has not been too bad. The fatigue has been less than the EC, no nausea/sickness and just a few twinges in my legs but no real aches or pains as yet. The worst part has been my mouth. I’ve had the usual fuzzy, bottom of a birdcage feeling but my tongue has taken centre stage! Swollen, white and furry then blood red and very sore. Now the tip is numbish and I can’t taste anything. Also, I have a constantly runny nose (had it all through chemo) and now the tip feels numb when I wipe it. Very strange!
I know what you mean about going on other sites. I’ve got myself into a bit of a state. I’m ER+/HER2+ and scared stiff this aggressive beast is going to reappear, especially as my onc said that there is a reoccurance blip around 2 years then 5 years etc.
Alot of ladies at a similar stage on this nightmare journey to you and me say they feel depressed. I don’t know whether it’s because chemo is coming to an end and however unpleasant it’s been at times it has nevertheless been a crutch to lean on knowing that the disease has been under such a relentless attack. When it stops it’s then up to our own bodies to do the fighting and I’m frightened that mine will let me down again. It could also be the dreadful weather we’ve been having or do you think it’s a side effect of the chemo drugs?
Lucy, you’re so lucky to be living so near to Hampton Court Palace. I’m very interested in the Tudor period and the importance of Hampton Court.and do lots of reading about it. I’ve only been once and was unable to see and do all I wanted. I intend to get there again but I’ve got a sport mad family who hog the weekends. As I live Manchester way I don’t think they’re too keen to travel to London to trudge round corridors with me!
I hope you feel better soon and good luck with your next chemo. Please keep in touch.
It’s lovely to hear from you…I have just been crying I am so fed up, thought I would cheer myself up with a holiday, try to get travel insurance what a crock of **** that is, nearly as much as a holiday…
I will be thinking of you on the 13th, I thought I was strong I guess I have just hit a blip…I am so glad that your chemo is not as bad, some people have a terrible time on tax, I have just had the dreaded FEC to deal with at least it is just one more then finished onto 25 days of rads WHOOPEE!!! not sure when that will start now as it should have started on 2nd Aug but you have to have a month in between apparently…
Try not to worry about re occurance Jibby, you will drive yourself nuts with it, I am triple neg not sure what that means for me…
If I lived in a house you would have been welcome to come and stay to see H court palace, but unfortunately we live in a rented room and not even enough room to swing a bl**dy cat I think that gets me down too…
going to try to pull myself up…we have gotten over the worst I hope of treatment…
I’m so sorry to hear that you feel upset. As I said before I think alot of it has to do with the stage we are at. Were you planning to go away after chemo or after rads when everything will be over? It’s good to plan something and a holiday sounds great - just what you need.
Regarding insurance, alot of ladies have recently recommended these insurers as being very reasonable -
Aberdeen Ins Services 01472826672
Columbus Direct 0870 083 9503
Direct Line (don’t know number)
I really hope you get something sorted out. You sound a kind, caring person with a lovely partner and family. You deserve a treat.
Keep strong and focused Lucy, you are nearly there. At last we can see the light at the end of this very long tunnel we have been in for such a long time.
Yes I thought we would go away just to take our mind off of things for a while after rads, but we will see, thanks for the numbers I will check them out…I think because I have started to feel like a normal person after not having the chemo for an extended period to know that I have to go back to it and feeling like rubbish that has really made me feel down, but at least I know that, that is it after that, then on to rads…are you having rads? my appointments now all have to change that I had been given due to the delayed chemo, I think that is also getting me down knowing that everything was arranged now it has changed, but I guess these things are done for a reason…
Thank you for the kind words Jibby, I know there is light at the end of the tunnel I think I have just lost my way temporarily and I know I will get back there, I think subconciously I may be worrying about what is going to happen when I am out there with no treatment but you can drive yourself nut’s I then stop and think well at least we are lucky as we can deal with it because we were lucky if you like to know that we had cancer, mum was telling me that someone she knew recently was as fit as a fiddle with no symptoms of cancer and has gone to the GP with something totally unrelated, only to be told he has 6 months to live…so I guess we are real lucky…